Hi Cindy,
For my husband the off times are very difficult as he will start to shuffle, rather than walk, his legs get very weak, his hands get numb (Neruopathy?). And he has no strength to get up or down or move. This can last a few minutes to an hour or on and off all day with different levels of immobility. If anyone else has these issues and would like to share what you have done to help with these things, please share with me, it would be so appreciated.
Barb