Struggling to cope with Stage IV diagnosis and what the future holds.
I was diagnosed with Stage IV breast cancer in May of this year (2021). I went through aggressive chemo that resulted in a clean PET scan in October. I then had a lumpectomy in December. When the tissue from the surgery was analyzed, it showed that the breast tissue was still cancerous. That was shocking, and very hard to accept, after the PET, physical exam, and a mammogram did not detect any signs of active cancer. I went from being full of hope to feeling as though all the treatments have been for nothing. I am starting on hormone therapy this week to slow progression. I am really struggling with what the future holds for me and how to move forward in a productive way. Hoping there is a Stage IV patient out there that can offer some advice, or share their experience, to help me. Thank you. Mary
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Thank you for sharing your beautiful, helpful words. Such wisdom.
Thank your sharing your story! It brought me to tears.
Thanks for your great advice. I was diagnosed with recurrent stage 4 MBC 1 year ago, 12 years after my original diagnosis and treatment. I am really trying to live in the moment, and find keeping busy with family, friends and doing the things I always said I would do in retirement is helping me cope. It's hard sometimes....when scans don't go your way and plans have to change. I love your advice about not regretting what you have done so my plan is to keep doing those things I can do now. Thanks again for your thoughts and good luck with your journey.
@mimster Your words brought me to tears. Thanks for sharing your story. I shall always remember your wisdom and courage on my own journey. All the best!!
I love your letter. It says all the things I believe. I have one statement different than you, I BELIEVE GOD DECIDES HOW LONG I WILL BE HERE. Doctors are his helpmates, but I think God keeps throwing me back and saying I am not done with you yet. I am 92. I had my breast cancer when I was 36, and no Chemo, Radiation or follow-up medication. Just a radical mastectomy on the left and a simple mastectomy on the right two years later. They also took 14 lymph glands. All that was 52 years ago. For me, cancer made me aware how very precious life really is, so it is even more important to enjoy and treasure every day you are given. Thank you for your lovely encouraging letter.
Gina5009
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1 ReactionWow! You an inspiration! I was diagnosed with mbc that went to my spine and pelvis this past November. At first I really struggled, but then I realized I was not going to let cancer define me, I will live each day to the fullest. Spend time with family and friends. Be the best I can be while I'm still blessed to be here. You are a blessing!
Hello there, my wife was diagnosed earlier this year with TNBC and was initially treated with chemotherapy/ immunotherapy. The treatment was working and she quickly saw a reduction in size of the tumor to the left breast. A few months later, life was really stressful and coincidentally, a follow-up scan showed the tumor grew. She was referred to a surgeon and had her breast and some lymph nodes removed. The tumor was sent for analysis and the lymph nodes were confirmed positive for cancer. She had further scans including a bone scan which showed only a very small spot in one of the lymph nodes. We then met with the oncologist who didn’t give us much hope but we had a PET scan done. The PET scan showed several spots including two spots on the ribs that are most likely cancerous. We have been told already that the most commonly used immunotherapy pembro isn’t working and suggested there is a 1/3 chance Capecitebine will work. Her CPS score is about 10. We have decided to take control and make dietary changes and lifestyle changes that will help. Does anyone who has been through this have any advice for us? Does anyone have any experience with off-label medications? She is 41 years old and otherwise healthy. Thank you in advance.
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4 Reactions@crosschek geez, I am sorry about this diagnosis. TNBC can be difficult due to a lack of druggable targets. It sounds like your doctor has been really good about gathering the needed information.
Your wife is young, and it is especially hard to think about cancer when you are young. I was in my 30’s and it definitely leads to different decisions, and a willingness to go further to treat the cancer.
I know that I read a ton of abstracts about research for TNBC, because that is considered one of the biggest needs.
Is your wife being treated at a cancer center or teaching hospital? Any possibility of clinical trials?
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1 Reaction@crosschek
Did they try Keytruda?
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1 Reaction@crosschek did she have Adriamycin? That was the only chemo that seemed to shrink my TNBC and last pathology was negative for it.
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