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Diagnosed with Central Sleep Apnea (CSA)? How's therapy going?
Millions of people worldwide suffer from sleep apnea,the vast majority of whom are believed to be under the subgroup OSA (Obstructive Sleep Apnea).
There is a minority of sufferers however who fall under the subgroup of CSA (Central Sleep Apnea), a subgroup that is relatively new in scientific terms.
In fact if I am not mistaken, Mayo Clinic was one of the first organizations who published a paper on CSA.
At any rate, I am a CSA patient and keenly interested in this subject.
My intention behind posting this is to find if there are others like me here who have been medically diagnosed for CSA and if so, how their therapy is going? What machine (if any) has been prescribed and how they are feeling about their therapy.
In my case I have been prescribed a ASV BiPAP machine which I find very effective.
I do not always stop breathing when asleep but occasionally I do. In fact some nights I can go through most of the night without any interruptions and then boom, I stop breathing and wake up.
Before I was on ASV therapy, I was not able to get a good night asleep for years and now I can't even imagine to go to bed without masking up.
What I like about my machine is that it does not keep blowing air pressure down my throat. but rather it only acts if I stop breathing more than an average of 10 breaths per minute. This way I only get therapy when I need it and that is great as I won't be able to fall asleep with positive air pressure blowing in my face.
Anyway, it would be great to hear from fellow CSA patients,
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Hello @renu18, Welcome to Connect. It's great to hear that the new machine is perfect for your mom and she no longer is having restless nights. Do you mind sharing what brought you to Connect? Were you trying to get a question answered?
Hello I’m new here and diagnosed with CSA also. I’ve had mine a few yrs about when Covid hit so I’ve only been diagnosed for about 6 months waiting to see sleep specialist I have video appt in June. But I’m on oxygen at night but I’m still unable to get a good nights sleep. And always worn out during the day I do fall asleep watching tv .. but then I don’t have oxygen on so I wake up a lot then pass back out. I’m hoping they will find what I need. But 3 1/2 months is a long wait. I’m very excited to hear your treatment is working. Did ur drs ever figure out what triggers ur CSA? Btw I’m lorraine. Ty for sharing
Hello Lorraine @leefuller1, Welcome to Connect. I'm sorry you have to wait so long before your video appointment in June. I thought I would tag @cyrusmanz in case they did not see your post. Hopefully they can share what triggers their CSA if they know.
I have obstructive sleep apnea and was diagnosed about 3 or 4 years ago. It took me a year or so to get used to my CPAP. From what I've read there are different treatments for CSA. The Sleep Foundation has some good information on CSA here - https://www.sleepfoundation.org/sleep-apnea/central-sleep-apnea.
Have you been diagnosed with any other heart related conditions?
Hello thanks for responding even though yours is osa. I’m glad you’re doing well with ur treatments.. as for my heart I have a low heart rate but not low enough @thus time for the pacemaker which my cardiologist has spoken about. I have lung issues I’ve had cancer 3 xs radiation chemo 2 xs and I’ve had my right upper lobe removed and the middle lobe is in bad shape from radiation.. lots of medical issues. Also sarcoidosis in my lungs but not active @ this time.. always something but God has allowed me to stay here on earth and I’m very grateful.. I love life😊😊.. thanks again for reaching out .. it’s 12 pm here I’m doing a breathing test tonight to see if the oxygen is helping me @ night while I try to sleep. I’m not sleeping well but the oxygen does help keep my oxygen up around 💯 - 95 best it’s been. Without it I’ve gone down to 88 and stop breathing way too many time throughout the night. Again. Thanks.
Good night. Lorraine
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2 ReactionsSymptoms of CSA?
@lauralouisenelson - You can find the symptoms and related information on CSA here:
– https://www.sleepfoundation.org/sleep-apnea/central-sleep-apnea.
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1 ReactionLow oxygen at night not sleeping up down all night. Sleepy all day. Fall asleep during day but only 30-45 mins at time headaches
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1 ReactionSounds like me. Diagnosed few months ago with central sleep apnea.. on oxygen @ night also until we figure out what the cause is then find the solution
I just got my in on sleep study report. I have not seen my pulmonologist yet so I am trying to figure out what’s going on. I am wondering if this is related to the medication I take before bed. I also have small fiber neuropathy and possibly autonomic neuropathy . I am wondering if it’s related to that as well. Now I know why I feel like complete doo doo in the morning and throughout the day. A combo of sleep apnea and small fiber neuropathy fatigue has me struggling. Anyone else have central sleep apnea and also small fiber? Thanks in advance.
I have sleep apnea but I don’t know if it’s central as i don’t know the symptoms for that but I do wake up with a headache daily and my machine runs all the time until I pull the mask up every day.