Anyone wake feeling exhausted after seemingly dreaming all night

Posted by mazeppabob @mazeppabob, Jul 26, 2022

I never wake refreshed/rested. It has been like this for as long as I can remember and I am 77 now,
My sleep medicine DR called it EPIC dreaming. A rare disorder with no known cause or treatment. His only suggestion was to prescribe Modafinil (a stimulant) taken in the morning to perk me up.
I have tried CPAP and other meds to no avail.
I wonder if this is really that rare.

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@purplesky28

Joined to say that I am one more unfortunate soul on your boat sailing through the endless dreamworld. All my life and it's quite intrusive on my quality of living. Even cannibus doesn't help, and that's supposed to mute dreams. I can't do this anymore.

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@purplesky28
I was wondering about cannabis and asked my sleep medicine DR about it He wouldn't even consider it since it has not been researched. I suggested to a couple of my DR'S that now is your chance to study epic dreaming, cannabis, etc. One replied that no one wants to spend time and money on rare disorders.
So here we are scouring the internet, grasping at straws, desperate to find things that work.

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@mazeppabob

The DR who made the diagnosis of Epic dreaming described it as non-REM dreaming. I can take a short nap and dream. They seem to start as soon as I nod off. The dream continues for what seems like hours. I can be drifting in and out, partially awake, and go right back to the same dream. The only way to end it is to physically get up and walk around. When I return to bed a new dream starts and goes on and on.
This has been going on every night basically my whole life. I can't believe that I have been stressed every single day or that it is medication related since I wasn't on any when younger.
I asked the DR if there had been any research for cause and treatment. His reply was that no one wants to spend time and money on rare disorders.

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I feel like I wrote this myself. I dream from the moment I close my eyes until the moment I wake up. I'm exhausted from my dreams when I wake up the next day. While I'm dreaming, I often recognize that I'm dreaming, but despite recognizing that it is a dream, I have only a few times (so rarely) tried to control the dream like lucid dreaming. I take no medications other than OTC pain killers, like tylenol, as needed for frequent headaches. (I've found that my headaches are usually because I'm tired and feel physical stress on my body.) I don't use caffinated products or energy drinks. I've never considered bringing it up to a doctor as I just figured "that's life." I wouldn't mind finding a solution that doesn't include taking some kind of prescription to suppress the dreams or change my sleep. I guess what I would prefer is knowing that there is some natural way (like, for random example, eating less processed foods) to get better sleep and less exhausting dreams

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@lvat

I feel like I wrote this myself. I dream from the moment I close my eyes until the moment I wake up. I'm exhausted from my dreams when I wake up the next day. While I'm dreaming, I often recognize that I'm dreaming, but despite recognizing that it is a dream, I have only a few times (so rarely) tried to control the dream like lucid dreaming. I take no medications other than OTC pain killers, like tylenol, as needed for frequent headaches. (I've found that my headaches are usually because I'm tired and feel physical stress on my body.) I don't use caffinated products or energy drinks. I've never considered bringing it up to a doctor as I just figured "that's life." I wouldn't mind finding a solution that doesn't include taking some kind of prescription to suppress the dreams or change my sleep. I guess what I would prefer is knowing that there is some natural way (like, for random example, eating less processed foods) to get better sleep and less exhausting dreams

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Hello @lvat, Welcome to Connect. I'm glad to see that you have connected with @mazeppabob. I've always had pretty vivid dreams growing up. Sometimes having the same one over and over and then knowing I was dreaming and just relaxing to let it play out and waking up. I still have a lot of dreams but like you just figured that's life. I do believe there is probably an answer somewhere but just don't know what it is.

This is what makes me think training the brain might be the answer.
Happy Brain: How to Overcome Our Neural Predispositions to Suffering | Amit Sood, MD | TEDxUNI: https://youtu.be/KZIGekgoaz4

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Thanks for the info hopefull33250
Since we're on the sleep subject, My problem is I usually get to bed about 10:00pm. Feel O.K.
Wake up for the BT anywhere from 4:15-6:45. As soon as I'm awake, on a scale of 1-10 of 2 feeling a little nausea to 9, on the verge of throwing up. Some nights it is so bad I wish I had some fentanyl
to take, just to get it over with. This is going on for at least half a year. Does Fharma make the same
drugs and just glues different labels on them?? Nausea becomes a little less later in the day.
after I took my Chlorazepam and Zoloft. My Doc told me to get back to Lorazepam with Sertralin.
I'm scared of what this night is going to bring. If I didn't care about my family I might be serious
about the Fentanyl. You can only take so much before your life is meaningless.

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@mazeppabob - What you are all describing on this thread is exactly what I have been going through for as long as I can remember. It is getting to the point where I am struggling so much at work as I am constantly tired and every day I am just thinking about when I can go to bed, but then when I do sleep it is never restful. I also dream constantly, vividly and often lucidly through the night or when I nap. Sometimes I am so deep in a dream that even when my body tries to wake me up, I get stuck in a strange cycle where I dream I have got up but can't stand and I keep falling over, at which point I realise I am still dreaming. This happens more if I am napping on the sofa, and it feels like my body is completely stuck while my mind does this weird repeating dream cycle. I am convinced the constant dreaming is the reason I feel so exhausted - as I feel like am constantly 'on'. My dreams can range from ordinary, such as a working day, to emotional dreams about ex-boyfriends, constant arguments with family and friends, trying to escape something and natural disasters/ getting attacked. So some of them are really stressful. I don't believe I have ever woken up feeling rested, every morning is such a challenge to get up and if I don't have to get up I can easily sleep for 10-12 hours, but again waking up feeling more tired than when I went to sleep. Sorry for the long post but I feel like most people on this thread understand what I am talking about and I have been unable to find anything that helps. I have been on anti-depressants for several years but I don't think my lack of energy is particularly mental health related as often I feel happy and content etc, just so so so tired! Thanks for reading!

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@susie333

when I was a nurse working night shift in hospital, if it was an exceptionally busy night, I'd then go home, sleep dream and wake up very exhausted.

fast forward 30 yrs, now I can have very vivid dreams with exhaustion by taking magnesium glycinate and zinc at bedtime. I changed the zinc to am, but I missed the dreams so went back to taking both at bedtime. I also use 02 and cpap and take melatonin 10mg at bedtime. I now wake up refreshed and do not take naps during the day!

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Hi, sorry I am a little confused. What exactly do you take (morning and night) that has allowed you to wake up feeling refreshed and not needing to nap?

Thank you 🙂

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@motek

I am 68 years old and have had sleep issues and headaches for many years. My family doctor also happens to be a specialist in sleep disorders, so together we've figured out how to help me.

One often-overlooked reason for intense/often disturbing dreaming is going to bed on a full stomach, or having eaten too much during the day. I have found, over the years, that staying away from all food after 7 PM, affords me restful sleep. If I have eaten too much or too late the night before, I have both vivid dreams and often wake up with a headache.

And one more issue: neck pain/sensitivity often causes headaches upon awakening. Gentle stretches upon awakening, together with a cup of coffee, often helps. Good luck.

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@motec
I was just reviewing the posts on dream sleep disorders and noticed your comment about headaches, neck pain/sensitivity upon awakening. I was a life-long side sleeper. I recently noticed that every time I slept on my side it would trigger a headache. I started sleeping on my back. The morning headaches went away. It only took 50 years and hundreds of excedrin to figure that out.

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Thank you for your reply. I think that's a good suggestion; I will try it, although when I sleep on my back it causes me to snore...

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@mazeppabob

I live close to Rochester Mayo clinic and asked for a referral to Mayo sleep medicine I spent probably an hour with a sleep psychiatrist explaining symptoms, diagnosis and meds tried. After all that he said well you have already done everything that he would suggest and that was it.
My whole point in asking the question is to see if dreaming disorders are really that rare, unreported or misdiagnosed. Maybe chronic fatigue syndrome is a sleep disorder?

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Did you have a sleep study and MSLT done?
I ask because I have Narcolepsy and it sounds like you may. It is still considered rare because it's usually misdiagnosed for years as depression, chronic fatigue, etc. So there hasn't been loads of research done and therefore, a lot of doctors don't know much about it.
My sleep doctor in Rochester is technically a neurologist; you might want to look in that area.

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My name is Angel Geraghty, in one week I turn 35. I have been vivid dreaming since I was very young. I have also had a very traumatic childhood, teenage life and adulthood. I have reoccurring dreams to the point I can indicate in my dream that I have been there in that dream, know the outcome and have even managed to changed some of the outcome. Still today I can tell you some of the vivid dreams I had that are months even years old because they are that vivid that the dream itself has stuck with me and became a memory. I have tried teas, I have tried no electronics near the bed, a salt lamp beside my bed, no eating hours before bed, medications you name it it doesn’t work. I have had my spouse wake me up many times not from lack of breathing but from hyperventilating and crying in my sleep. There are so many vivid dreams I can remember still today it’s almost like when I go to bed I’m living a second life. Either running from someone or something even things I’m not scared of in my awake world. Fear of water, fear of snakes, I can’t cross bridges in my dreams with out crawling, faces coming out of walls, possessed inflatable dolls and possessed killer dolls, killer mansions with anger spirits haunting them, beautiful old abandoned houses beside the water that are just waiting for that one strong enough wave to bring it all crashing down, the fire balls falling from the sky and hiding first in a bus then a building (that was maybe 8-9 years ago that dream), to faces coming out of walls, to molestors, to a woman strapped to a Gurnee in a room surrounded by glass, I have even dreampt Houdini
Had a museum near somewhere I could only think was near New Orleans because it was a bayou, there was killers looking for someone, I found a walk-in talkie, and had to swim down a creek until I came across a native tribe who somehow spoke English and was thrilled I was Canadian and got us help. In that dream I came across a half eaten deer and I could smell the rotten flesh. This wasn’t the first time, I have even dreampt of being at my own wedding and stepping away and went down by the water where there was a dead moose and again all I could smell was rotten flesh. I wake up half the time more tired then when I went to bed. I am mentally wiped all day long which leads to depression as I feel like I’m completely useless. Cloudy days are the worse because I’m already tired and then add that on. I have had to 100% cut all caffeine anytime after 2pm or I’m guarenteed my spouse will be waking me up asking if I’m okay or I’ll wake up crying. As it’s been said on here, I can go in and out of awake and asleep and be thrown right back into the same dream over and over until I have completed what I was there to do, find who I have to find, protect who I have to. If I want it to stop I actually have to get up, go for a smoke outside and get air and pray when I go back to bed it stops. Even then it’s touch and go if I get thrown right back into that dream or not. I have recently started dream journaling. Would like to be more frequent with it but it’s hard when I’m so tired. So for now, I am trying to record re-occurring dreams. Who knows maybe they will be a movie one day lol. I write this to let others know your not alone. It’s hard, it’s so freaking hard and so exhausting. So if anyone has any suggestions, it would be great.

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