Post-Covid dizziness/off-balance, as most troubling symptom

Hi I have the same symptoms and about a year plus now. I took many tests.. Went to consult many doctors.. Went to many hospitals... No cure at all... Please help me... What should I do??? I don't want to live in earthquake land forever... T. T

I am the same way. Ever since having COVID in late 2020 before the vaccine I have been so dizzy that walking is tough and impossible without a cane or walker. I had all kinds of tests as well, checking for MS and a variety of other ailments determined by spinal tap. I have had all kinds of therapy including specialized balance therapy and I am not any better. I tried antihistamines and may be saw some brief, short-term benefits, but now it doesn't help. I am going to an ENT sometime soon and have hope that will at least identify the problem. Please keep us informed of anything you find that helps. I hate this way of living.

Please update me on the results from your ENT appointments. I have done everything else but no ENT. That is scheduled for later this summer (I wish I could get an earlier appointment, but can't).

I’ve been going to an ENT and physical therapist for 4 months (dizziness and vertigo for 5 months). I’m better, but have a residual feeling of disequilibrium with all head movements and occasional waves of dizziness after lying down. CT and MRI show no central nervous system cause. In a couple of weeks the ENT will have her audiologist give me a VNG test that is suppose to better pinpoint the cause of dizziness. I’m hoping it gives my treatment team info that will be helpful.

I went to ENT and even neurology specialist.still the same. No cure at all. I have a hard time showering in the toilet. I can't be in any small corner because it will worsen the sensation of being dragged
to one side, rocking, swaying just like a coconut or a palm tree and it is a 24/7 thing. Sleeping is even worse. Felt like I am riding a roller coaster to sleep every night or riding a rocket but blasting to my left up 😂 (This is so funny and weird) up to the space or sleeping on a moving car or speed train or bus (The speed is quite fast) but always moving to my left 😅 .My body is moving uncontrollably 24/7.my brain is always sending wrong signal 😔 I am so tired. I can't even sleep in my bedroom. I have to sleep in the living room (big area) for a year half now! Sometimes the sensation makes me really nausea, gonna fall or pass out anytime + fatigue. If I need to walk longer distance I will need to depend on my wheel chair. Starting, I can't even walk at all but depending on wheelchair but now I can walk like a short distance.I train myself to balancing and walking. A very tough journey! The sensation will get worse if I lay down on bed or lay on my back or on something like the wall, chair or couch.I really dont know what to do....
When I sleep I need to sleep with many pillows and lay on my back. Sleeping side ways was impossible for me. Sleeping with 1 or 2 pillows is also a no no for me. My head felt weird if I look up, down,left or right and when I jump.I felt soo like a disabled. I can't work. I didn't work for like a year and a half now. 😭 This is a torture. Inhuman torture! After Covid the fatigue is real! I have never ever felt so exhausted just by walking a very short distance or doing like a simple chore 😵coping with the sensation. I am going crazy soon!

Have you seen a neurologist??

Eeg , cognitive testing scans

Mine showed
Encephalitis

The only dr that seems to have knowledge

My mri showed nothing
Finally feel heard
And has directed me
Meds and therapy
Brain 🧠 eye
Communication

I got Covid over Christmas. Tested positive for over 2 weeks, my second week I developed severe vertigo and couldn’t even get up to go to the bathroom. Over the past few months since then I have had bouts of vertigo that have increased in duration and severity to the point where I am now experiencing it near daily. My insurance won’t approve tests or PT so I have been taking meclizine daily which makes the fatigue almost untenable.
Not helpful, I know, but I feel better knowing it’s not just me. I really hope you find a working solution. Vertigo is awful.

One thing stuck out in the original poster i can relate to and havent seen anybody mention it is where you said you feel like being pulled to one side.
When i stand up and take that first step sometimes i lose balance for a second and its always to the left like something is pulling that way.

You can look on You Tube and get videos of how to perform the epley maneuver and other maneuvers on yourself at home for benign positional vertigo (bppv). It might help. My PT for vertigo has largely been learning the maneuvers from the PT and then repeating them at home.

Hi @da69. Ive had post covid over a year and over last few months feel pulling to right side and now use trekking poles to walk short distances I can🙃 Hope others going thru this can respond to bring light to it as not typical vertigo, dizziness, etc. Healing to all🌈