Hemicrania Continua: migraine type headache for more than 15 years!

Posted by keithtombs @keithtombs, Sep 3, 2012

<p>Hi all. where do I start. i have had a 24/7 migraine/headache for a decade now. I have just started using a tricyclic to "dampen" its severity and so far it has helped me get my ibuprofen use down from 3 to 6 doses a day to one or two doses.</p><p>i am upset with all doctors i see here in Australia who continue to call it migraine when it seems more like hemicrania continua. But all of them dismiss me when i ask them if it could be this and say the treatment is the same.</p><p>does anyone else here experience a 24/7 migraine like headache?</p><p>by the way… upon starting the tricyclic i have started to experience real aura migraines about once a month… this truly tells me the 24/7 headache is not actually migraine!</p>

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…My only reservation with calling it hemicrania continua, is that all stories is how the pain is severe… however, my pain is not exactly severe… it wavers up and down in scale and at times it can’t be very strong but i don’t let it get severe anymore.

anyway… looking forward to any comments or similar sufferers comments.

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I did until I went to a physical therapist who specialized in migraines. He taught me relaxation techniques. I found when I can control my stress that I have less migraines

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I am curious why you say your migraine is not a true migraine just because now you are experiencing an aura with the “real” ones?

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I have had headaches ever since 2004 and it seems like I can’t find anything that work or a doctor that can help.

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Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

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@headacheallthetime

I have had headaches ever since 2004 and it seems like I can’t find anything that work or a doctor that can help.

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My 22 year old son has suffered migraines for almost 18 years. He is treated at Mayo Clinic. Nothing helps very much, but he has some reduction in frequency with Botox injections. He has "transformed" migraines, where he has a constant headache pain level of. 3 to 5 all the time for most of those 18 years. You might want to investigate Botox.

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@johnbishop

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

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Is this device expensive ? Are patients offered a free trial period?

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@johnbishop

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

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Hello @skk15, I wished I could answer your question but I think you have to go through a doctor or headache clinician according to the manufacturer. Here are some other links to information on the device:

Treating Migraine with the sTMS mini by eNeura
http://www.eneura.com/treating-migraine-with-the-stms-mini-by-eneura/#

Transcranial Magnetic Stimulation for Migraine: A Safety Review (link on the page above)
https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1526-4610.2010.01697.x

John

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@johnbishop

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

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Thank you for the additional info. I feel an appointment with his neurologist is warranted.

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The use of CMD oil or similar for relief of Migraine headaches?

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