Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Let's talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for Langold @rarelybees2889

I have other autoimmune rhemetological issues, but my rheme is "on the fence" on if I have RA too.
Holding off now taking any other drugs. The other disease I have is a "sister disease" to RA.
Anyone in this situation?

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I have Hashimotos and Raynauds. I had the second Pfizer Covid vaccine and my hands and feet swelled up like sausages. All of my joints hurt for months . I finally went to a Rheumatologist and he said it looks like RA and the blood test came back as sero negative.

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I see a wonderful rheumatologist, in the Woodlands, Texas. I get Orencia Infusions once a month. I also take Sulfasalazine, plus a muscle relaxer, as needed.They help, yet when I get a R.A. Flare up, the pain is miserable. So, I do the best I can. Had breast Cancer, with an Autologous Stem Cell Treatment in 1998. Also, I am doing well with my Parkinson’s. I am a very positive person, knowing things others have are far worse. P. Benson

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Profile picture for elmay @elmay

Would appreciate having a Sjogren’s group.

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Yes! I can't believe there isn't one yet!

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Profile picture for sandbar @sandbarry

Sandra from Glens Falls, New York. Age t72, diagnosed at 55. Also Sjogren’s. Orencia has given up the fight. Only Biologic left that I didn’t fail is Remicade. Worried about side effects. Good luck to you all, nice to be here.

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Hi there. Have you tried Xeljanz? I had taken a list of drugs a mile long and at that time I only had a couple left to try. Xeljanz has worked for 4 1/2 years and I am so grateful. When I feel I’m going into a full on flare I go in and get a shot of steroid and a toradol shot and it bumps me right out. I was just wondering if you had tried it. My doctor said we would try RINVOQ if it failed me. Good luck.

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Profile picture for adlttl123 @adlttl123

Hi there. Have you tried Xeljanz? I had taken a list of drugs a mile long and at that time I only had a couple left to try. Xeljanz has worked for 4 1/2 years and I am so grateful. When I feel I’m going into a full on flare I go in and get a shot of steroid and a toradol shot and it bumps me right out. I was just wondering if you had tried it. My doctor said we would try RINVOQ if it failed me. Good luck.

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One of many I tried before I went on Orencia, but thanks.

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Of course and I understand. So have I. I wish you luck in finding one that finally works for you. Diane

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I was diagnosed last year with RA and PMR. On prednisone, methotrexate, sulphasalazine and hydroxychloroquine. Finally now able to taper the prednisone after many months of flares.

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Profile picture for adlttl123 @adlttl123

Of course and I understand. So have I. I wish you luck in finding one that finally works for you. Diane

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Thamks

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Hello.....this has been a long and frustrating journey. Anyone here been diagnosed with seronegative RA with no finger or toe involvement?

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Profile picture for naomid @naomid

Yes! I can't believe there isn't one yet!

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@elmay @naomid you can connect with others talking about Sjogren's in this discussion group:

Sjogren’s Syndrome – Introduce yourself and meet others – https://connect.mayoclinic.org/discussion/sjogrens/

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