Hi @sueleerock, please allow me to explain. We encourage Connect members to not share their contact information on the public forum. Instead we suggest you use the private message functionality to share personal contact information. To send a private message, simply click on a member's username and click send a private message.
I appreciate your willingness to share your email publicly. However, as Ethan said, when you share information on the forum you not only help the people participating in this discussion, but also the hundreds of people who read it and have not yet posted. Your messages give readers the confidence to post because they see the value of the support, experience and information shared.
I think it rather odd that during treatment my legs hurt all the time, and the hurting has not gone away. My left leg had a hugh buildup of fluid, and it was twice the size of my right.leg. The doctor had no idea why that happened.
Hi @sueleerock, please allow me to explain. We encourage Connect members to not share their contact information on the public forum. Instead we suggest you use the private message functionality to share personal contact information. To send a private message, simply click on a member's username and click send a private message.
I appreciate your willingness to share your email publicly. However, as Ethan said, when you share information on the forum you not only help the people participating in this discussion, but also the hundreds of people who read it and have not yet posted. Your messages give readers the confidence to post because they see the value of the support, experience and information shared.
It is pretty ironic that the doctor's are the ones who caused me to deteriorate or contributed to my demise and there isn't a doctor in Seattle who will prescribe pain medication to anyone on medicaid and medicare. Didn't have this problem when I had good insurance.
@sueleerock Awe, I'm really sorry to hear that you are in so much pain today. I 100% understand the irritability that comes along with the pain. As does anyone who has ever been around me when I am having one of those extreme pain days lol. It's awful and I wish I could help you. You're a strong woman obviously. You have been fighting a very hard battle for a long time now, and none of us signed up for our treatments with the proper/truthful information about the medication(s) we would be taking. This truly infuriates me. It bothers me so much more to know that so many others are also suffering the long term side effects/chronic illnesses. It's not right. Something has to be done. I'm grateful to have found this group and to have communicated with you and others. Sometimes it's comforting to know you aren't alone, even though we would never wish this nightmare upon anyone else. The support is a good thing and can help in so many ways in and of itself. I hope your pain eases up for you real soon and you're able to feel more comfortable. Sending hugs from afar!
It is pretty ironic that the doctor's are the ones who caused me to deteriorate or contributed to my demise and there isn't a doctor in Seattle who will prescribe pain medication to anyone on medicaid and medicare. Didn't have this problem when I had good insurance.
@sueleerock Awe, I'm really sorry to hear that you are in so much pain today. I 100% understand the irritability that comes along with the pain. As does anyone who has ever been around me when I am having one of those extreme pain days lol. It's awful and I wish I could help you. You're a strong woman obviously. You have been fighting a very hard battle for a long time now, and none of us signed up for our treatments with the proper/truthful information about the medication(s) we would be taking. This truly infuriates me. It bothers me so much more to know that so many others are also suffering the long term side effects/chronic illnesses. It's not right. Something has to be done. I'm grateful to have found this group and to have communicated with you and others. Sometimes it's comforting to know you aren't alone, even though we would never wish this nightmare upon anyone else. The support is a good thing and can help in so many ways in and of itself. I hope your pain eases up for you real soon and you're able to feel more comfortable. Sending hugs from afar!
That is very nice of you to say, thank you. When my son asked me why I was on this website and I told him that only people who have gone through what I have can understand how terrible I feel. He doesn't get it. Initially he had empathy, now he is tired of hearing it so I never mention how I really feel to him.
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Hi Sue, please keep posting. I understand why it was removed. No biggie. 🙂
Hi @sueleerock, please allow me to explain. We encourage Connect members to not share their contact information on the public forum. Instead we suggest you use the private message functionality to share personal contact information. To send a private message, simply click on a member's username and click send a private message.
I appreciate your willingness to share your email publicly. However, as Ethan said, when you share information on the forum you not only help the people participating in this discussion, but also the hundreds of people who read it and have not yet posted. Your messages give readers the confidence to post because they see the value of the support, experience and information shared.
Please see the Community Guidelines (https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/) outlining how to use the public forum safely.
I'm so irritable today, too many pain issues, no pain relief, took a sleeping pill to escape, just woke up.
I think it rather odd that during treatment my legs hurt all the time, and the hurting has not gone away. My left leg had a hugh buildup of fluid, and it was twice the size of my right.leg. The doctor had no idea why that happened.
I'm just grouchy today, no pain relief.
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1 ReactionUnderstood, Sue. I'm terribly grouchy when in pain. I hope you find relief soon.
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2 ReactionsIt is pretty ironic that the doctor's are the ones who caused me to deteriorate or contributed to my demise and there isn't a doctor in Seattle who will prescribe pain medication to anyone on medicaid and medicare. Didn't have this problem when I had good insurance.
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1 Reaction@sueleerock Awe, I'm really sorry to hear that you are in so much pain today. I 100% understand the irritability that comes along with the pain. As does anyone who has ever been around me when I am having one of those extreme pain days lol. It's awful and I wish I could help you. You're a strong woman obviously. You have been fighting a very hard battle for a long time now, and none of us signed up for our treatments with the proper/truthful information about the medication(s) we would be taking. This truly infuriates me. It bothers me so much more to know that so many others are also suffering the long term side effects/chronic illnesses. It's not right. Something has to be done. I'm grateful to have found this group and to have communicated with you and others. Sometimes it's comforting to know you aren't alone, even though we would never wish this nightmare upon anyone else. The support is a good thing and can help in so many ways in and of itself. I hope your pain eases up for you real soon and you're able to feel more comfortable. Sending hugs from afar!
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1 ReactionIt isn't right 🙁
That is very nice of you to say, thank you. When my son asked me why I was on this website and I told him that only people who have gone through what I have can understand how terrible I feel. He doesn't get it. Initially he had empathy, now he is tired of hearing it so I never mention how I really feel to him.