I am 42 year old male, lots of sun exposure over years. My disease progressively got worse over coarse of 3-4 years. Finally diagnosed in 2022. I have extremely painful flare ups around abdomen and mid back along with total body formication/ sensations. It’s really difficult to deal with. I recently discovered and believe alcohol is directly related to flare ups. I went all of January and February without drinking and the rash/burning/sensations went away almost completely