Bad news

@jakedduck1

Hi Jake,

I hate the stigma thing. I have a personality which is pointed inward so for the most part I am oblivious to the outside world. Perhaps I have not experienced it either. Hard to tell with me. If I had noticed it there would have probably been a small war, perhaps a skirmish.

Anyway back to the stigma thing. I would like to see if we can get that changed. I think we need to be the first to change. There is no way I can expect others to look at me differently if I don't.

Many believe epileptics are prophets (please see the scientific article I previously posted) and I have decided to work that angle. The ability to prophesize is like a superpower and when I prefix my name with "The Prophet" it just sounds more impressive. Try it Jake. With great fan fare let me introduce The Prophet Jake D. Duck. Jake D. Duck has prophesized the rising of the sun and the appearance of the moon. He has predicted the stock market will go up and then down. Folks, he is a prophet for the ages.

I can spin almost anything. My boss once told me Mxy you are wordy, without missing a beat I said I prefer thorough but I cannot argue with you. Instead of I may lose my license perhaps, I decided not to drive for I have "seen" a great collision which I do not want to exasperate, would be better.

At any rate The Prophet Mxyzptlk has a bit more zing than Mxy. Wishing you the best.

@pamelastewart5
Hi Pam,
I thought about my medication being toxic but since I’ve been on them for so long I never had side effects other than drowsiness I didn’t considered side effects a possibility although anything is possible. Thankfully no more dizziness or episodes.
Jake

Re: @jakedduck1 posted a new Discussion "Bad news"

Sorry about your issues ....always a miserable set back for sure. I have learned when I need to pull back from driving for however long it takes me to not have any seizure like events at all. As difficult as it is I fear what may happen to others if I don’t. The last time I had a seizure, my doctor upped my dosage and I didn’t drive for two weeks free of any side effects or events. Better than the two years it used to be. She knows me. I’ve dealt with my epilepsy for over 50 years, and I guess we are all different , just so so happy I have been controlled on medication for the most of those years. Having given up my vehicle we now have just the one, and much like not driving due to seizures, I mind that loss of Independence more than anything. I don’t like imposing on others, and more over I really miss the sense of independence. I am truly fortunate to have a husband who drives and does Most of the shopping and errands.
Would be interested in knowing what others With epilepsy who feel stranded do for shopping, groceries, and medications? Covid has certainly not helped in that regard.
And maybe it has, what with delivery and all. But there is still the sense of isolation that’s not healthy.
We live in a rural area, if I were alone and things progressed so I couldn’t drive it would be scary. Moving closer to town And transit would be my only alternative. That would be hard too!
Love where we live.

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I’ve had epilepsy for over 49 years and I’ve been fortune not of had a lot of them. I had a seizure after 23 years of no seizures. You’d think my doc would have been concerned-no. I can’t drive for 3 months (self induced). My husband helps, or drives if I need to get around. I’ve also found it’s ok to ask someone. Don’t know if it’s good or bad, but my meds get mailed to me. Do you know of anything that can affect our anti convulsant levels? Other meds, weight gain or loss, food…Thanks!
Hope you are feeling well.

Hi @tjbuch61, Good Morning
For security reasons (thinking of me and others) I have stopped driving. I have had epilepsy for 36 years without knowing it and thankfully I have just caused a small accident during a mild complex partial seizure (I have temporal lobe epilepsy), hurting no one. I thankfully live in a neighborhood where I can do much on foot. When I need to go to a place by car, I take an Uber. I do not drive anymore in any circumstance as I still do have some seizures. My doctor once said to be completely secure, one has to be 2 years free of seizures to drive again with security.
As to your question, I know that some other medications can interfere with the anticonvulsant meds we take, this is something that needs to be checked with your doctor. Seizures can have many triggers such as stress, fear, women's period, little sleep, and flashing lights, food containing gluten, among many others. It depends on your type of epilepsy. Through a daily journal, I have discovered my greatest triggers that lead me to have a seizure, avoiding them as much as I can. The Epilepsy Foundation has great material on it. Have a look!
Have a nice Sunday!
Santosha