migraine type headache for more than 15 years!

Posted by keithtombs @keithtombs, Sep 3, 2012

Hi all. where do I start. i have had a 24/7 migraine/headache for a decade now. I have just started using a tricyclic to “dampen” its severity and so far it has helped me get my ibuprofen use down from 3 to 6 doses a day to one or two doses.

i am upset with all doctors i see here in Australia who continue to call it migraine when it seems more like hemicrania continua. But all of them dismiss me when i ask them if it could be this and say the treatment is the same.

does anyone else here experience a 24/7 migraine like headache?

by the way… upon starting the tricyclic i have started to experience real aura migraines about once a month… this truly tells me the 24/7 headache is not actually migraine!

…My only reservation with calling it hemicrania continua, is that all stories is how the pain is severe… however, my pain is not exactly severe… it wavers up and down in scale and at times it can’t be very strong but i don’t let it get severe anymore.

anyway… looking forward to any comments or similar sufferers comments.

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I did until I went to a physical therapist who specialized in migraines. He taught me relaxation techniques. I found when I can control my stress that I have less migraines

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I am curious why you say your migraine is not a true migraine just because now you are experiencing an aura with the “real” ones?

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I have had headaches ever since 2004 and it seems like I can’t find anything that work or a doctor that can help.

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Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

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@headacheallthetime

I have had headaches ever since 2004 and it seems like I can’t find anything that work or a doctor that can help.

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My 22 year old son has suffered migraines for almost 18 years. He is treated at Mayo Clinic. Nothing helps very much, but he has some reduction in frequency with Botox injections. He has "transformed" migraines, where he has a constant headache pain level of. 3 to 5 all the time for most of those 18 years. You might want to investigate Botox.

Liked by Jamie Olson

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@johnbishop

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

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Is this device expensive ? Are patients offered a free trial period?

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@johnbishop

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

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Hello @skk15, I wished I could answer your question but I think you have to go through a doctor or headache clinician according to the manufacturer. Here are some other links to information on the device:

Treating Migraine with the sTMS mini by eNeura
http://www.eneura.com/treating-migraine-with-the-stms-mini-by-eneura/#

Transcranial Magnetic Stimulation for Migraine: A Safety Review (link on the page above)
https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1526-4610.2010.01697.x

John

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@johnbishop

Hello @headacheallthetime, @mouser, and @keithtombs,

I ran across this inactive discussion after reading an interesting Mayo Clinic article on a new device to prevent migraine attacks. I thought you might be interested.

Mayo Clinic Minute: New device can prevent migraine attacks
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-new-device-can-prevent-migraine-attacks/

John

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Thank you for the additional info. I feel an appointment with his neurologist is warranted.

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The use of CMD oil or similar for relief of Migraine headaches?

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Hello, @gfisher100 — I moved your post over to this discussion where you can connect with other members more recently discussing migraines, like @skk15 and @johnbishop, plus meet @headacheallthetime @mouser and @keithtombs. I also wanted you to meet @jlfisher56 @staci @jupiterkaren @taterjoy @gailb and @kdubois in case they may have insights for you on migraines and potential relief for them. Hoping you can all meet up here on this thread.

gfisher100 — I'm guessing you may be thinking of CBD oil? Have you had migraines for some time, or is this a new diagnosis?

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@lisalucier

Hello, @gfisher100 — I moved your post over to this discussion where you can connect with other members more recently discussing migraines, like @skk15 and @johnbishop, plus meet @headacheallthetime @mouser and @keithtombs. I also wanted you to meet @jlfisher56 @staci @jupiterkaren @taterjoy @gailb and @kdubois in case they may have insights for you on migraines and potential relief for them. Hoping you can all meet up here on this thread.

gfisher100 — I'm guessing you may be thinking of CBD oil? Have you had migraines for some time, or is this a new diagnosis?

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Hi @gfisher100, for my migraines and other headaches, I try different things.

For migraines, after battling them since age 16, in December 2015 at age 45, I got a daith ear piercing for my right ear, and I haven't had a single migraines since. I still get what I call barometric pressure and weather-related headaches, but no migraines since this piercing. I got it on my right because that's the side of my head where I usually had more headaches when it came to frequency.

For the headaches I continue to have, I always avoid bright light, and sleeping with a sleep mask always helps, plus it applies pressure to my head. Sometimes, my migraine meds help (sumatriptan), but these can't be taken more than twice a week or headaches worsen, so I use these as my last defense. Before sumatriptan, I will try tylenol and/or caffeine.

I avoid Advil because I already have colon erosions plus my mom was told not to take it as she is pre-dementia and it can worsen it. I also received e genetic report that states that I don't metabolize it properly.

Plus sleep and hot showers as warmth helps my head more that cold which actually makes it hurt more.

Otherwise, I do nothing… I had pharmacogenomics testing done a few years back, and I don't properly metabolize most medications, including all heavy duty pain meds, so those just aren't an option for me.

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@houseman36

Good evening. I've never posted on a message board before, but, I've had a constant pressure headache for nearly 3 months and I'm feeling very discouraged. The majority of the time, the pressure sits in my lower forehead above my eyebrows, in my brow ridge, and behind my eyes (particularly the right eye). Generally, the pain level is around a 4 or 5 out of 10 (sometimes the pressure isn't too strong, other times, it's pretty intense). Occasionally, I'll feel pain in my neck (no stiffness or trouble moving my neck). Sometimes, it feels like the pressure is oscillating between my ears and my forehead (mostly when lying down), and I'll feel pain in my cheeks from time to time.

I first went to the doctor in mid-January, after the pressure headache had been around for a week. I had blood work done, and there were no abnormalities in the blood work. I tried various types of OTC pain relievers – Tylenol, Advil, Motrin, as well as OTC medications specific for severe cold, sinus pressure, and allergies. None of them helped ease the pressure. I did a sinus rinse for 3 weeks and took decongestants (though, I never really had drainage or mucus of any kind as long as the headache has been around). Next, I took a week's worth of antibiotics, but the antibiotics didn't work. After that, I had an MRI. The MRI showed no brain tumor, no brain bleeding, or no concerns on the brain which might be causing the headache.

Next, the doctor placed me on an antidepressant to try to relieve tension. I started at 10 mg about 5 weeks ago, and I worked my way up to 50 mg over the weekend. So far, I haven't noticed any change with the headaches. I was told that it can take several weeks for the effects of the antidepressant to be noticed (maybe 8-12 weeks), and, that it wouldn't "acutely" treat the headache – instead, the headache might gradually reduce in severity and frequency as I continue taking the antidepressant.

I had an eye exam, and the doctor didn't note anything of concern happening with my eyes. I was prescribed a new pair of glasses, but the headache pressure patterns have remained the same before and after the new pair of glasses.

I'm tired of having this constant pressure headache, and I'm frustrated that nothing seems to be working. I'm worried that something is being missed – I just don't know what. It just doesn't seem normal to have a constant headache for nearly 3 months when I've never had a problem with headaches before in my life. Wanted to share to see if there are other ideas as to what might be going on?

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What you are generally describing is similar to what I experienced when I first moved to Texas. Ultimately, what solved the problem was the continued use of nasal saline, either Ocean, or generic saline nasal spray. Please try this before you spend any more money on diagnosis.

Liked by lioness

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Good evening. I've never posted on a message board before, but, I've had a constant pressure headache for nearly 3 months and I'm feeling very discouraged. The majority of the time, the pressure sits in my lower forehead above my eyebrows, in my brow ridge, and behind my eyes (particularly the right eye). Generally, the pain level is around a 4 or 5 out of 10 (sometimes the pressure isn't too strong, other times, it's pretty intense). Occasionally, I'll feel pain in my neck (no stiffness or trouble moving my neck). Sometimes, it feels like the pressure is oscillating between my ears and my forehead (mostly when lying down), and I'll feel pain in my cheeks from time to time.

I first went to the doctor in mid-January, after the pressure headache had been around for a week. I had blood work done, and there were no abnormalities in the blood work. I tried various types of OTC pain relievers – Tylenol, Advil, Motrin, as well as OTC medications specific for severe cold, sinus pressure, and allergies. None of them helped ease the pressure. I did a sinus rinse for 3 weeks and took decongestants (though, I never really had drainage or mucus of any kind as long as the headache has been around). Next, I took a week's worth of antibiotics, but the antibiotics didn't work. After that, I had an MRI. The MRI showed no brain tumor, no brain bleeding, or no concerns on the brain which might be causing the headache.

Next, the doctor placed me on an antidepressant to try to relieve tension. I started at 10 mg about 5 weeks ago, and I worked my way up to 50 mg over the weekend. So far, I haven't noticed any change with the headaches. I was told that it can take several weeks for the effects of the antidepressant to be noticed (maybe 8-12 weeks), and, that it wouldn't "acutely" treat the headache – instead, the headache might gradually reduce in severity and frequency as I continue taking the antidepressant.

I had an eye exam, and the doctor didn't note anything of concern happening with my eyes. I was prescribed a new pair of glasses, but the headache pressure patterns have remained the same before and after the new pair of glasses.

I'm tired of having this constant pressure headache, and I'm frustrated that nothing seems to be working. I'm worried that something is being missed – I just don't know what. It just doesn't seem normal to have a constant headache for nearly 3 months when I've never had a problem with headaches before in my life. Wanted to share to see if there are other ideas as to what might be going on?

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Hi @houseman36 and welcome to Connect! You may have noticed that I moved your post to this existing discussion on migraines/headaches so that you can connect with other who have experienced something similar. Simply click VIEW & REPLY in your email notification to read what others have had to say.

That must be so awful having these headaches every day and not being able to find a solution.

I wanted to introduce you to fellow Connect members @gfisher100, @skk15 and @johnbishop, plus meet @headacheallthetime @mouser and @keithtombs. I also wanted you to meet @jlfisher56 @staci @jupiterkaren @taterjoy and @gailb as they may be able to sympathize with you and help you search for answers.

Back to you @houseman36 are you comfortable in sharing what antidepressant you are on so that others can know more about your current treatment?

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