1. < Epilepsy & Seizures

Bad news

Posted by Leonard @jakedduck1, Jul 24, 2020

Well I was at Costco today mainly to buy water and a pie because I saw a post that John,
@johnnishop was talking about on the Neuropathy section. I haven’t been thinking of anything else except getting a pie at Costco but they only sell pies from September to December. The lady said they ended up throwing them all out. I told her she should’ve giving me a call. But that’s not the point of my story
I was doing fine for about 10 minutes then the back of my neck started hurting really bad and I felt weak I didn’t think I could make it back out to my car. On my way home I had double vision which I occasionally have. I stopped at my neurologist office which was a mistake and I saw him and he believes that I had a focal aware seizure in Costco. Although I suppose that is possible I don’t really believe that’s what happened. After 13,000+ seizures I pretty much know when I have a seizure not Tonic-Clonic seizures but focal seizures pretty much for sure, Especially Focal Aware seizures. He wouldn’t let me drive home. Now I’m wondering if he’s going to yank my drivers license again. I just paid $3100 to get my car fixed and I’m certainly not gonna let it just sit again and deteriorate. He can’t prove I had a seizure and I can’t prove that I didn’t and of course the motor vehicle department is going to believe him over me. So now I have to find a rheumatologist and see if there’s arthritis in my neck and if it could’ve possibly caused the issue at Costco. The symptoms that I had at Costco could have certainly been a seizure manifestation.
I was going to ask him for an EEG to see if there was any focal activity but that would only give him more ammunition to prove his case.
I imagine he will yank my license again but whatever happens will happen, no need to stress about it.
Jake

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salpal01 | @salpal01 | Mar 30, 2023
In reply to @salpal01 "Hi Santosha I had epilepsy as a child and then when my mother died I was..." + (show)
@salpal01

Hi Santosha
I had epilepsy as a child and then when my mother died I was 23 The shock brought the seizures back. I had a fairly violent upbringing so I never had the confidence to get my licence anyway. I always suffered from depression but then in 2016 some clever researcher discovered that Keppra interfered with the potassium in your brain and so I was put on a potassium supplement and I haven't looked back . I suffered from depression for 54 years but now feel great - I'm 65 and wish this had been discoved back when I was in my twenties!

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Hi Jake
I've only just found this site so hopefully some one can give me some answers
My nocturnal seizures aren't that violent these days but I'm quite photosensitive I actually emailed the tv stations and asked them if they could change the lenses on their cameras as the flashing lights of police cars make me turn away and I think they took note as now the flashing lights aren't so bright. Does anyone know how to get rid of tinnitus as it seems that most people with nocturnal seizures suffer with it on a really bad day it sounds like crickets in your ears
Sal

REPLY
Chris Gautier OR Santosha | @santosha | Apr 2, 2023
In reply to @salpal01 "Hi Santosha I had epilepsy as a child and then when my mother died I was..." + (show)
@salpal01

Hi Santosha
I had epilepsy as a child and then when my mother died I was 23 The shock brought the seizures back. I had a fairly violent upbringing so I never had the confidence to get my licence anyway. I always suffered from depression but then in 2016 some clever researcher discovered that Keppra interfered with the potassium in your brain and so I was put on a potassium supplement and I haven't looked back . I suffered from depression for 54 years but now feel great - I'm 65 and wish this had been discoved back when I was in my twenties!

Jump to this post

Hi @salpal01
Emotions interfere much with our seizures. I practice much hatha and haja yoga, and both of them have helped me much in keeping me calmer. About one week ago, I had a quite stressful situation with my e-mail account. My husband was surprised to see me "quite" calm in such a situation. He said that if this would have happened some years ago (before I discovered yoga), I would be freaking out. As I have learned in yoga, becoming nervous in such situations does not bring any help, just worsens the situation. But to stay calm in some stressful situations is something much easier to say than to practice it, I know. I am still on my way, but happy to have had no seizures on those stressful days :-).
I am happy to hear that you are now feeling great. I can understand you do regret not knowing it before. But the past is something we can not change, but we can always reflect on it so as to avoid similar experiences. As I have mentioned in another post when not well with treatment, I believe it is always wise checking for a second or even third opinion.
Enjoy your life with this big smile you have now.
Santosha

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