Nystagmus

Posted by mvanstem @mvanstem, Feb 15, 2023

Last year I spent 1 1/2 weeks at Mayo. They couldn’t squeeze in my eye appointment. I have a neurological condition with nystagmus. What kinds of tests does Mayo do for such testing? Trying to weigh whether I should come back for those tests

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Hello @mvanstem, Welcome to Connect. I'm sorry they couldn't work an appointment in during your last visit.
Rochester Mayo Clinic has a great Ophthalmology department but it can be a waiting period to get an appointment due to the number of patients trying to get appointments. I had cataract surgery for both eyes at Rochester Mayo. Here's some information that covers how it's diagnosed and more:

--- Nystagmus: Definition, Causes & Treatment:
https://my.clevelandclinic.org/health/diseases/22064-nystagmus
You mentioned you are weighing whether you should go back for testing. Are the tests to confirm your diagnosis and possible treatments?

REPLY
@johnbishop

Hello @mvanstem, Welcome to Connect. I'm sorry they couldn't work an appointment in during your last visit.
Rochester Mayo Clinic has a great Ophthalmology department but it can be a waiting period to get an appointment due to the number of patients trying to get appointments. I had cataract surgery for both eyes at Rochester Mayo. Here's some information that covers how it's diagnosed and more:

--- Nystagmus: Definition, Causes & Treatment:
https://my.clevelandclinic.org/health/diseases/22064-nystagmus
You mentioned you are weighing whether you should go back for testing. Are the tests to confirm your diagnosis and possible treatments?

Jump to this post

Looking for a second opinion with treatment options. Can’t afford appointments spread over 3–4 weeks like last year. Need some treatment options. Whenever I’m scheduled, Just need appointment not spread over weeks. Past practice leaves me in doubt

REPLY
@johnbishop

Hello @mvanstem, Welcome to Connect. I'm sorry they couldn't work an appointment in during your last visit.
Rochester Mayo Clinic has a great Ophthalmology department but it can be a waiting period to get an appointment due to the number of patients trying to get appointments. I had cataract surgery for both eyes at Rochester Mayo. Here's some information that covers how it's diagnosed and more:

--- Nystagmus: Definition, Causes & Treatment:
https://my.clevelandclinic.org/health/diseases/22064-nystagmus
You mentioned you are weighing whether you should go back for testing. Are the tests to confirm your diagnosis and possible treatments?

Jump to this post

Seeking a second opinion on a treatment plan

REPLY

Has anyone received any treatment/prescription that had a positive impact on downbeat nystagmus?

REPLY

Any other adult with acquired nystagmus receive treatment from Mayo? Interested in comments

REPLY
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