Ear Tinnitus and Pain with Neuropathy

My daughter is 39 and she just came back from do some diving in Honduras (and has done this many times)…but now she feels she has the symptoms of this Mail de debarquement. Fatigue, can’t easily look at spread sheets at work, etc. She has a dr’s appt on 3/24 with ENT. I hope so much that she does not have this; it’s so rare and you never know if it’s forever or how long it will last.

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oh no sorry just realized how long this is, apologies, but having such a bad day!

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....just looked at a scientific page regarding tinnitus and hyperacusis and hearing loss .. which I have plus eustachian tube disfunction .. because to day has been quite bad compared to past months/years... and I only understood part of the tests they did and explanation etc., but I was trying to find the "bottom line" - which really seems to be that if you are "lucky" enough to have issues while on some medications and things return to normal after stopping those meds, but not always, that seems to be the only way out for majority of us; depressing for sure and fortunate are those who get hearing back, stop hearing the many odd sounds of tinnitus and the horrible hyperacusis: also read the hyperacusis can have flares for no reason and/or be initiated by actually hearing a noise... mine does that too when furnace on or been on loudspeaker on phone, or zoom meeting: every day its the same but different times, shorter or longer times, with or without pain or echo when speaking or blocked up feeling in ears. Many ENTs especially after covid and backlog are not even discussing it with patients... but I must admit I do sometimes wonder do I have a tumour or something.... while there are other illnesses that are life threatening ... and i survived cancer ... its the daily grind of all this and yes as you say, pressure in ears almost to the point of a bad headache. I am waiting for second zoom chat with a Dr.of Audiology in a nearby larger town but she has already said in so many words, no cure, but she discusses ways to try and not think about it, or use ear plugs, or such, so am hoping so much there will be at least one things she can help with. I feel for others with this so much and even one daughter has started with tinnitus but wont discuss it; I found out a neighbur has it and also when mentioned it said doesnt want to discuss it; other daughters partner same... but I do just in case conversation brings some ideas or suggestions how to cope. I also just read that stress does not help any of it and I am under a lot of stress so tomorrow I am going to try and focus a bit more on reducing it... but hard when have other issues and illnesses isnt it: just hoping that one days the scientists and specialists who are starting to find out how complex this all is, will discover a cure, for this and many other medical issues millions of people are coping with: wishing you the best and that you will find an ENT or someone who can give you some hope for your particular level of this unnerving ear/brain issue: hugs! J.

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....just looked at a scientific page regarding tinnitus and hyperacusis and hearing loss .. which I have plus eustachian tube disfunction .. because to day has been quite bad compared to past months/years... and I only understood part of the tests they did and explanation etc., but I was trying to find the "bottom line" - which really seems to be that if you are "lucky" enough to have issues while on some medications and things return to normal after stopping those meds, but not always, that seems to be the only way out for majority of us; depressing for sure and fortunate are those who get hearing back, stop hearing the many odd sounds of tinnitus and the horrible hyperacusis: also read the hyperacusis can have flares for no reason and/or be initiated by actually hearing a noise... mine does that too when furnace on or been on loudspeaker on phone, or zoom meeting: every day its the same but different times, shorter or longer times, with or without pain or echo when speaking or blocked up feeling in ears. Many ENTs especially after covid and backlog are not even discussing it with patients... but I must admit I do sometimes wonder do I have a tumour or something.... while there are other illnesses that are life threatening ... and i survived cancer ... its the daily grind of all this and yes as you say, pressure in ears almost to the point of a bad headache. I am waiting for second zoom chat with a Dr.of Audiology in a nearby larger town but she has already said in so many words, no cure, but she discusses ways to try and not think about it, or use ear plugs, or such, so am hoping so much there will be at least one things she can help with. I feel for others with this so much and even one daughter has started with tinnitus but wont discuss it; I found out a neighbur has it and also when mentioned it said doesnt want to discuss it; other daughters partner same... but I do just in case conversation brings some ideas or suggestions how to cope. I also just read that stress does not help any of it and I am under a lot of stress so tomorrow I am going to try and focus a bit more on reducing it... but hard when have other issues and illnesses isnt it: just hoping that one days the scientists and specialists who are starting to find out how complex this all is, will discover a cure, for this and many other medical issues millions of people are coping with: wishing you the best and that you will find an ENT or someone who can give you some hope for your particular level of this unnerving ear/brain issue: hugs! J.

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