Hi @afterthetreatment.
I do not have Hep C. I'm the Community Director of Connect. When I moved your thread here, I was hoping that past members @airtruck54@daveniles@bobuloops might return to share with you. I will continue to look for people who have Hep C and will join this discussion.
Does anyone have information about the Mayo Clinic treating people for Post Interferon Syndrome? I had 92 weeks of interferon for Hepatitis C (which didn't work) 2008-2009 and now feel much worse than I did before starting treatment. Any information would be appreciated, thanks.
I would also like to have information about any treatments to post interferon syndrome I'm having short term memory loss brain fog just wondering if there is any treatment or connections that anyone else knows of I went through interferon and ribavirin treatment twice 48 weeks each time second time my virus was eliminated and now I am experiencing these symptoms I have no dementia in my family at all
Does anyone have information about the Mayo Clinic treating people for Post Interferon Syndrome? I had 92 weeks of interferon for Hepatitis C (which didn't work) 2008-2009 and now feel much worse than I did before starting treatment. Any information would be appreciated, thanks.
Hi Jeffrey,
You might wish to view this article from Mayo Clinic, which details various drugs, including the hard-to-tolerate antivirals that you are concerned about:
– Coping with side effects of hepatitis C drugs: https://www.mayoclinic.org/hepatitis-c-drug-side-effects/art-20121674
I would also like to have information about any treatments to post interferon syndrome I'm having short term memory loss brain fog just wondering if there is any treatment or connections that anyone else knows of I went through interferon and ribavirin treatment twice 48 weeks each time second time my virus was eliminated and now I am experiencing these symptoms I have no dementia in my family at all
Just recently had a test that showed I have acute, not chronic, hep c. That being said, why not start treatment sooner, rather than waiting to see if I clear the infection on my own?
Just recently had a test that showed I have acute, not chronic, hep c. That being said, why not start treatment sooner, rather than waiting to see if I clear the infection on my own?
Hello @doc3rob, I moved your discussion and combined it with the existing discussion titled, 'After hep c treatment.' I moved it to this new location so that your post would be seen by all of the Connect members currently discussing hep c. If you don't mind sharing more while we wait for the other members to share their experiences with you, could you tell us what your provider said about waiting to see if you clear it on your own? Is this something unique to acute rather than chronic?
Does anyone have information about the Mayo Clinic treating people for Post Interferon Syndrome? I had 92 weeks of interferon for Hepatitis C (which didn't work) 2008-2009 and now feel much worse than I did before starting treatment. Any information would be appreciated, thanks.
Hi there.
I had Hep C from contaminated blood transfusions from 1977 to 1988. It was not discovered till 2003. I had treatment with interferon and ribavirin from 2004 to 2006. I was very ill lost my hair became aggressive had great memory loss digestive problems confusion constant tiredness etc. After being cleared from Hep C i have never really felt well again. I tried to return to work but was forced to early retirement due to illness and mental and physical and no longer to work as an nhs nurse which ended my career. It dissolved my marriage and my home was reposesed. All these years of lost earnings and feeling so isolated are taking their toll. I have up trying to explain to GP after GP about my constant tiredness how some days its so hard to get up and do normal things how I'm always feeling like I have the flu then I get better for a while then it's back again. My memory is terrible I cannot retain new info. I get lost when travelling easily get the wrong bus or train etc and so on I still have a swollen abdomen have sweating episodes and insomnia aching joints tenderness around my liver area. My biopsy during treatment showed fibrosis and early portal Septa stage 2 and liver cell necrosis grade 3. I believe the treatment has left me with all these side effects.
I have been experiencing permanent side effects after taking Pegasys interferon with ribavirin. I have severe fibromyalgia and chronic fatigue syndrome plus gastritis and esophogitis. I have vision problems. I finished treatment in 2009. I was told my side effects would wear off eventually but instead they are worse. I can no longer work or go to school. I function at less than 30% of normal. How many other people are suffering like me? I read that it is being called post interferon syndrome. What about lawsuits. My life is basically ruined, except I choose to go on the best i can. Klk370
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You are not alone. I suffer from similar symptoms. Wish I could find a doctor that could help me.
Now that the word is out about how man of us have either lost a loved one or lost our quality of life and now suffer 24/7 after taking Harvoni, here is a law firm Fleming Law in Texas that is looking into drug induced injuries from Harvoni or Sovalid. Take a look. https://www.fleming-law.com/blog/2017/november/drug-induced-injuries-from-harvoni-sovaldi-and-v/
I would also like to have information about any treatments to post interferon syndrome I'm having short term memory loss brain fog just wondering if there is any treatment or connections that anyone else knows of I went through interferon and ribavirin treatment twice 48 weeks each time second time my virus was eliminated and now I am experiencing these symptoms I have no dementia in my family at all
Hi Jeffrey,
You might wish to view this article from Mayo Clinic, which details various drugs, including the hard-to-tolerate antivirals that you are concerned about:
– Coping with side effects of hepatitis C drugs: https://www.mayoclinic.org/hepatitis-c-drug-side-effects/art-20121674
You may also wish to join this discussion on Connect:
- Post Interferon Syndrome https://connect.mayoclinic.org/discussion/post-interferon-syndrome/
I was recently diagnosed with fibromyalgia. I also completed 48 weeks of interferon and ribavirin
I felt nauseous before treatment and now a year and a half post treatment I still am nuaseous I was in a stage 3 fibrosis when I started treatment
Just recently had a test that showed I have acute, not chronic, hep c. That being said, why not start treatment sooner, rather than waiting to see if I clear the infection on my own?
Hello @doc3rob, I moved your discussion and combined it with the existing discussion titled, 'After hep c treatment.' I moved it to this new location so that your post would be seen by all of the Connect members currently discussing hep c. If you don't mind sharing more while we wait for the other members to share their experiences with you, could you tell us what your provider said about waiting to see if you clear it on your own? Is this something unique to acute rather than chronic?
Hi there.
I had Hep C from contaminated blood transfusions from 1977 to 1988. It was not discovered till 2003. I had treatment with interferon and ribavirin from 2004 to 2006. I was very ill lost my hair became aggressive had great memory loss digestive problems confusion constant tiredness etc. After being cleared from Hep C i have never really felt well again. I tried to return to work but was forced to early retirement due to illness and mental and physical and no longer to work as an nhs nurse which ended my career. It dissolved my marriage and my home was reposesed. All these years of lost earnings and feeling so isolated are taking their toll. I have up trying to explain to GP after GP about my constant tiredness how some days its so hard to get up and do normal things how I'm always feeling like I have the flu then I get better for a while then it's back again. My memory is terrible I cannot retain new info. I get lost when travelling easily get the wrong bus or train etc and so on I still have a swollen abdomen have sweating episodes and insomnia aching joints tenderness around my liver area. My biopsy during treatment showed fibrosis and early portal Septa stage 2 and liver cell necrosis grade 3. I believe the treatment has left me with all these side effects.
Hi . I fully understand your problems. Although I am grateful for being alive its still hard some days