MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

I am very nervous got diagnosed with light chain disease my doctor said that she does not think it is myleoma, however i am very nervous and anxious. I have to take more test to make sure My doctor thinks it could be Monoclonal Gammopathy unknow, is anyone familiar with this please

I too had a recent lab test which revealed an elevated light chain issue, and the test will be repeated next month. I understand your concern and would make sure you follow up with a hematologist, as I will be doing after I complete the second round of testing. One of my doctors has reassured me that the light chain results were rather low and probably not anything to worry about; however, since my father died of multiple myeloma I too am concerned as you are.

Welcome, @emurrell65. I can imagine you're nervous, not to mention confused when your doctor is not yet clear whether the light chains indicate a possible diagnosis of myeloma or monoclonal gammopathy of undetermined significance (MGUS). I've moved your post to this existing discussion:

- MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio https://connect.mayoclinic.org/discussion/mgus-and-quite-high-free-kappa-light-chain-and-kappa-lambda-ratio/

I did this so you can easily connect with others who are familiar with MGUS and myeloma. In addition to @frances007, fellow members like @raye @omemee @gina5009 @deborahjb @jart @pmm @myboyzr2 @anng53 @edna68 and many others can share their experiences with testing to get a diagnosis and what to expect.

@emurrell65, you mentioned you will be having more tests. What testing has been scheduled for you as a next step?

Hi got diagnosed with mgus last nov still getting my head around everything loads of things i didnt think to ask in consultation my next blood test is in june to check my levels havent changed so i will take a list with me of things i need to ask ...maybe do the same x

that sounds like a plan, I am always googling and my doctor says dont google but i just want answers like yesterday!!!

I am having my second test done also and an xray for bone imaging and also urine my doctor says i probably dont have it but may have MGUS still i am very worried!!

They want more blood test done and also urine and bone xray. The hemotologist wanted to know why my doctor even ordered the kappa light chain test and i explained that i have been having pain in my back and legs but also I work from home and sit all day and i haven arthritis so i contributed it to that so i will find out April 11 what they diagnoised

I was diagnosed with MGUS over ten years ago. I meet with a hematologist and oncologist once a year to follow up. I was told that most MGUS patients never develop multiple myeloma, and if they do, they usually are in their 70’s or 80’s. Please don’t be too alarmed by a MGUS diagnosis.

Hi @emurrell65, I know how worrisome it is to potentially have a new health diagnosis. As you can see you’re not alone if the tests do show you have MGUS. I just wanted to make sure you saw this very recent comment from @susanh824 to @hels about her diagnosis with MGUS 10 years ago. It’s very encouraging to anyone diagnosed with MGUS. https://connect.mayoclinic.org/comment/830721/

I’m sure you’re counting the days until April 11. As a veteran/survivor of an aggressive blood cancer, my suggestion is to stay positive and find happy distractions. Read, watch movies, take walks, play with your favorite hobbies, go to lunch with friends, etc… indulge in moments of normalcy instead of focusing on “what ifs”. This will keep your spirits elevated and help you through the anxiety of waiting.
What are some of your favorite pastimes?

Well i love to read and cook and spend time with my grand children, thanks so much for your response i will focus on the positive things and keep my mind off of the negative
Thanks much