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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: 4 days ago | Replies (284)

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@bmelvin

Hello,

I am a 48 year old female who lost the ability to sit up, stand and walk shortly after having the Moderna vaccine in May of 2021. At the same time, I also developed severe pelvic floor dysfunction, a rectocele and Dyssynergia. Initially, over the course of about 6 months, I retaught myself to walk and only the pelvic floor dysfunction, Dyssynergia and complete numbness in my feet was left. In November of 2021 my legs began stiffening and now I am almost completely stiff and numb to my knees, I have developed joint pain in my hips and knees and have been diagnosed with SFN. I also do not have normal indications when I have to urinate. I have been to the Mayo Clinic twice (this is where I was diagnosed originally peripheral nerve damage as a side effect of the Moderna COVID vaccine) are currently working with doctors at Duke and have been in pelvic floor PT with limited success. Can anyone provide any information regarding similar issues, helpful intervention, specific specialist that might be able to help me? Any information would be incredibly helpful!

Thank you!

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Replies to "Hello, I am a 48 year old female who lost the ability to sit up, stand..."

Hi @bmelvin,
Very sorry to hear about your condition. your doctors are probably already aware, but I saw a paper by researchers at Mass General. They found that in some cases, post-Covid vaccine neuropathy was due to an autoimmune response. They were able to successfully treat most of the patients in their cohort with steroids, and/or IVIg. I’ve posted a link here in the past but you can probably find it faster by google, or by going to the publication section at the neuropathology Commons site. Best of luck.