Chronic subjective dizziness

I understand, and I appreciate your comments. My dad used to pass out because of low blood pressure (and I sometimes feel lightheaded when my blood pressure drops some, so I've been told to get enough sodium daily. I try not to use more more than enough, but I'm not supposed to cut it way back either. 🙂

As for the oats, wheat and corn, that's something to consider. Thanks.

It took me years to figure out that i have an EMF sensitivity. I wonder if any of you have a sensitivity to wireless as well? I thought I was alone but it turns out, it is a worldwide problem. http://www.bioinitiative.org/ here is some science behind it (lots of scientific studies under Reported Biological Effects)
I wish I was able to type more now but the "treatment" for EMF sensitivity is to get rid of the wireless - use wired instead or stay away from it. I learned a lot from this guy too http://www.electricsense.com/category/electrical-sensitivity/are-you-es/

I do get dizziness from time to time, I call it my wobbly day. I was diagnosed with Labrynthitis in October 2015 and was hospitalized for 4 days. It was a nightmare! Apparently caused by a virus which has left lasting effects of dizziness, lack of concentration, tinnitus with sometimes pulsing, certain noises (especially bass) can set it off, I have trouble staying focused and sometimes terrible anxiety. I never know when it's going to hit but certainly happens at least a couple of times a week and can last for days. Occasionally it causes nausea, if the symptoms are bad at any particular time I cannot drive and if it is sunny, or dark out shadows become a real problem for me so at times, I need a walking stick or cane since I love to walk. Exercise has been a challenge because my balance is not always optimal. I am also unable to work because I am not dependable if symptoms are an issue on any given day. I most often feel like my head is on a spring, and feels like it bobbles when my foot hits the floor. I was told at first, it may take a few weeks, then a few months, now, no one has any answers for me. Very frustrating. I have heard that someone else that came down with it after me was told that it was linked to Hand and Foot disease, which her two children happened to have when she came down with it. Interestingly enough another lady who came down with it about 2 months after I did, her 2 children also had Hand and Foot as well did my Granddaughter about a week before I came down with Labrynthitis. I've yet to have a doctor confirm it with my diagnosis.

I was diagnosed with the same type of virus in 1997, and I still get many of the same symptoms now and then. I don't have trouble staying focus or nausea, but I do experience the other symptoms, especially pulsing tinnitus (can hear and feel my heart throbbing) and tiredness. I wonder whether it really is linked to hand ad food disease.

Do you have problems with shadows as well? Fatigue is a huge thing too. I'm so sorry it's been going on so long for you. I get very discouraged, but in the grand scheme of things, I know it could be a lot worse.

Suffered with migraines, benign positional vertigo and ringing in ears. I believe they at all related. My migraines at due to estrogen and cycle, nothing else. Have had severe vertigo attacks that made me stay upright in bed for days. Take benadryl to lessen symptoms. I would love to be free from this circus of maladies!

Hello @labrynthitis and @annemusic! Welcome to Mayo Clinic Connect! I would like to introduce you to @trishanna and @suzanne321 who are both here discussing Chronic subjective dizziness (now called Persistent Postural-Perceptual Dizziness).

@trishanna, did you find anything helpful on the VEDA (Vestibular Disorders Association) site that would be helpful to share with the rest of the group?

are there any tips or tricks that have helped your daily living that you can share and possibly help one another? I imagine this to be a very debilitating and tough thing to deal with. Sending healing thoughts to all of you....

I did check out the VEDA website, sounds interesting. I have been unable to work since moving to Niagara Falls, Ontario, I'm not sure if there are any clinics practicing this method of treatment, if there are, most likely it isn't covers under our Ontario Health Insurance Plan so wouldn't be able to afford any treatment. I have been pushing myself since I came down with it, I have no control of when the symptoms resurface. Although I rarely get nauseous and full on dizzy anymore, I'm often fatigued and have a feeling of being overwhelmed. Thankfully, my husband is very supportive.

VEDA is quite interesting, but as is described, there are many forms or types of vestibular disorders. Since I was without symptoms for about 40 years, I wondered if there were any new ideas about treatment for my specific kind - Meniere's - allergy based - and I really didn't find anything especially enlightening. My symptoms (there is no cure) are under control again, and that was achieved through diet (especially low salt), plenty of liquids, and avoiding certain foods which for me are triggers. I do not understand why diuretics don't play a part in treatment - at least, not that I can find. My second problem is tinnitus - is anyone devoting a site to tinnitus? Best one I've found is the British Tinnitus Association - uk. Wish I could be of more help.

Thank you for sharing your experiences It seems that I don't feel alone. In my case, I have dizziness over one year and a half, is a constant dizziness as floating sensation and spinning to my left side. sometimes i feel an oppression inside my ears and head aches I don't have problems of balance but the sensation is like I am going down. My MRI is good and blood tests good.
People suggest to me to go to Mayo Clinic since in my country doesn't have an Otoneurology experts.
Does anyone had a good experience at Mayo Clinic treating this disorders?
it is very stressful and desperate to have this.
thank you for your help.