Does anyone have Hemicrania Continua migraine headaches?

I have a friend with Migraine pain that is often. Is it possible that because she was born premature this has something to do with it? She often complains of nausea as well as when she tries to move forward the pain gets much worse. Pain is on both sides of her head. She also complains of nauseau often as well. She has had these issues since 10th grade. I believe she suffers from PTSD and anxiety as well as has jaw clenching, for which she has a mouth guard for but doesnt use it much. She has insomnia as well and this doesnt help as she doesnt get good sleep.
She is currently on several medications
apri atenolol luvox bupropion one of which is an extended release option.

Hi @veranopage you may have noticed I moved your post to this existing discussion so that you can connect with other who have experience with migraines. Simply click VIEW AND REPLY in your email notification to get to your post.

That must be so awful for your friend. She must be thankful to have a friend like you who cares so much about her condition.

I wanted to tag fellow Connect members @gfisher100, @skk15 and @johnbishop, plus meet @headacheallthetime @mouser and @keithtombs. I also wanted you to meet @jlfisher56 @staci @jupiterkaren @taterjoy and @gailb as they may be able to sympathize with you and help you search for answers.

Back to you @veranopage you mentioned that she has had migraine pain since 10th grade? How many years than has she had migraines?

Hi @veranopage -- I have no experience with the symptoms that your friend has. Thank you for being an advocate for her. I have no medical training or background but her symptoms sound like they could be related to a condition called Bruxism.

Bruxism (teeth grinding)
-- https://www.mayoclinic.org/diseases-conditions/bruxism/symptoms-causes/syc-20356095

There is also another post with a great video on Jaw Pain and TMJ Disorders that you may be interested in viewing in the follow group:
> Groups > Chronic Pain > Research on TMJ
-- https://connect.mayoclinic.org/discussion/research-on-tmj/?pg=1#comment-262035

Has your friend thought about seeing a specialist?

@veranopage Here is some information that may help.

Migraine Headaches
https://trainingandrehabilitation.com/treating-migraine-headaches-addressing-atlas-thoracic-outlet/
This article talks about grinding teeth among other things
https://trainingandrehabilitation.com/true-cause-solution-temporomandibular-dysfunction-tmd/
Here is an excerpt:
“Bruxism, being teeth grinding in the night, is a response to mandibular instability. Lack of vertical height of the teeth, improper tongue posture (especially a completely lowered tongue), as well as TMJ stability will cause the nervous system to try to find stability in occlusion, by clenching the teeth together. This, of course, will just reduce the vertical dental height further over time as they are wearing out, and thus exacerbate the bruxism. “

Muscle Clenchng
https://trainingandrehabilitation.com/chronic-muscle-clencher-woe-to-you/
Connect Discussion with information about Myofascial Release Physical therapy that can help a lot of conditions and some of the emotional trauma held in muscle memory
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

One alarming thing to note, she states when she bends over, the pain to her head gets worse, what does this mean?

Do you still have it. I was diagnosed with hemicrania continua. It's been ten years. Was wondering if you are doing any better.

I have hemicrania continua. Anyone else have this? I've had it for about ten years. Was just wondering if anyone else has this.

Hello @brooklyn4870. I see that you may be trying to connect with @keithtombs, so I have tagged him in case he has notifications turned on.

As well, you will notice I have moved your post into this discussion as well.

How long since you were diagnosed?

Amanda,

Okay, thank you so much.

I've had hemicrania for 9 years now. It is horrible