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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for Rachel, Volunteer Mentor
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 20, 2023
In reply to @suemaca "Hello, my name is Sue..living in Ireland. I have huge back problems.. partly mechanical,partly nerve -..." + (show)
Profile picture for suemaca @suemaca

Hello, my name is Sue..living in Ireland.
I have huge back problems.. partly mechanical,partly nerve - the pain has changed my life.
I am a pro active positive person and basically have tried everything.Had 2 surgeries and been told they can't do any more...SO.. I had a Nevro SCS implanted late 2022 and have had NO relief to date.I didn't have a trial -surgeon is very reputable &was sure it would be a success. I am getting desperate now and wondering whether anyone has had a similar experience..

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Hi Sue I'm sorry to hear about your back chronic pain. It's difficult to live with something that never gets better. Although you're back might not get better, you sure do because we grow through what we go through when learning how to live with and manage chronic pain. Being your a positive proactive person, I'm sure your mindset has served you well. What type of physical activity are you able to do? Do you stretch regularly?

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1 reply
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Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 20, 2023
In reply to @sue15 "I just know that with the random pain when it’s in my head and don’t know..." + (show)
Profile picture for sue15 @sue15

I just know that with the random pain when it’s in my head and don’t know what’s going on the cause pain in my head. I don’t think the doctors missed anything except my L side is weaker than my R. I’ve been to 2 neurologists. Dr. West here in Layton has been very helpful. He diagnosed me with CPAmplificatiom. I saw his social worker for 5 weeks-CBT.

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Do you take nerve medication? If all tests and scans prove negative, might the pain be nerve related, or muscle tension, stress related? Have you tried meditation during the time you have this pain?

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sue15 | @sue15 | Feb 20, 2023

I don’t know. This is what I take: Nortriptelene, Sertralene, Gapentin, Meloxican, Trazadone. I just started cannabis gummies under the direction of my pain specialist.

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susanh824 | @susanh824 | Feb 21, 2023
In reply to @sue15 "I don’t know. This is what I take: Nortriptelene, Sertralene, Gapentin, Meloxican, Trazadone. I just started..." + (show)
Profile picture for sue15 @sue15

I don’t know. This is what I take: Nortriptelene, Sertralene, Gapentin, Meloxican, Trazadone. I just started cannabis gummies under the direction of my pain specialist.

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Can you get RSO capsules (medical marijuana)there? It’s the only thing so far that has helped my pain

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gabriel1011 | @gabriel1011 | Feb 21, 2023

hi...I've had the same pain in up upper right ribs for over 10 years...ribs are tender under my right arm, and the last rib on the right-side hurts when touched...I've had ultrasounds, upper and lower scopes, CT scans etc...nothing has come of it...it definitely bothers me more when I am stressed...I am a server, so I am active...the pain is more noticeable when laying on the right side and while sitting down...any ideas?

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sue15 | @sue15 | Feb 21, 2023

Yes,medical marijuana is legal here. I just started 10mg cannabis gummy’s 4 days ago.
What is RSO?

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suemaca | @suemaca | Feb 21, 2023
In reply to @rwinney "Hi Sue I'm sorry to hear about your back chronic pain. It's difficult to live with..." + (show)
Profile picture for Rachel, Volunteer Mentor @rwinney

Hi Sue I'm sorry to hear about your back chronic pain. It's difficult to live with something that never gets better. Although you're back might not get better, you sure do because we grow through what we go through when learning how to live with and manage chronic pain. Being your a positive proactive person, I'm sure your mindset has served you well. What type of physical activity are you able to do? Do you stretch regularly?

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Thanks for your reply Rachel.
I do indeed do stretches and specific exercises for leg strength,in the pool..as standing is a big problem for me.
Hoping someone on this forum has experience of Nevro implant....

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2 replies
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beaniejc | @beaniejc | Feb 21, 2023

I’m new to this group. I have every day chronic migraine in the back of my head due to disc degeneration disease. Anyone else experiencing the headaches?

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2 replies
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Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 21, 2023
In reply to @suemaca "Thanks for your reply Rachel. I do indeed do stretches and specific exercises for leg strength,in..." + (show)
Profile picture for suemaca @suemaca

Thanks for your reply Rachel.
I do indeed do stretches and specific exercises for leg strength,in the pool..as standing is a big problem for me.
Hoping someone on this forum has experience of Nevro implant....

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You might be interested is the following discussion about comparisons of spinal cord implants such as Nevro.

Comparison Of Spinal Cord Stimulators From Boston Scientific to Nevro -
- https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/

Members like @hbourg, @glenjunderwood and @martyk may have current information.

Does exercising in a pool feel pretty decent to you? Are you able to stand unassisted in the pool?

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Mentor
John, Volunteer Mentor | @johnbishop | Feb 21, 2023
In reply to @beaniejc "I’m new to this group. I have every day chronic migraine in the back of my..." + (show)
Profile picture for beaniejc @beaniejc

I’m new to this group. I have every day chronic migraine in the back of my head due to disc degeneration disease. Anyone else experiencing the headaches?

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Welcome @beaniejc, There are a couple of discussions specifically on migraine headaches that you might find helpful:
--- Migraine: https://connect.mayoclinic.org/discussion/migraine-3/
--- Migraine headache: What helps you cope?: https://connect.mayoclinic.org/discussion/migraine-headache/.

How long have you had the headaches? Has your doctor suggested any treatments?

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