1. < Neuropathy

Can Neuropathy be cured?

Posted by catstx @catstx, Sep 8, 2021

I’ve had P. neuropathy for 30 years. Just recently I’ve better controlled my blood sugar. So, I’m wondering if Neuropathy ever goes away, Or, if once the nerves are dead they’re just dead

Interested in more discussions like this? Go to the Neuropathy Support Group.

michhino | @michhino | Mar 16, 2023

Hi johnmacc,

I take 900mg x 3 per day. Morning, afternoon and before bed. =2700 daily. I started 300, 600, etc... per day but PN just will not go away even with the increased amounts.... I am still unable to feel feet and legs are remain numb as well. I already tried cream, gummies, etc... The PN has become extremely expensive with NO cure only Band-Aids and sad to say, I accepted its part of my life. The creams such as vicks vapor rub, icy hot, aspercreme brings temporary and very small relief to the tingling but not numbness. And I did attempt to increase to 3600+ but my feet swelled and looked like as I had elephantiasis. Michhino

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pamelaz | @pamelaz | Mar 16, 2023
In reply to @pamelaz "You are correct. There is nothing to relief the burning stacbbing horrible feelings from my hips..." + (show)
@pamelaz

You are correct. There is nothing to relief the burning stacbbing horrible feelings from my hips down. Everyone wants to days it’s anxiety and depression but it’s not. It hurts so bad I could cry all day. And don’t get to sleep but a few hours before the pain wakes me up. Any suggestions?

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Melatonin is just as bad. I wish I could help you but I don’t know if anything.

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pamelaz | @pamelaz | Mar 16, 2023
In reply to @pamelaz "You are correct. There is nothing to relief the burning stacbbing horrible feelings from my hips..." + (show)
@pamelaz

You are correct. There is nothing to relief the burning stacbbing horrible feelings from my hips down. Everyone wants to days it’s anxiety and depression but it’s not. It hurts so bad I could cry all day. And don’t get to sleep but a few hours before the pain wakes me up. Any suggestions?

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It’s not anxiety and depression. You are not alone.

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jldavis823 | @jldavis823 | Mar 17, 2023
In reply to @johnmacc "Hi Michhino. I too feel like I'm walking on glass like rocks and pebbles for the..." + (show)
@johnmacc

Hi Michhino. I too feel like I'm walking on glass like rocks and pebbles for the last few years. Over that timeframe my PC doc has increased my script of gabapentin to 3600 mg daily. Lately I am now tapering back down to 2700. If needs be I will use 4% lidocaine gel on my feet . If needs be some CBD cream at nite or cbc gummies may help as well. Keep excercising and experimenting and hoping. This is a marathon not a sprint. May I ask how much gabapentin you got approved for daily and at what times of the day? Johnmacc

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I have a link to a post I made a while ago. I was in your shoes for over two years until I tried the regiment below.
https://connect.mayoclinic.org/comment/811991/

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cgs | @cgs | Mar 18, 2023

Loma linda university medical says they are having sucsess at rejuvinating nerves
Call their neuropathy clinic
Free consultation video call with MD
I was very impressed and interrested

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2 replies
mannyk | @mannyk | Mar 19, 2023

Hi (No Name!!!)
I so hate posting with names no one understands with no address or phone or email address or what it is all about.
Like we supposed to know all about "Loma Linda University".
Where is it???
Hmmmmm.Waist of my time.
No thanks.
manny

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1 reply
jfn | @jfn | Mar 22, 2023

Hi Manny,

I think using Google to look up the university's neuropathy program will give you the answers you are looking for. If not ask me, and I will send a link, not working on my phone at the moment, I am having an IVig treatment at the moment.
I will also list the litany of things I do to reduce my neuropathy symtoms.

JFN

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2 replies
jfn | @jfn | Mar 23, 2023

Manny,

Did you find the links to the neuropathy program at Loma Linda University medical center neuropathy research?

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1 reply
ccben70 | @ccben70 | Mar 23, 2023
In reply to @artistwagoodi "If Anti MAG Antibodies are causing neuropathy, there's a 50% or less chance that Rituximab may..." + (show)
@artistwagoodi

If Anti MAG Antibodies are causing neuropathy, there's a 50% or less chance that Rituximab may help. Whether this disease is caused by diabetes is not known.

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Have you tried Rituximab infusions, and if so how many, was there improvement, and how long to see improvement?
I completed firsts 4 infusions, 1 per week, early this year. Now scheduled for 4 more---every 2 mths March, May, July and Sep. Haven't seen any changes, but MD said if do get improvement, it could take some time to show up. Thanks

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bettyg81pain | @bettyg81pain | Mar 23, 2023
In reply to @cgs "Loma linda university medical says they are having sucsess at rejuvinating nerves Call their neuropathy clinic..." + (show)
@cgs

Loma linda university medical says they are having sucsess at rejuvinating nerves
Call their neuropathy clinic
Free consultation video call with MD
I was very impressed and interrested

Jump to this post

What did they tell you. We are all looking for anything to make our lives more livable without pain

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