Thanks for your kind thoughts. I took gabapenton for a while, but it did not work for me. I went through 4 more meds. which were not helpful for one reason or another and then we tried Pregabapenton 375 mg three times a say, and it worked. My pain is in my left lower jaw, and occasionally in the left upper jaw. Feels like a bad toothache. I have seen a dentist twice and now have a neurologist. When the jaw becomes sensitive I put some ambisole (baby teething medication on the gums). It really helps. I am now down to 250 mg twice a day. I had to reduce the amount. I was sleeping all day and all night. Hope maybe this may be of some help to you.
Gina 5009
Gabapentin is a dangerous drug. A class action against Pfizer last year resulted in them being heavily fined. I was on it for 2 years. It was the worse time of my life. I had brain fog, memory problems, dizzy, unsteady, headaches, couldn’t bathe myself, cook, clean, drive, was dependent on my daughter. I crawled to the toilet when she was at work. It took 2 weeks to withdraw.
I have fibromyalgia, bilateral trigenimal neuralgia, 2 full tears in my right rotator cuff, tear in my right bicep with fluid, partial tear in left rotator cuff (old softball injury) osteoarthritis throughout body, hyperthyroidism, IBS, TMJ, GERD, Left hip bursitis, chronic fatigue,
Right knee extreme pain seizes at night
Severe pain in both thighs
Neuropathic pain on left foot
Fluid retention
L4-5/S1 disc bulge
T2-C1 disc deterioration
Tinnitus left ear
Lack circulation in feet and hands
Sciatica
Extreme Hair Loss
High Prolactin
Please take care and try use alternative like medicinal cannabis it’s natures medicine. I have been making oil, balm, edibles for 5yrs.
Long-term use of gabapentin can permanently damage your organs including your brain, kidneys, and liver. Long-term gabapentin use has also been linked with muscle weakness, respiratory failure, and loss of memory.
Think about other alternatives before poisons from pharma drugs.
**Edited**
Tarm56. After reading your posting on Gabapentin I searched out info from Mayo clinic. While Gabba can lead to fatigue, dizzy sleepy. It does not directly affect some of the things you said including kidneys of which I and others in this group deal with daily. Johnmacc
**Edited**
Even a Dr cannot predict whether patients will have side effects.
Everyone reacts differently to medication and if you are on other medication it can enhance other symptoms. I had a cortisone injection in 2013 in my left hip for bursitis. I collapsed at work and they took 2 days to find the problem. My adrenal glands failed as I had no idea I was allergic to cortisone, I’d never had cortisone before. My body wasn’t making cortisol and I nearly died. I was admitted to hospital for a month and given cortisone pills, the very thing I was allergic to 80mgx2 per day. My face swelled from the cortisone. This continued from June-December. When I wasn’t in hospital I would have to go to the hospital every 2nd day to get a top up of cortisone injections. I failed 8 synacthen tests. Adrenal glands control a lot of important organs in your body. After 4 stays in hospital of 2-3 weeks I went in for a month in December and they stopped medication and put me in ICU to monitor me to see what would happen and they started working again. I suppose you think that no one’s allergic to cortisone and there’s no side effects. They then decided to put me on anti inflammatory meds I had not had before and the same thing happened. I had to resign from my job in February. I am relating my experience with my body.
Clumsiness or unsteadiness
continuous, uncontrolled, back-and-forth, or rolling eye movements
Black, tarry stools
chest pain
chills
cough
depression, irritability, or other mood or mental changes
fever
loss of memory
pain or swelling in the arms or legs
painful or difficult urination
sore throat
sores, ulcers, or white spots on the lips or in the mouth
swollen glands
unusual bleeding or bruising
unusual tiredness or weakness
Blurred vision
cold or flu-like symptoms
delusions
dementia
hoarseness
lack or loss of strength
lower back or side pain
swelling of the hands, feet, or lower legs
trembling or shaking
This medicine may cause serious allergic reactions, including anaphylaxis and angioedema. These can be life-threatening and require immediate medical attention. Call your doctor right away if you have a rash, itching, trouble breathing, trouble swallowing, or any swelling of your hands, face, or mouth while you are using this medicine.
Gabapentin may cause vision changes, clumsiness, unsteadiness, dizziness, drowsiness, sleepiness, or trouble with thinking. Make sure you know how you react to this medicine before you drive, use machines, or do anything else that could be dangerous if you are not alert, well-coordinated, or able to think or see well. If these side effects are especially bothersome, check with your doctor.
This medicine may cause some people to be agitated, irritable, or display other abnormal behaviors, such as feeling sad or hopeless, getting upset easily, or feeling nervous, restless, or hostile. It may also cause some people to have suicidal thoughts and tendencies or to become more depressed. If you, your child, or your caregiver notice any of these side effects, tell your doctor right away.
This medicine will add to the effects of alcohol and other CNS depressants (medicines that make you drowsy or less alert). Some examples of CNS depressants are antihistamines or medicine for hay fever, allergies, or colds, sedatives, tranquilizers, or sleeping medicines, prescription pain medicine or narcotics, other medicines for seizures (eg, barbiturates), muscle relaxants, or anesthetics, including some dental anesthetics. Check with your medical doctor or dentist before taking any of the above while you or your child are using gabapentin.
This medicine may cause respiratory depression, a serious breathing problem that can be life-threatening, when used together with narcotic pain medicines. Check with your doctor right away if you have pale or blue lips, fingernails, or skin, difficult or troubled breathing, or irregular, fast or slow, or shallow breathing.
Thank you for your kind thoughts Gina. My knees have just started to become a problem. I am 67 in April. A lot of my pain comes from playing sport up until I was 35. The pain clinic assist me with a lot of issues. I have to go public as in NSW you pay too much. Specialists are $400 very little back from Medicare even on a disability pension. In Victoria most of my healthcare was free. I moved to Sydney as my daughter lost her partner when their baby was 3 months old. I get up every morning grateful I’m still here. Take care ♥️
In particular, see guidelines 1 and 2.
1. Be careful about giving out medical advice
- Sharing your own experience is fine, but don't tell other members what they should do.
- Experiences and information shared by members on the Mayo Clinic Connect are not a substitute for professional medical advice, diagnosis or treatment.
- Never disregard professional medical advice or delay in seeking it because of something you have read on the community.
2. Remain respectful at all times.
- Exercise tolerance and respect toward other participants whose views may differ from your own.
- Disagreements are fine, but mutual respect is a must.
- Personal attacks against members or health care providers are not acceptable. Such posts will be removed.
All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.
The posts in question have been edited to maintain respect, but not removed because they also contain valuable information.
IMPORTANT:
Every person reacts to medications differently. Some people may have debilitating side effects that prevents them from benefitting their medical use. Keep in mind that for other people these same medications are not poison, but rather can restore quality of life and in some cases be life saving.
Talk to your doctor if you have questions about medication.
In particular, see guidelines 1 and 2.
1. Be careful about giving out medical advice
- Sharing your own experience is fine, but don't tell other members what they should do.
- Experiences and information shared by members on the Mayo Clinic Connect are not a substitute for professional medical advice, diagnosis or treatment.
- Never disregard professional medical advice or delay in seeking it because of something you have read on the community.
2. Remain respectful at all times.
- Exercise tolerance and respect toward other participants whose views may differ from your own.
- Disagreements are fine, but mutual respect is a must.
- Personal attacks against members or health care providers are not acceptable. Such posts will be removed.
All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.
The posts in question have been edited to maintain respect, but not removed because they also contain valuable information.
IMPORTANT:
Every person reacts to medications differently. Some people may have debilitating side effects that prevents them from benefitting their medical use. Keep in mind that for other people these same medications are not poison, but rather can restore quality of life and in some cases be life saving.
Talk to your doctor if you have questions about medication.
I have TN since October. This is my third bout with it. I am 75 and taking 300mg ox carbamazepine and 300mg Gaby once a day and 150mg ox carbamazepine one a day. My question…will it ever go away?
I have TN since October. This is my third bout with it. I am 75 and taking 300mg ox carbamazepine and 300mg Gaby once a day and 150mg ox carbamazepine one a day. My question…will it ever go away?
I guess it would depend on the underlying cause. The medications treat the pain, not the cause. Have you had the special MRI to see if a blood vessel is impinging the nerve?
I have all three trigeminal nerve branches acting up on my left side and at least a few random TN flare ups recently on the right side but no definitive diagnosis. I am not happy that my condition is expanding to become bilateral.
I guess it would depend on the underlying cause. The medications treat the pain, not the cause. Have you had the special MRI to see if a blood vessel is impinging the nerve?
I have all three trigeminal nerve branches acting up on my left side and at least a few random TN flare ups recently on the right side but no definitive diagnosis. I am not happy that my condition is expanding to become bilateral.
I’ve had an MRI and no MS or tumors thankfully. My TN has only been on the right side. A blood vessel on a nerve. Don’t know how it starts and what has made it go away in the past just hope it goes away again I hope.
I have been on Lyrica for about 1 year. I was on 75 mg twice a day, but I was sleeping 18 hours a day. Now we are trying 50 mg. I still have some pain, especially if I brush my teeth or eat. I use Ambesole (baby teething medication) which gives me some temporary relief). How are you taking the Lyrica?
Georgina
TN arrived on the left side of my face and I had no idea what it was. I now have it on my right side. As I’m in a fibromyalgia flare my left side feels permanently pained. I tried all meds none worked. They just gave me awful side effects. Take care
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sorry, I noticed an error in my previous comment,. I am taking 50 mg not 250 mg twice a day.
Gina5009
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1 Reaction**Edited**
Tarm56. After reading your posting on Gabapentin I searched out info from Mayo clinic. While Gabba can lead to fatigue, dizzy sleepy. It does not directly affect some of the things you said including kidneys of which I and others in this group deal with daily. Johnmacc
-
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Helpful -
Hug
2 Reactions**Edited**
Even a Dr cannot predict whether patients will have side effects.
Everyone reacts differently to medication and if you are on other medication it can enhance other symptoms. I had a cortisone injection in 2013 in my left hip for bursitis. I collapsed at work and they took 2 days to find the problem. My adrenal glands failed as I had no idea I was allergic to cortisone, I’d never had cortisone before. My body wasn’t making cortisol and I nearly died. I was admitted to hospital for a month and given cortisone pills, the very thing I was allergic to 80mgx2 per day. My face swelled from the cortisone. This continued from June-December. When I wasn’t in hospital I would have to go to the hospital every 2nd day to get a top up of cortisone injections. I failed 8 synacthen tests. Adrenal glands control a lot of important organs in your body. After 4 stays in hospital of 2-3 weeks I went in for a month in December and they stopped medication and put me in ICU to monitor me to see what would happen and they started working again. I suppose you think that no one’s allergic to cortisone and there’s no side effects. They then decided to put me on anti inflammatory meds I had not had before and the same thing happened. I had to resign from my job in February. I am relating my experience with my body.
Clumsiness or unsteadiness
continuous, uncontrolled, back-and-forth, or rolling eye movements
Black, tarry stools
chest pain
chills
cough
depression, irritability, or other mood or mental changes
fever
loss of memory
pain or swelling in the arms or legs
painful or difficult urination
sore throat
sores, ulcers, or white spots on the lips or in the mouth
swollen glands
unusual bleeding or bruising
unusual tiredness or weakness
Blurred vision
cold or flu-like symptoms
delusions
dementia
hoarseness
lack or loss of strength
lower back or side pain
swelling of the hands, feet, or lower legs
trembling or shaking
This medicine may cause serious allergic reactions, including anaphylaxis and angioedema. These can be life-threatening and require immediate medical attention. Call your doctor right away if you have a rash, itching, trouble breathing, trouble swallowing, or any swelling of your hands, face, or mouth while you are using this medicine.
Gabapentin may cause vision changes, clumsiness, unsteadiness, dizziness, drowsiness, sleepiness, or trouble with thinking. Make sure you know how you react to this medicine before you drive, use machines, or do anything else that could be dangerous if you are not alert, well-coordinated, or able to think or see well. If these side effects are especially bothersome, check with your doctor.
This medicine may cause some people to be agitated, irritable, or display other abnormal behaviors, such as feeling sad or hopeless, getting upset easily, or feeling nervous, restless, or hostile. It may also cause some people to have suicidal thoughts and tendencies or to become more depressed. If you, your child, or your caregiver notice any of these side effects, tell your doctor right away.
This medicine will add to the effects of alcohol and other CNS depressants (medicines that make you drowsy or less alert). Some examples of CNS depressants are antihistamines or medicine for hay fever, allergies, or colds, sedatives, tranquilizers, or sleeping medicines, prescription pain medicine or narcotics, other medicines for seizures (eg, barbiturates), muscle relaxants, or anesthetics, including some dental anesthetics. Check with your medical doctor or dentist before taking any of the above while you or your child are using gabapentin.
This medicine may cause respiratory depression, a serious breathing problem that can be life-threatening, when used together with narcotic pain medicines. Check with your doctor right away if you have pale or blue lips, fingernails, or skin, difficult or troubled breathing, or irregular, fast or slow, or shallow breathing.
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6 ReactionsThank you for your kind thoughts Gina. My knees have just started to become a problem. I am 67 in April. A lot of my pain comes from playing sport up until I was 35. The pain clinic assist me with a lot of issues. I have to go public as in NSW you pay too much. Specialists are $400 very little back from Medicare even on a disability pension. In Victoria most of my healthcare was free. I moved to Sydney as my daughter lost her partner when their baby was 3 months old. I get up every morning grateful I’m still here. Take care ♥️
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Hug
3 ReactionsHi all, I appreciate the support that members share about their experiences with medications.
A gentle reminder about the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/
In particular, see guidelines 1 and 2.
1. Be careful about giving out medical advice
- Sharing your own experience is fine, but don't tell other members what they should do.
- Experiences and information shared by members on the Mayo Clinic Connect are not a substitute for professional medical advice, diagnosis or treatment.
- Never disregard professional medical advice or delay in seeking it because of something you have read on the community.
2. Remain respectful at all times.
- Exercise tolerance and respect toward other participants whose views may differ from your own.
- Disagreements are fine, but mutual respect is a must.
- Personal attacks against members or health care providers are not acceptable. Such posts will be removed.
All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.
The posts in question have been edited to maintain respect, but not removed because they also contain valuable information.
IMPORTANT:
Every person reacts to medications differently. Some people may have debilitating side effects that prevents them from benefitting their medical use. Keep in mind that for other people these same medications are not poison, but rather can restore quality of life and in some cases be life saving.
Talk to your doctor if you have questions about medication.
Please post with respect.
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8 ReactionsInformation from Mayo Clinic:
- Gabapentin (Oral Route) https://www.mayoclinic.org/drugs-supplements/gabapentin-oral-route/description/drg-20064011
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2 ReactionsI have TN since October. This is my third bout with it. I am 75 and taking 300mg ox carbamazepine and 300mg Gaby once a day and 150mg ox carbamazepine one a day. My question…will it ever go away?
-
Like -
Helpful -
Hug
1 ReactionI guess it would depend on the underlying cause. The medications treat the pain, not the cause. Have you had the special MRI to see if a blood vessel is impinging the nerve?
I have all three trigeminal nerve branches acting up on my left side and at least a few random TN flare ups recently on the right side but no definitive diagnosis. I am not happy that my condition is expanding to become bilateral.
-
Like -
Helpful -
Hug
1 ReactionI’ve had an MRI and no MS or tumors thankfully. My TN has only been on the right side. A blood vessel on a nerve. Don’t know how it starts and what has made it go away in the past just hope it goes away again I hope.
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2 ReactionsTN arrived on the left side of my face and I had no idea what it was. I now have it on my right side. As I’m in a fibromyalgia flare my left side feels permanently pained. I tried all meds none worked. They just gave me awful side effects. Take care
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Like -
Helpful -
Hug
1 Reaction