Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

Hello everyone…I just wanted to say that I was given a free sample of the hideaway from the hideaway site to try du2 the spasm issue that I have had along with my uteral and bladder prolapse issue…I am sorry that Tanglefoot was removed but do understand why….I am still looking to speak with someone who had prolapse surgery WITH OUT MESH I have asked a few and haven’t gotten any real help…some ladies post that horrific things can happen after surgery and some women end up worse then before the surgery I have gone onto the face book site as well and still am not able to find someone who is willing to share their story I am now reaching out to my uro-gyn to speak with women who have had this type of surgery it’s just so sad that POP has been around since time began and we still can’t talk about it thanks again for listening

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@upartist

Hello Maisie,
I am sorry you have to deal with the discomforts of pelvic floor dysfunction. It is frustrating to find informed answers for sure, as there is much misinformation and partial information out there. Because of the different ways pelvic floor dysfunction and pelvic floor prolapse can manifest, Tanglefoot’s recommendation to seek the opinion of a specialist is a good one. A differential diagnosis is imperative in making the right decisions while moving forward to get answers. I would recommend a Uro-Gynecology center. These teams of clinicians include specialized physician assistants, specialized physical therapists and nurses, specialized gynecologists, and very specialized surgeons. A comprehensive center will provide good patient information, which helps you move forward and have some level of informed control. In order to gain a complete perspective on your needs, specific tests must be performed. These tests provide functional and physical measurements. Before any treatment and surgical decisions are made, the information from these tests must be looked at and considered by a team, with the patient included. There are various treatment options out there, but these treatments need to be targeted and accurate, or they may not work. Surgery is always the last option, as outcomes are never perfect. So the scale must be weighed in carefully. Please do not feel self conscious about this topic. This is an important topic, and one’s day to day life can be devasted by the varying degrees of this condition. Hang in there and don’t be afraid to ask questions and advocate for your future.
Respectfully,
UPArtist

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Upartist – You have given us a well written reply and one that I appreciate. Thank you.

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I am sorry to see Tanglefoot have to leave this site I do want to say that she has been very helpful to me and has put me in touch with other women whom have had surgery without mesh I did find her to be very kind ….again I am asking anyone out there to please share their surgery experience with me I am still not decided as to whether or not I am going to have the surgery however I am starting to lean that way just for the simple fact that if surgery will be a one and done (and please if there is anyone out there that can share with me that it isn’t a one and done please do) and I will not have to live the rest of my life uncomfortably my uro-gyn wants to stich only some people say they don’t want surgery due to the horror stories related to having the surgery again please share them with me again I am not talking about mesh NO MESH….I am just trying to make and educated and informed decision thank you again

Liked by brit

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New to this discussion!
For the last 3 years I have had many UTI’s. I have had a urology woorkup and found nothing outstanding. I have used antibiotic and over the counter drug but they reappear. I do have a prolapse bladder also and I am wondering where to turn next? I am 73 and in good health.

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There is no question that this is a problem which, according to my pelvic floor PT is growing in the population both men and women. As I went through all of the appointments and tests for this, I became more comfortable with the idea of prolapse. The specialists I saw for this problem are well-trained in what they are doing, see this problem all of the time, and know what to do to help improve quality of life. They will work with you and give options if you wish to treat your problem with or without surgery.

I went to a colorectal surgeon and a urogynecologist last summer and went through quite a battery of testing and examinations. They found that I have a rare condition called a perineocele, a moderate rectocele, bladder prolapse grade II, and painful bladder syndrome which I only have 1-2 times a year feeling like a UTI with a negative urinalysis. I have to find out what the trigger is for the bladder syndrome when I have symptoms. Their opinions on these issues were that this was caused primarily by vaginal childbirth.

I chose nonsurgical treatment since I was told the rectocele surgery may only last for 10 years, and I am 64 years old with several women in my family having prolapse living into their 90’s. The nonsurgical treatment regimen includes high fiber diet, plenty of liquids, daily pelvic floor exercises (with a pelvic floor physical therapist in the beginning so you don’t load your pelvic floor,) and keeping active in order to lose and maintain weight. (Walking is good.) I also ride a bicycle with a noseless bike seat. Kegel exercises and core abdominal strengthening exercises are very helpful for prolapse issues and I would recommend these for anyone who is having incontinence. Nobody knows throughout your day whether or not you or doing a Kegel or not!

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Great info, thanks for the post. What is loading your pelvic floor?

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According to my discussions with the pelvic floor PT on my case, loading the pelvic floor would be types of activities causing undue stress or strain within the pelvic cavity. That which translates to further stress on the muscles or lack thereof supporting t he pelvic organs. Items like jumping, running, lifting heavy objects, and certain other exercises all load the muscles and that organ support.

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1. Where does the bacteria that causes a UTI come from? Am I picking it up from public toilets? Does it live in my body all the time? What specifically triggers an infection?

2. I know that urine is produced in the kidneys, and travels to the bladder . If a healthy bladder holds maybe 12-15 ounces of urine, how does the kidney know when to stop production of urine until the bladder is emptied? And, if the BLADDER for some reason does NOT hold the usual amount of urine then how does the kidney hold off on urine production until the bladder is emptied. For example, I have been measuring the amount of urine I pass at any five time, and NEVER come up with anything approaching even 10 ounces. Most times that I void, it is between 3-5 ounces. That means I have ti urinate frequently. I had surgery to fix a prolapsed bladder. Could the bladder have been ‘pinched’ or placed incorrectly, so that the capacity is less than normal? And, if so, does that make my kidneys work extra to release urine? And, if the bladder WAS crimped or placed incorrectly, could that have an effect on bacteria in my urine not being expelled often enough, thus causing a build up that results in a UTI?
3. Will an ultrasound show if my bladder was placed incorrectly, or crimped during the surgery? And if it was, how can that be repaired (if at all possible)?
4. If anyone else has had bladder surgery to correct a prolapse, and has suffered FREQUENT UTIs (by frequent I mean about every 8-10 WEEKS) PLEASE tell me if you have had any success in correcting the problem. I was placed on a program of antibiotics that I took EVERY DAY, did not have a UTI for about 6-7 months, then while still taking the antibiotic, developed another UTI!!

THIS IS DRIVING ME CRAZY! And it cannot possibly be good for my health.

When I last saw the urologist, I gave a urine specimen. It was tested CLEAR, but I was only able to pass about 2 ounces. They did an ultrasound and said I was EMPTYING MY BLADDER! So, if that small amount of urine emptied my bladder, that tells me that the CAPACITY of my bladder is NOT normal!

I drink a lot of water, and severely limit my intake of coffee, sugary drinks and other liquids.

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@pizon

Hi Mrs. Tanglefoot…have you had surgery if so what type I am considering this and like you do want to fix not mask the problem but am very afraid of surgery but need to be active and feel alive again thank you in advance for your time

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I am a retired operating room nurse and would like to share my story. In 2010 (age 64) I had a bladder prolapse. The surgeon I was referred to discussed surgery with me and I consented to a vaginal hysterectomy and cystocele repair. The hysterectomy was being done because my uterus was retroverted and this, according to my specialist, could cause my bladder problem to reoccur after surgery. I did have complications during the surgery due to my bowel being adhered (stuck to) my uterus and the surgeon was considering switching to an abdominal approach but persisted and managed to free the uterus, remove it and then repair the prolapse. I am very sure of these facts because my surgery was done in the operating room where I worked for more than 25 years and the anesthetist, and the staff present were all personal friends. A contributing cause was that after my abdominal tubal ligation (about 1988) I had a bowel obstruction that was due to post surgical adhesions. We waited that one out (opted for medical treatment) and I spent a week in hospital with a naso- gastric tube in my stomach which was attached to suction to keep my stomach empty and I existed on intravenous fluids. The adhesions ‘broke free’ and my bowel function returned and I have had no further bowel problems. So this is why I have opted to avoid surgery if I have an alternative. Some Seven years later, I have a bladder prolapse ( developing over a couple of years) that was protruding through the vaginal opening. I saw my surgeon and he tried fitting pessaries (2 types). Because I have no uterus these would not stay in place. He referred me to a pessary clinic in a larger city and made me an appointment with a physiotherapist specializing in pelvic floor strengthening. I have a long wait to get in to see the pessary clinic and in the meantime I have had 4 physio sessions over 8 weeks and regardless of what direction my treatment takes, I will have the info and supervision I need to strengthen my pelvic floor muscles. This whole problem has many treatment/management choices and each person’s problem can be unique as their solutions may need to be. Please ask me any questions. BTW I have Blue Cross which will cover $350 of Physio and then I need to decide if I need more and can I afford to have more.

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@pizon

Hi Mrs. Tanglefoot…have you had surgery if so what type I am considering this and like you do want to fix not mask the problem but am very afraid of surgery but need to be active and feel alive again thank you in advance for your time

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Hello Margie and thank you for sharing your experience….I too had the bladder prolapse surgery 5 months ago and am still having problems with my recovery…the dr. assures me that the surgery was successful and will not fail I however before surgery had pelvic floor muscle spasm’s my dr did warn me that they may come back like a fire storm but would taper off….I am still waiting for them to taper off they are causing me to stay swollen which is making life hell they just put me on flexieril 5 mg 2 times a day and I am seeing the Physio who has helped me before the surgery I was actually pain free I felt I had to have the surgery I did try the hide away however anything that pushed up on my prolapse caused more muscle spasm’s……so in my opion you should stay with the Physio I know how much she has and is helping me hope you feel better…also if you have any advice on women with this type of muscle spasaming I would love to hear it take care

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@pizon

Hi Mrs. Tanglefoot…have you had surgery if so what type I am considering this and like you do want to fix not mask the problem but am very afraid of surgery but need to be active and feel alive again thank you in advance for your time

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Hi Pizon and I wish I could be of help. I was not aware of pelvic floor spasms and they do not sound like something I would wish to experience. I will ask my physiotherapist for some info about them when I see her at the end of August. I have learned a lot from my therapist. I never knew that a person should never empty their bladder ‘just because’ – she says that that habit will train your bladder to want to be emptied more often than necessary and ultimately cause it to have a decreased capacity. I always would go to the BR before leaving home ‘just in case’. Today I did not do that. I drove half an hour, golfed 9 holes, rode home while consuming a 581ml bottle of water and then emptied my bladder back at home. I don’t think I could have done that 2 months ago before starting my pelvic floor exercises.and I had no full bladder discomfort at all. Wishing you the best.

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@pizon

Hi Mrs. Tanglefoot…have you had surgery if so what type I am considering this and like you do want to fix not mask the problem but am very afraid of surgery but need to be active and feel alive again thank you in advance for your time

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hello I am going to a physiotherapist and she is wonderful I too have had much success with her I go back to the dr. the beginning of Sept. I still have some swelling 5 months out and am not able to work we will see it has been a horrible time I just thank God it’s not life threating but I had this surgery as not to be limited but as of today that has not happened wishing you all the best and keep in touch

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@littlesnowflake52

I had told my doctor that I always have to wear a feminine pad to keep me dry. She told me to start doing some kegal exercises but unfortunately they are not doing any good. I had told this to my oldest sister and she said that I may have to have my bladder pulled up. But I was thinking maybe I’d buy Ben-wa balls. Maybe they would help. What is your input on these?

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New to site – will post on last page at end. Do not know how to delete this post

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@littlesnowflake52

I had told my doctor that I always have to wear a feminine pad to keep me dry. She told me to start doing some kegal exercises but unfortunately they are not doing any good. I had told this to my oldest sister and she said that I may have to have my bladder pulled up. But I was thinking maybe I’d buy Ben-wa balls. Maybe they would help. What is your input on these?

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Sorry everyone, I do not know how to do a new post so I hit the last reply on this forum. Could someone let me know how to do a post if I am not doing a reply to someone in particular?? Thank you. Not that forum savvy if you all notice!

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@littlesnowflake52

I had told my doctor that I always have to wear a feminine pad to keep me dry. She told me to start doing some kegal exercises but unfortunately they are not doing any good. I had told this to my oldest sister and she said that I may have to have my bladder pulled up. But I was thinking maybe I’d buy Ben-wa balls. Maybe they would help. What is your input on these?

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Colleen – I am sooo lost – could you please let me know how to put a new post in and since no one has posted since 2017 , if anyone is still going to be posting to this site. Thank you for any help. I did a post on the last page but did not know how to delete so i just did an edit. If you think there is a chance this forum is still active I will repost my prolapse question. Again, thank you for your help.

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