Ear Tinnitus and Pain with Neuropathy

Posted by cwallen9 @cwallen9, Jan 29, 2019

Does anyone have severe tinnitus and ear pain with their neuropathy? I have small fiber and autonomic neuropathy and I have been getting severe tinnitus (roaring and high pitch noise) and a feeling of pressure and pain for the last month. I am wondering if the neuropathy and/or medications are causing it. I am on gabopentin, cymbalta, and NSAIDS.

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If you are able, see an ENT for evaluation & hearing test. I developed an issue in my left ear about a month ago & I don't think it's related to my neuropathy. I am being treated with a sterioid 12 pack & anti-viral meds. The doctor has ordered an MRI, to rule out a tumor. The tinnitus is very unpleasant. I purchased a little "white noise" device on Amazon & it helps a bit, especially when trying to get to sleep. For me, sleep deprivation triggers neuropathy episodes that can last for days, so the tinnitus (and the new meds) were especially troubling. I've been on Gabapentin for a about 18 months, as well. Sometimes it feels like the universe is conspiring to drive me out of my mind.

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Profile picture for cher27 @cher27

If you are able, see an ENT for evaluation & hearing test. I developed an issue in my left ear about a month ago & I don't think it's related to my neuropathy. I am being treated with a sterioid 12 pack & anti-viral meds. The doctor has ordered an MRI, to rule out a tumor. The tinnitus is very unpleasant. I purchased a little "white noise" device on Amazon & it helps a bit, especially when trying to get to sleep. For me, sleep deprivation triggers neuropathy episodes that can last for days, so the tinnitus (and the new meds) were especially troubling. I've been on Gabapentin for a about 18 months, as well. Sometimes it feels like the universe is conspiring to drive me out of my mind.

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Curiuos to know what "anti - viral" meds were prescribed and why?

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Profile picture for govisri @govisri

Curiuos to know what "anti - viral" meds were prescribed and why?

Jump to this post

I saw two ENT's (one for a second opinion) & shared both with my PCP. They all suspected it could be a viral infection. The second ENT increased the dosage of Valacyclovir for 7 days. Probably just another stab in the dark. I've seen no improvement & am bracing myself for perpetual, high pitched hissing in my ear for the rest of my life.

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Profile picture for cher27 @cher27

If you are able, see an ENT for evaluation & hearing test. I developed an issue in my left ear about a month ago & I don't think it's related to my neuropathy. I am being treated with a sterioid 12 pack & anti-viral meds. The doctor has ordered an MRI, to rule out a tumor. The tinnitus is very unpleasant. I purchased a little "white noise" device on Amazon & it helps a bit, especially when trying to get to sleep. For me, sleep deprivation triggers neuropathy episodes that can last for days, so the tinnitus (and the new meds) were especially troubling. I've been on Gabapentin for a about 18 months, as well. Sometimes it feels like the universe is conspiring to drive me out of my mind.

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Hi cher27
The most important here is for you to not get discouraged, and resign to the fact that you have the most puzzling disease "Peripheral neuropathy".
No cure they say, but I never give up trying everything that may make sense and may help, including R-ALA, and B12. And a few other vitamins.
I just now, about one month ago, developed tinnitus. I will see my ear doctor even, tinnitus is in the brain not in the ear.
Be positive don't lose faith. And in the worst scenario resign that you have to live that way until the end and make adjustments to your lifestyle, OR a cure may surface somehow and we will be saved from this plague.
But the most important to mention here is that there are millions in much worse shape than we are, much, much worse.
So if you switch your thinking in that direction you will accept your situation and deal with it the best you can to suit your lifestyle.
' By the way, I am 84 and still kicking (not with my feet anymore ) he, he.
Pace!

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Profile picture for cher27 @cher27

If you are able, see an ENT for evaluation & hearing test. I developed an issue in my left ear about a month ago & I don't think it's related to my neuropathy. I am being treated with a sterioid 12 pack & anti-viral meds. The doctor has ordered an MRI, to rule out a tumor. The tinnitus is very unpleasant. I purchased a little "white noise" device on Amazon & it helps a bit, especially when trying to get to sleep. For me, sleep deprivation triggers neuropathy episodes that can last for days, so the tinnitus (and the new meds) were especially troubling. I've been on Gabapentin for a about 18 months, as well. Sometimes it feels like the universe is conspiring to drive me out of my mind.

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@cher27, You are singing my song. The universe seems to have set it's sights on me. My hearing and audio discrimination tests perfectly; however, I often can't hear my husband sitting three feet away because the tinnitus gets so loud.

Why would the jerk bring me back three times if he knows there is no treating it? That is just ... wrong. Really, really wrong.

I could handle the noise (I now sleep with headphones and meditation music all night to get my 3-4 hours' allotment.... My tinnitus comes with a lot of ear pressure and pain. Nothing shows on the MRI.

I think I've now achieved the unenviable status of having pain in every part of my body. Usually, simultaneously. And my husband wonders why I feel sad and negative all the time.

Constant pain wears down everything about a person. Pins and needles make things worse.

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Profile picture for cherip @cherip

@cher27, You are singing my song. The universe seems to have set it's sights on me. My hearing and audio discrimination tests perfectly; however, I often can't hear my husband sitting three feet away because the tinnitus gets so loud.

Why would the jerk bring me back three times if he knows there is no treating it? That is just ... wrong. Really, really wrong.

I could handle the noise (I now sleep with headphones and meditation music all night to get my 3-4 hours' allotment.... My tinnitus comes with a lot of ear pressure and pain. Nothing shows on the MRI.

I think I've now achieved the unenviable status of having pain in every part of my body. Usually, simultaneously. And my husband wonders why I feel sad and negative all the time.

Constant pain wears down everything about a person. Pins and needles make things worse.

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@cherip I can relate. So sorry!

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Profile picture for cherip @cherip

@cher27, You are singing my song. The universe seems to have set it's sights on me. My hearing and audio discrimination tests perfectly; however, I often can't hear my husband sitting three feet away because the tinnitus gets so loud.

Why would the jerk bring me back three times if he knows there is no treating it? That is just ... wrong. Really, really wrong.

I could handle the noise (I now sleep with headphones and meditation music all night to get my 3-4 hours' allotment.... My tinnitus comes with a lot of ear pressure and pain. Nothing shows on the MRI.

I think I've now achieved the unenviable status of having pain in every part of my body. Usually, simultaneously. And my husband wonders why I feel sad and negative all the time.

Constant pain wears down everything about a person. Pins and needles make things worse.

Jump to this post

Sounds like we're walking the on the same path. Sad & negative all the time. Believe me, I hear you.

REPLY
Profile picture for cherip @cherip

@cher27, You are singing my song. The universe seems to have set it's sights on me. My hearing and audio discrimination tests perfectly; however, I often can't hear my husband sitting three feet away because the tinnitus gets so loud.

Why would the jerk bring me back three times if he knows there is no treating it? That is just ... wrong. Really, really wrong.

I could handle the noise (I now sleep with headphones and meditation music all night to get my 3-4 hours' allotment.... My tinnitus comes with a lot of ear pressure and pain. Nothing shows on the MRI.

I think I've now achieved the unenviable status of having pain in every part of my body. Usually, simultaneously. And my husband wonders why I feel sad and negative all the time.

Constant pain wears down everything about a person. Pins and needles make things worse.

Jump to this post

I too have tinnitus. I have been told that a hearing aid might help and I’m thinking about trying one.

REPLY
Profile picture for cherip @cherip

@cher27, You are singing my song. The universe seems to have set it's sights on me. My hearing and audio discrimination tests perfectly; however, I often can't hear my husband sitting three feet away because the tinnitus gets so loud.

Why would the jerk bring me back three times if he knows there is no treating it? That is just ... wrong. Really, really wrong.

I could handle the noise (I now sleep with headphones and meditation music all night to get my 3-4 hours' allotment.... My tinnitus comes with a lot of ear pressure and pain. Nothing shows on the MRI.

I think I've now achieved the unenviable status of having pain in every part of my body. Usually, simultaneously. And my husband wonders why I feel sad and negative all the time.

Constant pain wears down everything about a person. Pins and needles make things worse.

Jump to this post

Please change Dr.ASAP. GOD BLESS YOU!

REPLY
Profile picture for cher27 @cher27

I saw two ENT's (one for a second opinion) & shared both with my PCP. They all suspected it could be a viral infection. The second ENT increased the dosage of Valacyclovir for 7 days. Probably just another stab in the dark. I've seen no improvement & am bracing myself for perpetual, high pitched hissing in my ear for the rest of my life.

Jump to this post

I have had tinnitus for many years. It is accompanied by hyperacusis and hearing loss. Hearing aids help by augmenting ambiant noise and contain tinnitus masking sounds as well. Nature sounds are also very helpful especially water based sounds like rain, brooks, streams, ocean sounds. If you search for different sounds on the internet you will find the ones that help you the most. You can download them onto your cell phone and listen to them via ear devices. Your hearing aids can be obtained with Bluetooth and you will be able to listen to music, nature sounds etc. These are all things that help you cope with tinnitus, obviously they are not a cure. When I asked my doctor whether there is a cure on the horizon he said no but he asked that I please let him know if I discover one!

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