Connect
Questions about the Use of a Trelegy Machine
Hello Everyone, Pt diagnosed with COPD and congestive heart failure this time last year. Has been readmitted 1/19/18 to 1/31/18 out for about 2 weeks and admitted again for 4 days for shortness of breath and slight fever. Went to the PCP Tues. for follow-up and there was talk of placing her on a triolgy machine. She currently uses an oxygen cannula during the day and a Bipap at night.
My questions are;
1)...Is this almost the same as a Bipap?
2)...How is it different?
3)...Do they prescribe this for end stage COPD?
4)...Does the use of a Triolgy machine mean permanent use?
5)...What are the pros and cons of use?
6)...How do patients feel about use it?
7)...Any questions to ask the pulmonary Dr next Friday?
Any help is greatly appreciated.
Like
Helpful
HugInterested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.
Connect
Hello @bosabear20 and welcome to Mayo Clinic Connect. Members like @cepheid815 @stewie and @ess77 may be able to share their experiences with you.
Was this your experience? If so, how long have you been using the Trilogy?
-
Like -
Helpful -
Hug
1 ReactionWhy do you think you have to put a tube in for a trilogy machine?
Does anyone know if a trilogy machine tells you if someone isnt breathing and has passed and does machine keep working like they are breathing. Thanks
Hi Ann, welcome to Mayo Clinic Connect. That is a very good question. Have you asked a pulmonologist? You could also contact the maker of the Trilogy machine https://www.usa.philips.com/healthcare/about/contact#!=
I'd be interested in what you learn.
Are you the caregiver for someone who uses a Trilogy machine?
What are your ABG's ? If your CO2 is at 51 or higher, the Trilogy 100 (or equivalent) VENT- is better than a CPAP to remove the CO2. I have high PCO2 54 (nor 35-45) - High PO2 142 (norm 75-100) - High CO3 33 (normal 22-26). My lungs are clear but oxygen stays low. I use the Trilogy 100 when sleeping, took me off the CPAP three months ago. I have Afib even after two ablations and two cardioversions. I have a Watchman in my heart to prevent blood clots / strokes from Afib. I have no heart blockage. I do have some pulmonary hypertension, never smoked. In my late 70's. I have specialists at UAB Birmingham, AL . We are all confused about what I should be doing differently. I am a nurse but don't understand my complicated symptoms. This is my first post here.
If your CO2 is at 51 or higher, the Trilogy 100 (or equivalent) VENT- is better than a CPAP to remove the CO2. I have high PCO2 54 (nor 35-45) – High PO2 142 (norm 75-100) – High CO3 33 (normal 22-26). My lungs are clear but oxygen stays low. I use the Trilogy 100 when sleeping, took me off the CPAP three months ago. I have Afib even after two ablations and two cardioversions. I have a Watchman in my heart to prevent blood clots / strokes from Afib. I have no heart blockage. I do have some pulmonary hypertension, never smoked. In my late 70's. I have specialists at UAB Birmingham, AL . We are all confused about what I should be doing differently. I am a nurse but don't understand my complicated symptoms. This is my first post here. Have any of you faced this type situation? I have major abdominal bloating, my doctors say my condition is serious. I don't know what else to do.
I have been on the Trilogy sleep system, for over a year, I Retain CO2, and have severe sleep apnea. I had been in ICU, before the Trilogy, and intubated because of the buildup of CO2, it is my Life saver. I can’t even imagine my life without it. If I fall asleep during the day, with only my Oxygen on(I’m on 4 liters 24 hrs a day) I will get on my machine, and take a nap, since the Trilogy “pulls” the CO2. And I can tell if CO2 has started grabbing on! I wasn’t diagnosed with COPD, until It was too late. And Yes I Smoked…for 50+ years‼️ I’m a fighter, and am 79 Years old!
-
Like -
Helpful -
Hug
2 ReactionsI have been using the Trilogy machine for 2 years now thanks to my sleep study doctor. She is not a pulmonologist but unlike my doctor and pulmonologist she was able to get the necessary test needed for the insurance to ok this Godsend of a machine. After the first night of using it I woke up refreshed, with energy and I actually dreamed. I hadn't done that in I don't know how long. I use a oxygenator with the machine. I am only 60 years old but was told that due to my condition I was now retired. Unfortunately my pulmonologist wants to remove me from this machine and put me on a bi-pap instead. He thinks I would do better with a non-invasive machine. I have no clue what non-invasive means. The only thing I can find is that this machine actually regulates itself to my breathing patterns whereas a bi-pap doesn't? Is this correct? If so, I have no idea why my doctor thinks this would be better and more beneficial for me.
-
Like -
Helpful -
Hug
1 ReactionWhy does my nose get ice cold when I use my trilogy machine? This usually happens within a half hour laying down at night.
It doesn't happen sitting up using it for 2 hours.
No……I wouldn’t think of anything other then a Trilogy, the hospital only has bp SPD, and I hate them, uncomfortable, and I don’t sleep but 3-4 hours with it…..