Small Fiber Neuropathy: What helps?

Thanks for the hint. I’ll look them up

I rely on the Cozy Winters foot of bed heating pad. Couldn’t sleep without it. You can find it at cozywinters.com. Wishing you warm tootsies.

What are Ugg boots? Would they help me too? Where can I get them? TB01

Hi. From what I know, there is peripheral SFN and autonomic SFN. I would assume it may be autonomic SFN you might have. I was misdiagnosed for over a year. Going from one neurologist to another, along with many other medical specialists.
There is a brilliant neurologist in NYC that finally diagnosed me and did all necessary testing, including skin and nerve biopsies, EMG/NCV and mri, blood tests , and had my diagnosis within a week. He wrote a book called “ the autoimmune brain”. His name is Dr. David S Younger. He thinks “ outside the box”, is kind, compassionate and brilliant. Perhaps this will be helpful to you and others.

Welcome @tb01, I'm not sure @kfrenc04 saw your reply so I thought I would respond. Ugg boots are just a brand of boots that some folks find warm and comfortable. I've never had them before but have friends that like them. Here's a link to see what's available:
https://www.ugg.com/boots/.
Have you been diagnosed with neuropathy?

Welcome @behappy1, Thanks for sharing your diagnosis. It sounds like you have a great neurologist that helped you. Can you share a little more about your treatments and what has helped?

Hi, thank you for welcoming me. I will be speaking to my neurologist today , to discuss treatment, if there is any. He does want me on high doses of cannabis . I will be more specific after our conversation. I have tremendous empathy for anyone who endures the tremendous burning , pins and needle pain that I have suffered with for a year.

Hello,

I was recently diagnosed with SFN, but have also had also every problem you described you have had above. I have been to Mayo and other hospitals with not much if any help. Who diagnosed you? I would appreciate any other advice you have. Thank you so very much!

Hello,

I am a 48 year old female who lost the ability to sit up, stand and walk shortly after having the Moderna vaccine in May of 2021. At the same time, I also developed severe pelvic floor dysfunction, a rectocele and Dyssynergia. Initially, over the course of about 6 months, I retaught myself to walk and only the pelvic floor dysfunction, Dyssynergia and complete numbness in my feet was left. In November of 2021 my legs began stiffening and now I am almost completely stiff and numb to my knees, I have developed joint pain in my hips and knees and have been diagnosed with SFN. I also do not have normal indications when I have to urinate. I have been to the Mayo Clinic twice (this is where I was diagnosed originally peripheral nerve damage as a side effect of the Moderna COVID vaccine) are currently working with doctors at Duke and have been in pelvic floor PT with limited success. Can anyone provide any information regarding similar issues, helpful intervention, specific specialist that might be able to help me? Any information would be incredibly helpful!

Thank you!

Go to the UGG Outlet online. UGGS are quite expensive and you can get them at a much better price from the outlet. I live in my UGG slippers because my feet are always frozen. If the online UGG outlet is not open, keep checking back on a regular basis. There are also UGG outlets all over the nation. You can find a listing of them on the UGG website.