Want to talk about Multiple Myeloma: Anyone else?

Thanks! I'll check it out.

My thoughts exactly!

I do not know what State you live in, but I would contact my Congressman or State Senator and explain your situation. They should be able to direct you to some agency or pharmaceutical person who can offer you assistance. My husband had prostate cancer. He was prescribed a medication that was not on the list for treatment of this cancer and thus was refused the prescription (it was $500.00 a month). I wrote to the head of Veteran Affairs in Washington DC. He received a phone call that he had an appointment to see a physician at a Veteran Clinic. He was immediately give a prescription and continued to receiver it until the day he died. Hope this helps. Don't need to see Horror Movies, this is living a nightmare. Hope this brings you a Knight in Shining Armor.
Gina 5009

Thanks for the note, Gina. I'll write tomorrow.

I get my Revlimid prescription filled at Kroger pharmacy in Florida and fed exes to me. The pharmacist (?) there found a foundation to pay for my pills. Please check with your supplier

Thanks--I'm doing that today.

@tristram I am also on Revlimid, and qualified for Patient Assistance through Bristol Meyers Squibb Patient Assistance Foundation. They pick up my co-pay. I have been on Revlimid for almost 2 years now. It is an annual grant process I go through.

Good luck, and let me know what you find out!
Ginger

Thanks, Ginger. They've given me a 3-month grant. I'm hoping to extend it.

Ginger, Thanks. I'll check this out.

I was diagnosed with mm July 2015. Had a sct in Jan 2016 at UNMC. Went into remission until July 2022. Haven’t changed my treatment yeah as they consider my relapse as biochemical my m spike and my kappa light chains are rising above normal. It at a slow rate right now. Have an appointment next week with my mm specialist at UNMC so waiting to see what she thinks.
I have has fatigue and brain fog since my sct when I received chemo.
Take care