Do other long haulers suffer with brain changes? Seen any improvement?

My husband had covid brain. He has good days and bad days. He has improved somewhat but it has been very slow. I hope you recover quickly.

Unfortunately I was also diagnosed with NPH (Normal Pressure Hydrocephalus) in mid 2021 having had Covid at the beginning of the year. Because of the NPH I had brain surgery to install a shunt. Many of the symptoms as a Long Hauler are similar and I can´t seem to recover from NPH inspite of the shunt. All of my symptoms are neurological, including INCREASING Mild Cognitive Impairment or MCI. So the brain continues affected very badly.

I wonder if anyone else has NPH PLUS Long Covid.

I send long Covid newcomers this and suggest they talk to their doctor-

Resources/support:

Mayo Clinic Long Covid
https://www.mayoclinic.org/coronavirus-covid-19/post-covid-19-conditions
Mayo Clinic message board/crowdsourced ideas/community
https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/
Brain fog latest research:

“Long COVID: how lost connections between nerve cells in the brain may explain cognitive symptoms” – Swedish study summary
https://theconversation.com/long-covid-how-lost-connections-between-nerve-cells-in-the-brain-may-explain-cognitive-symptoms-192702
“SARS-CoV-2 promotes microglial synapse elimination in human brain organoids”
https://www.nature.com/articles/s41380-022-01786-2.pdf

I am also new to site. Post covid since march er visit where labs normal. Labs by another doctor found pituitary gland and thyroid affected with levothyroxine prescribed. Neurologist brain mri covid created brain lesions and benign growth stated “it will be fine”. Referred to Speech Therapist for cognitive/memory issues and found one of suggested word search, puzzle, crossword, and sudoku for short tolerated time each day helped. I stopped as soon as any symptom started and noticed how other thinking/memory tasks during day triggered physical symptoms to plan/pace better for less down time! Hope this helped🙂

Severe sweating, headaches. Cough, taste and smell

I just spent 2 weeks at Mayo Clinic in the post-Covid clinic. My main symptoms are crippling shortness of breath, fatigue, memory issues, joint pain and headaches . I have had so many tests. They found cytokine abnormalities and have referred me to their post Covid program which I will start beginning in February. Essentially it’s that the fight or flight response of the sympathetic nervous system doesn’t shut off like it should, and causes big problems. The treatment is to try to get the body out of fight or flight, to let the parasympathetic system take over. Relaxation techniques, meditation, rest, paced return to activity. I’ll post again once I take the course. Hope this is helpful information.

Good luck to you. You’re lucky your finding answers.

I could only wish someone cared that much. But has never been an option for me.

Hi, I had severe problems after Covid with doing daily tasks, managing my house, remembering how to make up my bed, reading comprehension, adding numbers, reading comprehension, and forgetting how to do things I’ve always done. I was finally diagnosed with mild cognitive impairment. This turned my world upside down bc prior to Covid I was a constant traveler and self employed. I can no longer do my work. I’ve been seeing a speech therapist who is providing cognitive therapy . The improvement is very slow but worth continuing. I’m very sad about loosing my work which I loved. Hope you can get a through work up

I had COVID in June 2022. The thing that helped my cognitive issues was hyperbaric oxygen therapy. I noticed improvement after the first “dive,” and after 5 treatments I was back to normal as far as brain issues. It didn’t help my muscle weakness, though. My 5 treatments were each 1 hour at 2.0 atm. One per day for 5 straight days.