1. < Skin Health

Grover’s Disease

Posted by sharfar @sharfar, Mar 13, 2022

Hello-I am a 54 year old, active female recently diagnosed with Grover’s Disease. It started shortly after having an MRI. And it started on my neck and went up behind my ear. It is now on my stomach and back and arms. Is there a correlation between the MRI and Grover’s? I’m also a runner but have been running in freezing temperatures, not heat as suggested in much of what I’m reading.
Thanks for any help you may offer including any suggestions on helping to get rid of it.

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bjv8080 | @bjv8080 | Jan 25, 2023

Not enough people have Grover’s, ergo there’s scant research done on the disease. I was first diagnosed in the 1970s, and have been biopsies multiple times by various dermatologists over that time.

Only two treatments have been effective—Prednisone and Photo Therapy. Prednisone is temporary and carries side effects. Photo Therapy has kept mine under control for several years.

I visit the VA Hospital in Philadelphia once a week and stand in the light booth for two minutes. That keeps my skin clear. I surprised more dermatologists are not providing nor recommending this.

My guess is it’s an insurance/money concern.

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1 reply
hawkssr | @hawkssr | Jan 25, 2023
In reply to @woody92354 "Hey Hawk. That's because derms don't actually have to live with this. I have an appt...." + (show)
@woody92354

Hey Hawk. That's because derms don't actually have to live with this. I have an appt. w/mine next week, and he's going to hear all about cilantro smoothies (I'm actually having one as I type this) & how all his pills & OTC lotions did nada....Good luck to you, my friend!

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Let’s us know what your dermatologist tells you 👍

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1 reply
woody92354 | @woody92354 | Jan 26, 2023
In reply to @hawkssr "Let’s us know what your dermatologist tells you 👍" + (show)
@hawkssr

Let’s us know what your dermatologist tells you 👍

Jump to this post

Will do Hawkssr. (Do you own an SSR?...cool if so!) Just started taking some L-Lysine wife had bought me awhile back for herpes(?) outbreaks I get 1-2x/yr. Says good for tissue health on the label, so why not try it? Also, going up to visit CBD shop today as I heard they have some kind of light therapy room there. I'll keep you in the loop.

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1 reply
hawkssr | @hawkssr | Jan 26, 2023
In reply to @woody92354 "Will do Hawkssr. (Do you own an SSR?...cool if so!) Just started taking some L-Lysine wife..." + (show)
@woody92354

Will do Hawkssr. (Do you own an SSR?...cool if so!) Just started taking some L-Lysine wife had bought me awhile back for herpes(?) outbreaks I get 1-2x/yr. Says good for tissue health on the label, so why not try it? Also, going up to visit CBD shop today as I heard they have some kind of light therapy room there. I'll keep you in the loop.

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LOL no , those are my initials also I’m an Iowa Hawkeye fan thus the Hawk 😁

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1 reply
woody92354 | @woody92354 | Jan 26, 2023
In reply to @hawkssr "LOL no , those are my initials also I’m an Iowa Hawkeye fan thus the Hawk..." + (show)
@hawkssr

LOL no , those are my initials also I’m an Iowa Hawkeye fan thus the Hawk 😁

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OK cool Hawk. Just wanted to add that I found a place near-by who does RLT (Red Light Therapy) and thought I may try that. I see skin doc this week, probably run it by him first, if he even knows anything about it. I didn't know anything about it either 2hrs. ago. May be promising. They want $10/session (? min.) or $100/mo. unlimited days/duration. I'll keep this site posted! Thanks Hawk...

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3 replies
woody92354 | @woody92354 | Jan 26, 2023
In reply to @woody92354 "OK cool Hawk. Just wanted to add that I found a place near-by who does RLT..." + (show)
@woody92354

OK cool Hawk. Just wanted to add that I found a place near-by who does RLT (Red Light Therapy) and thought I may try that. I see skin doc this week, probably run it by him first, if he even knows anything about it. I didn't know anything about it either 2hrs. ago. May be promising. They want $10/session (? min.) or $100/mo. unlimited days/duration. I'll keep this site posted! Thanks Hawk...

Jump to this post

PS. Always wanted to buy A Honda motorcycle cause it was called (something?) 954...month and year I was born. You should look into AN SSR, heck, it's got your name(?) all over it..LOL

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1 reply
hawkssr | @hawkssr | Jan 26, 2023
In reply to @woody92354 "OK cool Hawk. Just wanted to add that I found a place near-by who does RLT..." + (show)
@woody92354

OK cool Hawk. Just wanted to add that I found a place near-by who does RLT (Red Light Therapy) and thought I may try that. I see skin doc this week, probably run it by him first, if he even knows anything about it. I didn't know anything about it either 2hrs. ago. May be promising. They want $10/session (? min.) or $100/mo. unlimited days/duration. I'll keep this site posted! Thanks Hawk...

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Curious to see what your dermatologist has to say.

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hawkssr | @hawkssr | Jan 26, 2023
In reply to @woody92354 "PS. Always wanted to buy A Honda motorcycle cause it was called (something?) 954...month and year..." + (show)
@woody92354

PS. Always wanted to buy A Honda motorcycle cause it was called (something?) 954...month and year I was born. You should look into AN SSR, heck, it's got your name(?) all over it..LOL

Jump to this post

😆😆

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woody92354 | @woody92354 | Jan 26, 2023
In reply to @bjv8080 "Not enough people have Grover’s, ergo there’s scant research done on the disease. I was first..." + (show)
@bjv8080

Not enough people have Grover’s, ergo there’s scant research done on the disease. I was first diagnosed in the 1970s, and have been biopsies multiple times by various dermatologists over that time.

Only two treatments have been effective—Prednisone and Photo Therapy. Prednisone is temporary and carries side effects. Photo Therapy has kept mine under control for several years.

I visit the VA Hospital in Philadelphia once a week and stand in the light booth for two minutes. That keeps my skin clear. I surprised more dermatologists are not providing nor recommending this.

My guess is it’s an insurance/money concern.

Jump to this post

Hey BJV8080. Know anything about Red Light Therapy? What color are the lights your working with? Are you surrounded by lights? Local business has one strip of red lights, so not sure if I have to rotate myself or what. Much co-pay involved? TIA

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bjv8080 | @bjv8080 | Jan 27, 2023

My treatment is simply called PHOTOTHERAPY. It’s done in a circular booth with white fluorescent lights surrounding you. Treatment lasts about two minutes. I’m at a maintenance stage of only once a week. I began at three weekly visits.

I am a partially disabled veteran, so my copayments are not a factor.

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