Anyone think that it’s no longer long Covid? just permanent damage?

Posted by ericy210 @ericy210, Mar 26, 2023

It’s been 10 months since I was a happy, successful, talented businessman and family guy with a nice suburban life.
Now I have trouble with basic memory and processing.
I’m in a couple of clinical long Covid programs, had tons of tests, and am on dementia meds and adderall to repair neural connections and help me focus at work. I’m tired of all the neurologists and endless testing.
I don’t even know if it’s meaningful to say I have long Covid. I’m just screwed up, like someone in a car accident who will always limp or is missing an arm or is paralyzed.
It seems I’m left with “managing the symptoms” until brain fog, dementia, Parkinson’s, traumatic brain injury, MS, and other related brain ailments are magically cured.
I’m trying to accept I’m a new guy now. I’m stuck trying to pretend I am the pre-Covid guy and just being a blurred xerox copy of myself.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

x999x | @x999x | Mar 31, 2023

In reply to @margaretamada "I dread to think the damage might be permanent. I’m staying hopeful at the moment reading..." + (show)

How did you get BC007?
Are you in USA?

kentkemmerling1949 | @kentkemmerling1949 | Mar 31, 2023

I certainly hope that COVID long haulers is not permanent. I can no longer walk without the aid of a cane and even then I can’t go very far without wanting to fall down. MY balance is shot and I am hoping a solution will be found. I have been like this for almost 3 years now.

margaretamada | @margaretamada | Mar 31, 2023

In reply to @x999x "How did you get BC007? Are you in USA?" + (show)

I’m in the US. As far as I know no drug trials are taking place in the US with BC007. The only ones I’ve read about are the trials in France.

prancer20 | @prancer20 | Apr 5, 2023

In reply to @ericy210 "I’d also like to know if any reputable group has some data-based recommendations. I find it..." + (show)

Yes... we need a reputable, reliable data base in order to navigate all these potential alternative treatments! I am hoping the Covid specialist will shed some light on this when I finally get to see him next month.

melaniego | @melaniego | Apr 6, 2023

Me too. Only they have diagnosed me with Parkinson's and I fear it will only continue to get worse now. I don't think the experts know much. And no one seems to be willing to even entertain the idea that this was created in a lab and meant to be a super virus. Maybe it was not meant to be released. But it sure has wreaked havoc on so many of us.

tracyo7984 | @tracyo7984 | Apr 6, 2023

In reply to @kentkemmerling1949 "I certainly hope that COVID long haulers is not permanent. I can no longer walk without..." + (show)

Living the exact nightmare

beebee000 | @beebee000 | Apr 6, 2023

you are not alone, the memory, brain fog or what ever the heck it is as well as a whole other mess of things is what i'm going through too, it's been over 3 years for me, i have to take it day by day..hang in there..

kentkemmerling1949 | @kentkemmerling1949 | Apr 7, 2023

In reply to @tracyo7984 "Living the exact nightmare" + (show)

What have you tried and what kinds of doctors have you seen? I went to my GP, a neurologist recognized in the area, eye doctor, and now soon a couple ENT’s. So far no idea what to do except therapy, which I have done repeatedly with no help. I am looking for some fresh ideas.

ive1021 | @ive1021 | Apr 7, 2023

So sorry, I can relate. I hope you can find a way through this. I lost my career, marriage and many people along the way. But I’m trying to find acceptance and selfcare practice.

MrWolf | @mrwolf | Apr 7, 2023

I’m my case l know is permanent damage. The MRI, Encephalogram and Evoke test showed abnormal function of the left temporal lobe and frontal lobe. The test results are compatible with my symptoms l never had before. Brain fog, slight short term memory, insomnia and right hand tremor. This retired me from practicing orthodontics. There are no drugs to fix brain damage. At least l can function for daily life, although l battle with the tiredness of the inability to sleep and rest. I still exercise, eat right, take supplements and push my self. The Ambien is the only consistent med l take now, but is hit or miss. Accepting the situation has allowed me to get off anti depressants. Until stem cell research and usage for treatment, l don’t see pharma curing anything. That won’t happen in my lifetime.