Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Posted by dmiles @dmiles, Jan 21, 2023

Does anyone who has CLL stage 0-1 struggle with symptoms?
I should not have symptoms because my blood work only shows, lymphocytes somewhat elevated, 7500, and low neuropils but no other abnormalities. I did have smudge cells but only once...so I was wondering because I have symptoms and am wondering if anyone else struggles with symptoms.

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@raremiracle2

We suffer more when people just don't understand (support is miracle from earthly and heavenly angles. When I suffer I have warm sisters heart to help comfort me and it's a only way I can keep going. Summers are freedom except for air conditioning or fridge ... feeling cold is the worst! I love heat and never complain about heat missypurtee | @missypurtee glad your son understands me, that is rare! Thank you!

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Considered a move in warmer climate or does that make a difference?

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missypurtee | @missypurtee |
Born in Revenna Michigan until Doctor's note said move or loss your daughter 2016. Moved to Layton Utah by Grandma house, 1990 Beaver Utah (aunt / Uncle) after high school (Desert -St. George 20 years - weather is like Arizona - Husband family lived in Bullhead & Phoenix Arizona (Nope! too cold there) I have doctor's note, new doctor moved there and took my doctor's place (I cried- love that doctor for 15 years) and Dr Handson wrote prescription "Moved too Miami Florida ( June 2016 - 2023 Inverness Florida) No matter where I go ... cold
Forgot Neurological Cough: chronic loud cough I vomit and brake ribs
https://www.youtube.com/watch?v=WDQcpe67kuk&t=14s Paige's story: is my story (thank you!)

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missypurtee | @missypurtee |What are your symptoms?
Heart goes out to you! Prayer

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@raremiracle2

missypurtee | @missypurtee |
Born in Revenna Michigan until Doctor's note said move or loss your daughter 2016. Moved to Layton Utah by Grandma house, 1990 Beaver Utah (aunt / Uncle) after high school (Desert -St. George 20 years - weather is like Arizona - Husband family lived in Bullhead & Phoenix Arizona (Nope! too cold there) I have doctor's note, new doctor moved there and took my doctor's place (I cried- love that doctor for 15 years) and Dr Handson wrote prescription "Moved too Miami Florida ( June 2016 - 2023 Inverness Florida) No matter where I go ... cold
Forgot Neurological Cough: chronic loud cough I vomit and brake ribs
https://www.youtube.com/watch?v=WDQcpe67kuk&t=14s Paige's story: is my story (thank you!)

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I’m in Galveston, rarely cold. Many love it but I’m planning my exit! Lol

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missypurtee | @missypurtee We went through Galveston Texas, family is in Texas and still too cold for me. Heck Florida is still too cold = sometimes (snowing back east so... happier here in Sunshine state! LOL! It's the sunshine state and mostly cloudy and raining! Foggy today; cant see anything! Florida is my home and this is where I will die! What ever your plans, I support you and wish you luck, my friend! Just enjoy each day as it comes ....

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I am 0-1 and struggle with hot flashes that make menopause feel like nothing, fatigue and weight loss. I also have been getting minor infections, sinus, UTI etc…

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Yes, I have a chronic fatigue--which is what prompted me to see my doctor 3 years ago when I was first diagnosed with CLL. I also have deep itching in my bones.

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