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Small Fiber Neuropathy: What helps?

Posted by lisadog33 @lisadog33, Mar 28, 2017

I have been diagnosed with Small Fiber Neuropathy. My problem is this. Since before they diagnosed me, I was having other symptoms that I thought were not related including loss of appetite/weight loss, bladder control, bowel control, problem with eyesight at times, tremors, sleep issues among some other things. I was told by my Neurologist that those things are not related to small fiber neuropathy but when I look it up, it says it can affect your autonomic nervous system. What is the truth. I am having a heck of a time with bladder and bowel issues as well as either sleeping through the alarm or not sleeping at all. I hope someone can shed some light on this for me. Thank you.

Interested in more discussions like this? Go to the Neuropathy Support Group.

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unclefreddy | @unclefreddy | Mar 26, 2023
In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)
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Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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What dose of magnesium? We’re your magnesium levels tested first and we’re you deficient?

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jonelson4 | @jonelson4 | Mar 27, 2023
In reply to @unclefreddy "What dose of magnesium? We’re your magnesium levels tested first and we’re you deficient?" + (show)
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What dose of magnesium? We’re your magnesium levels tested first and we’re you deficient?

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I take 500 mg magnesium glycinate before bed. Also take 600 mg alpha lipoid acid and 1000 B12 in the morning. I have not had my magnesium levels tested. In addition to tingling and burning legs and feet when sleeping, I had muscle cramps and was advised to take magnesium before bed.

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madison2023 | @madison2023 | Mar 27, 2023
In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)
Profile picture for katee @katee

Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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I take 200mg of magnesium before bed and 1000 B12 and vitamin D in the morning. According to my neurologist, magnesium is a supplement that can help but not hurt you. You should not take it on an empty stomach though.

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rosy54 | @rosy54 | Mar 27, 2023
In reply to @jonelson4 "I have been taking magnesium glycinate at night, too, and it is helping. I also take..." + (show)
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I have been taking magnesium glycinate at night, too, and it is helping. I also take B12.

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Is the B12 helping for memory problems too? I get monthly shots and taking vitamin B12 too ?

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unclefreddy | @unclefreddy | Mar 27, 2023
In reply to @jonelson4 "I take 500 mg magnesium glycinate before bed. Also take 600 mg alpha lipoid acid and..." + (show)
Profile picture for jonelson4 @jonelson4

I take 500 mg magnesium glycinate before bed. Also take 600 mg alpha lipoid acid and 1000 B12 in the morning. I have not had my magnesium levels tested. In addition to tingling and burning legs and feet when sleeping, I had muscle cramps and was advised to take magnesium before bed.

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Did the magnesium help?

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Amanda Roe | @amandajro | Mar 27, 2023
In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)
Profile picture for katee @katee

Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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Hello @katee, and welcome to Mayo Clinic Connect. Sharing tips from your experience is a gift to others looking for options, so thank you for joining.

You will see that I have moved your post into a discussion where others can also read your your experience. You can find your post here:
- Small Fiber Neuropathy: What helps?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/

What type of magnesium and what amount have you found helpful?

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katee | @katee | Mar 27, 2023
In reply to @michael149 "was it hot or cold water" + (show)
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was it hot or cold water

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Hi
I use very warm water to dissolve

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jonelson4 | @jonelson4 | Mar 27, 2023
In reply to @unclefreddy "Did the magnesium help?" + (show)
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Did the magnesium help?

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I think so-I am sleeping better. I usually go right to sleep but still wake up after about 4 hours with a little burning and tingling in my feet. After getting up and walking for a few minutes, I can usually go back to sleep for 3 or more hours.

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katee | @katee | Mar 27, 2023

I believe that neuropathy is all about the nerve system. Read some more on it. Maybe also check if you have something else like fibromyalgia, have a read up on it. It can be diagnosed by a muscular skeletal physician.

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jonelson4 | @jonelson4 | Mar 27, 2023
In reply to @rosy54 "Is the B12 helping for memory problems too? I get monthly shots and taking vitamin B12..." + (show)
Profile picture for rosy54 @rosy54

Is the B12 helping for memory problems too? I get monthly shots and taking vitamin B12 too ?

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No, my memory is good. I am on a very low carb, no sugar diet and don’t take any prescriptions. My only medical problem has been the pain, tingling and burning in my feet after having Covid in 2021. I have never had the Covid shots.

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