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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

lorrainehackett | @lorrainehackett | Apr 19, 2023
In reply to @barrye "I get the cramps too. I keep a product called Theraworx by my bed. It is..." + (show)
@barrye

I get the cramps too. I keep a product called Theraworx by my bed. It is a foam which I spread on my leg and the pain disappears. You can get it at any drugstore.

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Thanks

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mlben | @mlben | Apr 21, 2023

I'm Marjorie and I am 72 years old. I suffer with diabetic neuropathy in both legs from the knee down. I take Lyrica. Helps a little bit. My mobility has declined greatly. Using a walker now. Soon to get a wheelchair. I'm open to any helpful tips:) Thank you.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Apr 21, 2023
In reply to @mlben "I'm Marjorie and I am 72 years old. I suffer with diabetic neuropathy in both legs..." + (show)
@mlben

I'm Marjorie and I am 72 years old. I suffer with diabetic neuropathy in both legs from the knee down. I take Lyrica. Helps a little bit. My mobility has declined greatly. Using a walker now. Soon to get a wheelchair. I'm open to any helpful tips:) Thank you.

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Hello Marjorie @mlben, Welcome to Connect. I'm sorry to hear that your mobility is declining from the diabetic neuropathy. You are not alone and I'm sure others can relate. Losing my mobility is my greatest fear with my idiopathic small fiber peripheral neuropathy. The Foundation for Peripheral Neuropathy has a lot of information on living well with neuropathy that you might helpful here - https://www.foundationforpn.org/living-well/.

Have you looked into any kind of exercises that might help with your leg strength or is the pain to great to exercise?

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hello2 | @hello2 | Apr 22, 2023
In reply to @glp1340122 "I am 84 and have neuropathy after chemo treatments. I was wondering if you suffer also..." + (show)
@glp1340122

I am 84 and have neuropathy after chemo treatments. I was wondering if you suffer also from leg cramps or muscle cramps when you stretch. I do and while I am not taking that many meds now, I sure wish I could latch on to something that will help these awful leg/muscle cramps that wake me up in the middle of the night.
Ginger

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Yes I get the same thing when I stretch my legs and at night. Vary painful.

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1 reply
helene71 | @helene71 | Apr 22, 2023

Other peoples suggestions and meds are useful information as I do not have a doctor never mind a specialist in neuropathy. Canada has become a third world country when it comes to health care. I have been on a wait list for over three months with Health Connect to have a doctor assigned to my pain and anguish. I got to clinics and see a different doctor every time. I am on Progabalin for my nerve pain and some other muscle relaxer for the cramps. I tried an American supplement called "NeuroPure" no significant changes or improvements to my condition. I sent the six bottles back and got my refund. I was so wishing this would help give me my life back.

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2 replies
chriscozby | @chriscozby | Apr 22, 2023
In reply to @barrye "I get the cramps too. I keep a product called Theraworx by my bed. It is..." + (show)
@barrye

I get the cramps too. I keep a product called Theraworx by my bed. It is a foam which I spread on my leg and the pain disappears. You can get it at any drugstore.

Jump to this post

I have chemo induced cramps and neuropathy. I use voltaren and pickle juice.

REPLY
davelobb12 | @davelobb12 | Apr 22, 2023
In reply to @helene71 "Other peoples suggestions and meds are useful information as I do not have a doctor never..." + (show)
@helene71

Other peoples suggestions and meds are useful information as I do not have a doctor never mind a specialist in neuropathy. Canada has become a third world country when it comes to health care. I have been on a wait list for over three months with Health Connect to have a doctor assigned to my pain and anguish. I got to clinics and see a different doctor every time. I am on Progabalin for my nerve pain and some other muscle relaxer for the cramps. I tried an American supplement called "NeuroPure" no significant changes or improvements to my condition. I sent the six bottles back and got my refund. I was so wishing this would help give me my life back.

Jump to this post

I have tried all the supplements, physical therapy, accupuncture and tens. Nothing works and the doctors don't seem to care. Medical Cannabis helps me sleep and Tramadol helps with the nerve pain. That's it!

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cher27 | @cher27 | Apr 23, 2023
In reply to @lorrainehackett "I never put the awful foot and leg cramps as part of the peripheral neuropathy. Now..." + (show)
@lorrainehackett

I never put the awful foot and leg cramps as part of the peripheral neuropathy. Now I am wondering.

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I suffer with cramps as well & they are unbearable. A few weeks ago, I started taking 1 tablespoon of organic, Bragg vinegar, 3 times per day. I just mix it with 4 oz of juice or lemonade, whatever you like. I have not had any cramps since I started. May be anecdotal, but worth a try.

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1 reply
lorrainehackett | @lorrainehackett | Apr 23, 2023
In reply to @cher27 "I suffer with cramps as well & they are unbearable. A few weeks ago, I started..." + (show)
@cher27

I suffer with cramps as well & they are unbearable. A few weeks ago, I started taking 1 tablespoon of organic, Bragg vinegar, 3 times per day. I just mix it with 4 oz of juice or lemonade, whatever you like. I have not had any cramps since I started. May be anecdotal, but worth a try.

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I appreciate the suggestions but can't take anything acidic due to Sjogrens dry mouth and Bullous Pemphigoid in my mouth.

Thanks anyway

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lorrainehackett | @lorrainehackett | Apr 23, 2023

Thanks.

However can't take Ansaids and can t take anything acidic due to Sjigrens Disorder. Dry mouth an issue. Also have Bullous Pemphigoid and causes mouth ulcers.

Thanks anyway

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