Best POTS article I have ever read

Posted by monarchbfly @monarchbfly, Feb 9, 2023

Hello,
I just wanted to share this with people looking for more information about POTS. After a lot of research, I have found it to be the most thorough and informative article on POTS I have read so far. It has helped me a lot:
https://franklincardiovascular.com/do-i-have-pots/#:~:text=Dependent%20acrocyanosis%2C%20which%20is%20a,is%20due%20to%20venous%20pooling.

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Interesting you were allowed to embed a hyperlink. I have been denied doing so (URLs to published peer-reviewed scientific articles). Is there a change to the Mayo Connect policy?

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@shoshin

Interesting you were allowed to embed a hyperlink. I have been denied doing so (URLs to published peer-reviewed scientific articles). Is there a change to the Mayo Connect policy?

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@shoshin, you are permitted to post URLs. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. But both you and @monarchbfly are established members and can post links to evidence-based resources.

Monarchbfly, what in particular did you find helpful in this article? What was the a-ha moment?

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@colleenyoung

@shoshin, you are permitted to post URLs. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. But both you and @monarchbfly are established members and can post links to evidence-based resources.

Monarchbfly, what in particular did you find helpful in this article? What was the a-ha moment?

Jump to this post

As most people here know, it's hard to get a diagnosis of POTS. Many doctors are unaware and some symptoms of POTS such as the brain fog and inability to recall words make it difficult for people experiencing their POTS-like symptoms to effectively communicate with a physician and relay to them exactly how they are feeling. I was going to have a tilt test done until I found out it was $16k at my local hospital. My symptoms were life impacting, but not life destroying. They come and go and I did not feel the cost of the tilt test was worth it for someone like me who just had the high heart rate upon standing, but not the dizzyness. Plus there is no cure, just lifestyle management with compression stockings, increasing salt and fluid intake and exercise. This article helps us who are in the "impacted by POTS symptoms" have access to more specific POTS information, like how much systolic and diastolic blood pressure numbers are affected by standing when doing an at home standing test. It provides more specific information to the person who is trying to figure out if it is POTS or something else.

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