C. diff relapse?

Posted by patts @patts, Sep 1, 2019

How many have had a relapse. I finished my two weeks of vancomycin and believe I still have it. Did a stool sample Friday, so I guess I’ll see. Tired of isolation, Clorox and mood.

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Profile picture for minge @minge

Currently 3 weeks recovery from C-Diff after taking vancomycin . I have two questions.
I am scheduled for a routine colonoscopy in November (5 years since last colonoscopy). That will only be 2 months of recovery time from C-Diff. Will the colonoscopy create a relapse of C-Diff? Should I wait to have the colonoscopy since this is a routine 5 year check?
Second question is I am due for a tetanus shot (10 years since last one) Can I get the tetanus shot or will it create a relapse of C-Diff?
I do not want a relapse of C-Diff and I am only 3 weeks into recovery!

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Maybe this info will be of help to someone:
1. Got C-diff 8 days after I finished a round of Clindamycin for a dental procedure.
2. Took Vandocmycin for 10 days. C-Diff recurred within a week.
3. Did Vancomycin pulse and taper over 2 month period. Took Florastor probiotics, drank kefir (yuk) and ate kimchi and fermented foods.
4. The first 3 weeks after being off the Vancomycin were tenuous in the bathroom but returned to normal most days. It’s now been 2 months with no return of the C-Diff demon. I still take 1 Florastor capsule daily and added a 50 billion live cultures probiotic a few times a week.

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Profile picture for nexus @nexus

Maybe this info will be of help to someone:
1. Got C-diff 8 days after I finished a round of Clindamycin for a dental procedure.
2. Took Vandocmycin for 10 days. C-Diff recurred within a week.
3. Did Vancomycin pulse and taper over 2 month period. Took Florastor probiotics, drank kefir (yuk) and ate kimchi and fermented foods.
4. The first 3 weeks after being off the Vancomycin were tenuous in the bathroom but returned to normal most days. It’s now been 2 months with no return of the C-Diff demon. I still take 1 Florastor capsule daily and added a 50 billion live cultures probiotic a few times a week.

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I, too, got cdiff from clindamycin almost 4 years ago. I relapsed 3 more times over a 6 month period and then got the fmt in March, 2019. To this day, I still worry about getting it again. I still take visbiome every other day. I still worry about getting sick and needing an antibiotic.

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Profile picture for minge @minge

Currently 3 weeks recovery from C-Diff after taking vancomycin . I have two questions.
I am scheduled for a routine colonoscopy in November (5 years since last colonoscopy). That will only be 2 months of recovery time from C-Diff. Will the colonoscopy create a relapse of C-Diff? Should I wait to have the colonoscopy since this is a routine 5 year check?
Second question is I am due for a tetanus shot (10 years since last one) Can I get the tetanus shot or will it create a relapse of C-Diff?
I do not want a relapse of C-Diff and I am only 3 weeks into recovery!

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What are the dietary restrictions once a C-diff infection has been healed? Can certain foods actually cause C-diff to relapse? I am currently recovering from my second bout of C-diff in 30 days.

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Profile picture for arleen1972 @arleen1972

What are the dietary restrictions once a C-diff infection has been healed? Can certain foods actually cause C-diff to relapse? I am currently recovering from my second bout of C-diff in 30 days.

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Hi- I am recovering from my 4th episode of C-diff in 18 months. My Infectious Disease Doctor told me eat a High Fiber diet, avoid greasy and spicy foods that would irritate the Intestional Tract. Basically, eat a Healthy Diet. Avoid Antibiotics if at all possible. Take a Daily Probiotic.

I guess I haven't done such a good job of following all this-but I honestly have tried. My Infectious Disease Doc did tell me the more times you have C-diff , the more likely you are to get it again. I'm sure I don't need to tell you-try to avoid this terrible disease at all costs if possible!
Best of luck to you!!

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Profile picture for pixie1960 @pixie1960

Hi- I am recovering from my 4th episode of C-diff in 18 months. My Infectious Disease Doctor told me eat a High Fiber diet, avoid greasy and spicy foods that would irritate the Intestional Tract. Basically, eat a Healthy Diet. Avoid Antibiotics if at all possible. Take a Daily Probiotic.

I guess I haven't done such a good job of following all this-but I honestly have tried. My Infectious Disease Doc did tell me the more times you have C-diff , the more likely you are to get it again. I'm sure I don't need to tell you-try to avoid this terrible disease at all costs if possible!
Best of luck to you!!

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Thank you, pixie1960.

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Profile picture for nexus @nexus

Maybe this info will be of help to someone:
1. Got C-diff 8 days after I finished a round of Clindamycin for a dental procedure.
2. Took Vandocmycin for 10 days. C-Diff recurred within a week.
3. Did Vancomycin pulse and taper over 2 month period. Took Florastor probiotics, drank kefir (yuk) and ate kimchi and fermented foods.
4. The first 3 weeks after being off the Vancomycin were tenuous in the bathroom but returned to normal most days. It’s now been 2 months with no return of the C-Diff demon. I still take 1 Florastor capsule daily and added a 50 billion live cultures probiotic a few times a week.

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I’ve had pretty good luck with specific probiotics the more millions the better.

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Profile picture for minge @minge

Currently 3 weeks recovery from C-Diff after taking vancomycin . I have two questions.
I am scheduled for a routine colonoscopy in November (5 years since last colonoscopy). That will only be 2 months of recovery time from C-Diff. Will the colonoscopy create a relapse of C-Diff? Should I wait to have the colonoscopy since this is a routine 5 year check?
Second question is I am due for a tetanus shot (10 years since last one) Can I get the tetanus shot or will it create a relapse of C-Diff?
I do not want a relapse of C-Diff and I am only 3 weeks into recovery!

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I had a Diverticulitis flareup that started in the middle of February 2022. From that time until the middle of May I was on double antibiotics Flagyl and bactrim every three weeks. Just trying to get rid of it. Finally had a sigmoidectomy at the beginning of June 2022. The part taken out was still infected and abcessing. After the surgery while in the hospital I tested positive for c diff. I followed up with my colon surgeon and my gastroenterologist. They both told me to just eat yogurt or take Probiotics for three months after.
In early October 2022 I was put on amoxicillin for a dental issue. Approximately 10 days later I started with diarrhea and bleeding. Went into the ER to be told I had c diff colitis. I spent six days in the hospital and was released with Vancomycin and Florastor probiotic. This has not been fun especially since I thought I got everything fixed when I had surgery this past June. It sounds like this c diff is near impossible to get rid of. I am very frustrated that I will have to continue going on these protocols. Always eat as healthy as I can and worked out 4 days a week. Hoping for the best but from all I have been told and read nit as positive as I want to be. C diff is no joke.

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Profile picture for p95 @p95

Oh my goodness. Terrible. How did you get rid of the C. Diff? Flagyl, Vancomycin, Deficid? Any of these work for you?

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I was initially put on Flagyl which failed, then failed on Vancomycin then Dificid which worked. I tested negative 3 times and was doing well for 2 months. Then I tested for C. Diff. and it came back positive. I was started on Vancomycin again which failed then 2 courses of Dificid. I have not retested since, but have not had diarrhea so I'm assuming it is gone. I was scheduled for a FMT on August 25, but the stool donor could not produce the required 50 ml of stool (only got out 20 ml) so I was sent home without having the procedure after spending 3 hours in pre-op at the hospital. At this point I am just keeping my fingers crossed because I do not want to go through another prep (which is the same as you do for the colonoscopy) for an FMT. The hospital I went to for the FMT is in the process of getting certified to do FMTs with frozen stool. If they do get certified, I would consider the FMT. But having to go through the prep aggravated my colon so much and it took weeks to recover from that, I would not do it again unless I could be assured the FMT would proceed as scheduled. I live in fear daily that it will come back or that I will have to get antibiotics for something else and will get C. Diff. again. It was truly the worst experience of my life and has left a very deep scar on my psyche. I wish you well.

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Profile picture for minge @minge

Currently 3 weeks recovery from C-Diff after taking vancomycin . I have two questions.
I am scheduled for a routine colonoscopy in November (5 years since last colonoscopy). That will only be 2 months of recovery time from C-Diff. Will the colonoscopy create a relapse of C-Diff? Should I wait to have the colonoscopy since this is a routine 5 year check?
Second question is I am due for a tetanus shot (10 years since last one) Can I get the tetanus shot or will it create a relapse of C-Diff?
I do not want a relapse of C-Diff and I am only 3 weeks into recovery!

Jump to this post

@minge did you ever end up getting the colonoscopy? Did it cause a relapse? I too am 2 months post antibiotics for cdiff and nervous of getting my colonoscopy because of that reason

REPLY
Profile picture for minge @minge

Currently 3 weeks recovery from C-Diff after taking vancomycin . I have two questions.
I am scheduled for a routine colonoscopy in November (5 years since last colonoscopy). That will only be 2 months of recovery time from C-Diff. Will the colonoscopy create a relapse of C-Diff? Should I wait to have the colonoscopy since this is a routine 5 year check?
Second question is I am due for a tetanus shot (10 years since last one) Can I get the tetanus shot or will it create a relapse of C-Diff?
I do not want a relapse of C-Diff and I am only 3 weeks into recovery!

Jump to this post

I am also interested to find out if the colonoscopy or tetanus shot caused a relapse in the c diff. The majority of 2022 I was dealing with a flareup of diverticulitis that never went away after numerous double antibiotics. Ended up having a sigmoidectomy June 2022. At that time they said I tested positive for. C diff. I was not treated for that. Then I ended up taking amoxicillin in October for a dental issue. After 10 days the c diff reared its ugly head, and I ended up spending seven days in the hospital. Was treated with Vancomycin and florastor. Was released from the hospital on another 10 days of Vancomycin and Florastor. I have continued on once a day with the probiotic. And here I am at the beginning of March 2023. Scared to death to ever take another antibiotic. So I understand what you mean by it coming back. I am afraid to even take Tylenol. So afraid it will trigger the C diff again! It is always on my mind, but I am trying to move forward. Trying to stay as healthy as possible. Good luck out there. May we all keep away from this horrible c diff!

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