1. < Autoimmune Diseases

Is this RLS (restless leg syndrome)?

Posted by Darlia @darlia, Oct 14, 2017

I have been a member of Mayo Connect in other groups too. I am trying to find out if the symptoms I have in my muscles is connected to anything I already have been diagnosed with.
Also, would it be a Rheumatologist or Orthopedic Dr. That I need for this? I asked the Rheumo and they said it's nothing that they handle. But I would think they would because it feels like muscles.
At night while relaxing, my legs get restless, want to tense up, like on rubber bands. Then my right arm, just my forearm starts to feel the same. Then it makes me put my hand into a "claw" as it intensifies.
Any clues anyone?
@darlia

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

maystamper | @maystamper | Feb 20, 2023

I took .5 mg about 7pm and another .5 if that didn’t start to work. I took 4 mg at bedtime. So far weaning off the Requip hasn’t been too bad and going on the Lyrica. 200 mg. Time will tell if it works without breakthroughs.

REPLY
bereese | @bereese | Feb 21, 2023

I have rls along with the long covid vibration and use the doterra essential oil marjoram in a few drops to rub over the bottom of my feet and the back of my legs and it does work, but NOTHING stops the vibration.

REPLY
raye | @raye | Feb 22, 2023

Re: RESTLESS LEG SYNDROME. My husband had it. His leg shook and vibrated the bed at regular intervals. I could count to twenty then his leg would jolt and shake the bed. It was like waiting for a centipede to drop the next shoe. Eventually we slept in separate beds. His doc said medication to ameliorate it could depress him and he was already on an antidepressant. When I described this to my sleep specialist she said it sounded like REM behavior sleep disorder. Sorry, I wish I knew how to help you. Maybe see a sleep specialist?

REPLY
1 reply
littleoaksc52 | @littleoaksc52 | Feb 23, 2023
In reply to @raye "Re: RESTLESS LEG SYNDROME. My husband had it. His leg shook and vibrated the bed at..." + (show)
@raye

Re: RESTLESS LEG SYNDROME. My husband had it. His leg shook and vibrated the bed at regular intervals. I could count to twenty then his leg would jolt and shake the bed. It was like waiting for a centipede to drop the next shoe. Eventually we slept in separate beds. His doc said medication to ameliorate it could depress him and he was already on an antidepressant. When I described this to my sleep specialist she said it sounded like REM behavior sleep disorder. Sorry, I wish I knew how to help you. Maybe see a sleep specialist?

Jump to this post

I have a tip for Raye: My husband also has restless leg syndrome. I would lay there and count 10 seconds between each shake of the bed. Then we got a Tempurpedic mattress and the problem is solved. This firm, memory-foam mattress, amazingly, transfers NO movement between one side of the bed and the other. Also, it's a king size mattress which helps, as well.

REPLY
2 replies
raye | @raye | Feb 23, 2023
In reply to @littleoaksc52 "I have a tip for Raye: My husband also has restless leg syndrome. I would lay..." + (show)
@littleoaksc52

I have a tip for Raye: My husband also has restless leg syndrome. I would lay there and count 10 seconds between each shake of the bed. Then we got a Tempurpedic mattress and the problem is solved. This firm, memory-foam mattress, amazingly, transfers NO movement between one side of the bed and the other. Also, it's a king size mattress which helps, as well.

Jump to this post

--Apple-Mail-88334DDE-DDA0-4FE3-BCCF-15D79F08E4E7
Content-Type: text/html;
charset=utf-8
Content-Transfer-Encoding: quoted-printable

On Feb 23, 2023, at 6:52 AM, Mayo Clinic Connect <nf+478eb55b=

REPLY
1 reply
littleoaksc52 | @littleoaksc52 | Feb 23, 2023

This is not RLS. Get to a neurologist ASAP. You may need a referral from your primary care physician for it.

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 23, 2023
In reply to @raye "--Apple-Mail-88334DDE-DDA0-4FE3-BCCF-15D79F08E4E7 Content-Type: text/html; charset=utf-8 Content-Transfer-Encoding: quoted-printable On Feb 23, 2023, at 6:52 AM, Mayo Clinic Connect..." + (show)
@raye

--Apple-Mail-88334DDE-DDA0-4FE3-BCCF-15D79F08E4E7
Content-Type: text/html;
charset=utf-8
Content-Transfer-Encoding: quoted-printable

On Feb 23, 2023, at 6:52 AM, Mayo Clinic Connect <nf+478eb55b=

Jump to this post

Oops, @raye. Your comment didn't come through as expected. Can you please post again?

REPLY
1 reply
littleoaksc52 | @littleoaksc52 | Feb 23, 2023

That comment from littleoak about seeing a neurologist was for Darlia. Sorry, I didn't make that clear.

REPLY
raye | @raye | Feb 23, 2023
In reply to @colleenyoung "Oops, @raye. Your comment didn't come through as expected. Can you please post again?" + (show)
@colleenyoung

Oops, @raye. Your comment didn't come through as expected. Can you please post again?

Jump to this post

Hi Colleen,

It’s a very busy day for me today. My post was about how one can help a spouse stop Bruxism. So it was related to sleeping comfortably together while helping the significant other save his teeth. Not RSL

HUGS TO YOU!

REPLY
maystamper | @maystamper | Apr 17, 2023
In reply to @becsbuddy "@maystamper Hello, I also have RLS and take requip. Can you tell me what dosage of..." + (show)
@becsbuddy

@maystamper Hello, I also have RLS and take requip. Can you tell me what dosage of requip you were on? I take 1mg twice a day and it just barely works. Does Lyrica work for you?

Jump to this post

5mg every night

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.