GFR dropped 5 more points and I don't know why.

Posted by csage1010 (Sue) @csage1010, Sep 22, 2021

HI all, I got some blood work today and I was actually expecting the results to be good, or at least stable. My GFR dropped from 59 to 54 in 2 months. I have lost 20 pounds and my sugars are within normal limits. So sad.

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@cehunt57

@gingerw can you as the patient request that all your records be shared with both of your physicians (since the medical records systems are different)? You want to make sure they are “on the same page”. After all “you are the customer and the customer is always right”. Besides these are your records and you should be able to share them with whomever you wish.

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@cehunt57 Indeed I do get my team to keep the records flowing between them! When I have printouts of bloodwork, I show them the different tests and values [they come from two different labs systems, so ranges and values may vary a bit], so everyone is thinking on the same page. Beyond that, they do confer between themselves on my health situation, as it is a bit complicated and everyone, including me, is working to keep me on the best path possible.
Ginger

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@saucy

One thing I forget to add is that a value of 6.2 for an A1C is indicative of pre-diabetes. If you are already a type 2 diabetic, that would be good news for someone like me. A "normal' value, I believe, is 5.7 or less. So your PCP should be able to guide you for reducing your blood pressure and watching your A1C trends. Both of these circumstances contribute greatly to CKD. The secret to better health at this stage is to be proactive.

Last thing, congratulations on your upcoming marriage, and I sure your wedding dress will fit fine.

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@goldsba

I recently experienced the same situation where my eGFR dropped 4 points in 2 months. I exercise 7 days a week, have a strict diet aligned to my CKD and lost 5 pounds (on purpose). My doc also feels it is a fluctuation that may be related to hydration related to my heart meds used to treat AFib. I drink 1.5 liters of water per day. I am getting retested in a week to see if this a one time event or a trend.

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I was diagnosed with Stage 4 CKD in 2018 with a GFR of 15 and Creatinine of 3z8. I’m now at Stage 3b with a GFR of 42 and Creatinine of 1.77. I’ve found GFR is very susceptible to hydration levels, so I wouldn’t be overly concerned about a 4 point drop, especially if you’re hydrating well. My Nephrologist believes Creatinine is a much more reliable indicator than GFR. I drink 3L of water a day.

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@randyr

I was diagnosed with Stage 4 CKD in 2018 with a GFR of 15 and Creatinine of 3z8. I’m now at Stage 3b with a GFR of 42 and Creatinine of 1.77. I’ve found GFR is very susceptible to hydration levels, so I wouldn’t be overly concerned about a 4 point drop, especially if you’re hydrating well. My Nephrologist believes Creatinine is a much more reliable indicator than GFR. I drink 3L of water a day.

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Thank you for your reply. This is very helpful. My nephrologist feels that 1.5L of water a day is good and I will be sure to remain diligent. In addition, I plan to continue in my diligence with diet (all fresh foods, limited preservatives, high quality proteins) and exercise in an effort to stay away from dialysis.

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@randyr

I was diagnosed with Stage 4 CKD in 2018 with a GFR of 15 and Creatinine of 3z8. I’m now at Stage 3b with a GFR of 42 and Creatinine of 1.77. I’ve found GFR is very susceptible to hydration levels, so I wouldn’t be overly concerned about a 4 point drop, especially if you’re hydrating well. My Nephrologist believes Creatinine is a much more reliable indicator than GFR. I drink 3L of water a day.

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Thank you for this information.

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@goldsba

Thank you for your reply. This is very helpful. My nephrologist feels that 1.5L of water a day is good and I will be sure to remain diligent. In addition, I plan to continue in my diligence with diet (all fresh foods, limited preservatives, high quality proteins) and exercise in an effort to stay away from dialysis.

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@goldsba Welcome to Mayo Clinic Connect. Each patient is slightly different, even though we share the same diagnosis of Chronic Kidney Disease. It is important for us each to honor ourselves, to take the best care we can. Reading what works for others is important education! Good for you in following a healthy diet, and exercise! Keeping track of your labwork trends and communicating with your nephrologist is great.

When we take charge of our health, it is amazing how we can delay future issues or change our well-being to more positive.
Ginger

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@collegeprof

@saucy

One thing I forget to add is that a value of 6.2 for an A1C is indicative of pre-diabetes. If you are already a type 2 diabetic, that would be good news for someone like me. A "normal' value, I believe, is 5.7 or less. So your PCP should be able to guide you for reducing your blood pressure and watching your A1C trends. Both of these circumstances contribute greatly to CKD. The secret to better health at this stage is to be proactive.

Last thing, congratulations on your upcoming marriage, and I sure your wedding dress will fit fine.

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Thanks!I always had a A1C around 6.2 until about 7 years ago then got it down to 5.4 and kept it between that and 5.7 until recently then back up again! Seems I turned 70 and everything went south! Have stage C
esophaguses and ulcers, and now this stage 3 kidney, high blood pressure and A1C. Was always healthy. Only eat whole foods. No sugars or carbs!! Exercise regularly!

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@saucy

Thanks!I always had a A1C around 6.2 until about 7 years ago then got it down to 5.4 and kept it between that and 5.7 until recently then back up again! Seems I turned 70 and everything went south! Have stage C
esophaguses and ulcers, and now this stage 3 kidney, high blood pressure and A1C. Was always healthy. Only eat whole foods. No sugars or carbs!! Exercise regularly!

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@saucy

Should you have processed foods, lots of bread, etc., much of what we eat is later converted into sugar. So it is nice to avoid candy bars and the like, a good dietitian can show you how to make better food choices to slow down or manage that sugar conversion.

Congratulations on the exercise. Unfortunately, we don't talk about exercise as much as we should on this forum. Thank you for reminding us of its importance.

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@collegeprof

@saucy

Should you have processed foods, lots of bread, etc., much of what we eat is later converted into sugar. So it is nice to avoid candy bars and the like, a good dietitian can show you how to make better food choices to slow down or manage that sugar conversion.

Congratulations on the exercise. Unfortunately, we don't talk about exercise as much as we should on this forum. Thank you for reminding us of its importance.

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Thanks but I haven’t had a carb since the 90’s and never eat sugar only Whole Foods, I even had to it out fruit because of the sugars!

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Ok update! After a week of stress with 3a CKD and ruining my vacation turns out Lab got it wrong! Doctor redid blood work and GFR was really 74 and other factors were off. It claimed my potassium went up from 5.2 to 5.8! Doctor is very concerned but I will go to a different lab and recheck it myself!!!!

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