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← Return to Waldenstrom macroglobulinemia: What to expect during watch & wait?
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Waldenstrom macroglobulinemia: What to expect during watch & wait?
Blood Cancers & Disorders | Last Active: Nov 14, 2023 | Replies (90)Comment receiving replies
catalinae | @catalinae wanted to do a private comment; but don't know how. I sincerely appreciate someone who can understand blood disorders and avoid cold. I have cold urticaria - anaphylaxis shock when I get cold. I've always been high on iron (but) first time ever; I'm have MF and PV. We have opposite problem; you have macroglobulin (red blood cells to big > over 100) I have macrocytic anemia (red blood cell is
Replies to "catalinae | @catalinae wanted to do a private comment; but don't know how. I sincerely appreciate..."
I too am annemia. Plus MAST CELL ACTIVATION DISORDER. My body is allergic to most foods so I produce too much hystamines. Funny, I get COLD often and can't get warm..but they think its from MAST CELL, now I am wondering if this is the real reason I get cold so easy.. I'll look up your " cold urticaria". Gets confusing when I have so many autoimmune illness's. I have chronic cough from post nasal drip which comes from MAST CELL..... It is hard..but so far I've made it to 78 years old. Also, colitis! Sjogrens, arthritis, spine problem L1 thru L4...etc...yards dealing with my life
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Thank you for your note! I really appreciate any and all ideas from anyone that can understand what we are going through. I am not familiar with this system,so in order to have a private comment,please allow me more time to understand what I am doing. Hugs!