1. < Women's Health

Problems After Hysterectomy: Abdominal Pain & Cramps

Posted by cherelle @cherelle, May 27, 2019

I had a total abdominal hysterectomy 3 years ago but now for the past year I have been having bad abdominal pain and cramps I have gone to a gastrointestinal Dr and to my ob and both have said they don't see anything but my gastrointestinal Dr gave me some glycopyrrolate 1mg twice a day before it was every few months now it's more often like after intercourse sometimes I feel so bad the cramps is bad please tell me what could be going on.

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delia22 | @delia22 | Feb 3, 2023
In reply to @colleenyoung "Welcome @delia22, I moved your question about bloating, cramping and pelvic pain along with blood in..." + (show)
@colleenyoung

Welcome @delia22, I moved your question about bloating, cramping and pelvic pain along with blood in your urine years after a total yesterectomy to this existing discussion:
- Problems After Hysterectomy: Abdominal Pain & Cramps https://connect.mayoclinic.org/discussion/abdominal-pain-and-cramps-after-hysterectomy/

I did this so you can read previous posts and connect easily with fellow members of the Women's Health support group like @cherelle @sunflower83 @amyoonlee @patram7 @robinw @cleeper2390 @saranye @goldilocks22 and others.

It sounds like you have seen a doctor. Blood in urine should be investigated. Have you seen your gynecologist?

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Thank you 😊

REPLY
delia22 | @delia22 | Feb 3, 2023
In reply to @colleenyoung "Welcome @delia22, I moved your question about bloating, cramping and pelvic pain along with blood in..." + (show)
@colleenyoung

Welcome @delia22, I moved your question about bloating, cramping and pelvic pain along with blood in your urine years after a total yesterectomy to this existing discussion:
- Problems After Hysterectomy: Abdominal Pain & Cramps https://connect.mayoclinic.org/discussion/abdominal-pain-and-cramps-after-hysterectomy/

I did this so you can read previous posts and connect easily with fellow members of the Women's Health support group like @cherelle @sunflower83 @amyoonlee @patram7 @robinw @cleeper2390 @saranye @goldilocks22 and others.

It sounds like you have seen a doctor. Blood in urine should be investigated. Have you seen your gynecologist?

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Yes but no one including my urologist says anything is wrong but I can’t believe that because of all the symptoms and pain.

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delia22 | @delia22 | Feb 3, 2023

I have seen a gyno and a urologist. It’s been a couple of years ago and they said, sometimes that happens, talking about the blood in the urine. Back then it was maybe once a month now I have blood in my urine daily and the cramping is getting really bad. I’m trying to get another urologist now. My gyno said that all my symptoms were with urology.

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mreed36 | @mreed36 | Mar 22, 2023
In reply to @robinw "After having a total abdominal hysterectomy (2009) as a treatment to relieve pain from what was..." + (show)
@robinw

After having a total abdominal hysterectomy (2009) as a treatment to relieve pain from what was diagnosed as adenomyosis & endometriosis - I still deal with chronic pain. It isn't as bad as it was presurgery - but, it does impact daily life and I deal with it 24/7. Scar from hysterecomy is almost looks like I had a c-section (but never have). Pain is always localized on the left side and often radiates around to the hip/pelvic area and often to the lower back/pelvic. After primary physician said likely scar tissue/adhesions - they didn't give much help to try to resolve pain. Last year went to another ObGyn for second opinion. Have been working with a physical therapist w/ minor results (pain persists). Went off HRT (which I had been on since hysterectomy) & was placed on Orilissa (trial to see if I might have leftover endo). Appointment coming up Thursday, Orilissa doesn't seem to be making any difference. Unfortunately, can't take OTC anti-inflamatories due to weak stomach.

Any thoughts or suggestions on avenues to explore? Really ready to get rid of the pain!

Thank you!

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Have you ever been told you have pelvic congestion syndrome? I have it plus endometriosis and cysts I just had a hysterectomy 2 weeks ago, but I also had coils placed a year ago for pelvic congestion syndrome. I'd look into it if I were you.

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1 reply
emo | @emo | Jun 13, 2023
In reply to @mreed36 "Have you ever been told you have pelvic congestion syndrome? I have it plus endometriosis and..." + (show)
@mreed36

Have you ever been told you have pelvic congestion syndrome? I have it plus endometriosis and cysts I just had a hysterectomy 2 weeks ago, but I also had coils placed a year ago for pelvic congestion syndrome. I'd look into it if I were you.

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Hi- I know it’s been a while since your post, but I came across it searching for references to pelvic congestion syndrome. I was wondering if you might be willing to share anything your experience…how you were diagnosed or your experience with treatment?

A Mayo doctor ordered a pelvic CT for me, because I have POTS, hypermobility, and pelvic pain, and there may be signs of pelvic congestion. I have an appointment to discuss findings with interventional radiology. But I haven’t been screened for endometriosis or fibroids yet (exams and imaging are very difficult for me). I’m worried about how to know with more certainty pelvic congestion could be a cause of my pain, when there are also so many other potential causes that are also difficult to diagnose, so just wanted to reach out if you were willing to share anything about your experience. Thanks so much!

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jennaharwood90 | @jennaharwood90 | Jul 20, 2023

So I am almost a week post ovaries removed and am having a lot of pain in my right hip and leg...

Since I was younger my periods were always the worst, as were my sisters, my sister was diagnosed with pcos and endometriosis. Eventually I too was diagnosed with both of those. After having my son and getting close to age 30 I decided I can't take the painful periods, so at first my ob did my tubes, but that didn't help so I started lupron depo to enduce menopause... and for the 1st time I didn't have pain it was wonderful! After 6 months on that he decided a partial hysterectomy was for the best...then covid hit...so eventually they were able to do my surgery may of 2020. He said he removed all the endometriosis and left both ovaries...I was so happy it was over...fast forward to September 2022 pain on my right side started doctors kept saying I had kidney stones and infections, I had a CT scan saw a kidney doctor he told me that isn't causing my pain, I was so frustrated finally may 2023 after months of doctors not listening saying it was nothing, I had an ultrasound..they found not 1 but 2 masses inside my left ovary...I was sent to see an ob cancer doctor, we talked for hours at my appointment he said when I was on the lupron and had no pain it should have been determined to do a full not just a partial. He also said he didn't believe it to be cancer but my endometriosis...so only july 14 2023 he removed both ovaries and it was infact my endometriosis...

they made 5 cuts on my stomach and my right hip and back and leg have been killing me...is this normal or should I be worried?

REPLY
1 reply
annewoodmayo | @annewoodmayo | Jul 20, 2023
In reply to @jennaharwood90 "So I am almost a week post ovaries removed and am having a lot of pain..." + (show)
@jennaharwood90

So I am almost a week post ovaries removed and am having a lot of pain in my right hip and leg...

Since I was younger my periods were always the worst, as were my sisters, my sister was diagnosed with pcos and endometriosis. Eventually I too was diagnosed with both of those. After having my son and getting close to age 30 I decided I can't take the painful periods, so at first my ob did my tubes, but that didn't help so I started lupron depo to enduce menopause... and for the 1st time I didn't have pain it was wonderful! After 6 months on that he decided a partial hysterectomy was for the best...then covid hit...so eventually they were able to do my surgery may of 2020. He said he removed all the endometriosis and left both ovaries...I was so happy it was over...fast forward to September 2022 pain on my right side started doctors kept saying I had kidney stones and infections, I had a CT scan saw a kidney doctor he told me that isn't causing my pain, I was so frustrated finally may 2023 after months of doctors not listening saying it was nothing, I had an ultrasound..they found not 1 but 2 masses inside my left ovary...I was sent to see an ob cancer doctor, we talked for hours at my appointment he said when I was on the lupron and had no pain it should have been determined to do a full not just a partial. He also said he didn't believe it to be cancer but my endometriosis...so only july 14 2023 he removed both ovaries and it was infact my endometriosis...

they made 5 cuts on my stomach and my right hip and back and leg have been killing me...is this normal or should I be worried?

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I don't know, but I am sending hugs and sympathy! (and this post should keep your original post in the Daily for tomorrow, too, for more people to see.)

Call the surgeon? or your primary doctor? or your health insurance nurse line? Maybe all of them? It doesn't sound right to me, but I don't have experience with it.

You shouldn't have to suffer, especially not with new symptoms.

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Mentor
Laurie, Volunteer Mentor | @roch | Jul 21, 2023

annewoodmayo | @annewoodmayo

Like you, I suffered with endrometerious for teen years till 40, one ovary removed at 18, many laparoscopy and finally total hystrictomy at 40.

I wonder seeing so soon after surcery if just your body healing. They proably had to cut through some muscle / fat to get to the ovary. But like previous response, call the surgeon and ask if that is normal.

Make sure you watch for any sign of infection ( redness).

Laurie

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