Small Fiber Neuropathy: What helps?

Posted by lisadog33 @lisadog33, Mar 28, 2017

I have been diagnosed with Small Fiber Neuropathy. My problem is this. Since before they diagnosed me, I was having other symptoms that I thought were not related including loss of appetite/weight loss, bladder control, bowel control, problem with eyesight at times, tremors, sleep issues among some other things. I was told by my Neurologist that those things are not related to small fiber neuropathy but when I look it up, it says it can affect your autonomic nervous system. What is the truth. I am having a heck of a time with bladder and bowel issues as well as either sleeping through the alarm or not sleeping at all. I hope someone can shed some light on this for me. Thank you.

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katee | @katee | Mar 27, 2023

In reply to @unclefreddy "Did the magnesium help?" + (show)

The magnesium did help with the severe foot cramps. Now the epsom salts seems to be helping with feeling in my toes

mdh9 | @mdh9 | Mar 28, 2023

In reply to @madison2023 "I take 200mg of magnesium before bed and 1000 B12 and vitamin D in the morning...." + (show)

Magnesium glycimate is most absorbable. Vit Bs in a neuropathy natural supplement is safest. Many Bs are synthetic including the shots and are not absorbable and float in blood causing blood tests to be high.

madison2023 | @madison2023 | Mar 29, 2023

Is there a particular Vitamin B supplement brand that you recommend?

bmelvin | @bmelvin | Mar 31, 2023

Hello!

I also have a whole host of symptoms going on that were diagnosed as Peripheral Neuropathy caused by the Moderna Vaccine. That was in May of 2021.

I was just diagnosed with small fiber neuropathy and I am in hell! Ugh! I am having a spinal stimulator put in next Friday. I will update you guys a couple weeks after my surgery to let you know how it is helping.

bmelvin | @bmelvin | Mar 31, 2023

In reply to @katee "I believe that neuropathy is all about the nerve system. Read some more on it. Maybe..." + (show)

It is. You are exactly right.

bmelvin | @bmelvin | Mar 31, 2023

In reply to @johnbishop "Welcome @tb01, I'm not sure @kfrenc04 saw your reply so I thought I would respond. Ugg..." + (show)

Check out the uggcloset.com That is their outlet.

hankinbc | @hankinbc | Apr 1, 2023

I have idiopathic small fiber neuropathy. I do not have the bladder and bowel control issues. It’s mainly my toes - numbness and bluish/purple in shower and sometimes other times. PRP helped with those symptoms for almost 2 years. It’s starting to come back again. They weren’t sure how long it would help.

swjudy | @swjudy | Apr 6, 2023

Thanks to all about supplements! Progressive Labs in Irving, TX sells pharmacy strength supplements and I have been buying from them for over 25 years. I have an account through my nutritionist but I think that now they sell directly to the public. 800-527-9512 CST http://www.progressivelabs.com

pfszakacs | @pfszakacs | Dec 21, 2023

In reply to @johnbishop "Hi @ashlely, Welcome to Mayo Connect. I also have non diebetic peripheral neuropathy and only have..." + (show)

John: I came across a special diet for neuropathy, but lost connection to my cell provider when traveling. Would you have a link to this diet ?

John, Volunteer Mentor | @johnbishop | Dec 22, 2023

In reply to @pfszakacs "John: I came across a special diet for neuropathy, but lost connection to my cell provider..." + (show)

I'm not sure I've seen a special diet but have seen a lot of nutritional food listings for people with neuropathy. The Foundation for Peripheral Neuropathy has a lot of information on their site on the topic - https://www.foundationforpn.org/living-well/lifestyle/nutrition/. They also have a webinar on the topic that might be helpful - https://www.foundationforpn.org/webinar-nutrition-for-patients-with-peripheral-neuropathy/.