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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hello @clark1, Welcome to Connect. My favorite sites for learning more about Neuropathy and possible treatments are these two:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
Here are a few discussions on neuropathy that you might find helpful for learning about treatments and coping methods:
-- Neuropathy 101 - Knowledge is power?: https://connect.mayoclinic.org/discussion/neuropathy-101-knowledge-is-power/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Neuropathy Pain at Night: What helps?:
https://connect.mayoclinic.org/discussion/night-pain-2/
-- Neuropathy - What physical activities help?:
https://connect.mayoclinic.org/discussion/neuropathy-22/.
Do you mind sharing a little more about your diagnosis and any treatments you've tried?
Replies to "Hello @clark1, Welcome to Connect. My favorite sites for learning more about Neuropathy and possible treatments..."
My diagnosis in March 2020 was "mild motor predominant length dependent peripheral neuropathy" after an Electromyography test at the Mayo Clinic Rochester. I was actually there for an appointment for my Restless Leg Syndrome a month or so earlier when the Neurologist noticed something during the exam that prompted her to schedule that test. My only symptoms at that time were rare occasional tingling in my foot...no pain.
Fast forward to the present, my syptoms are mostly continuous tingling with occasional daily cramping in my toes, and sudden blasts of sharp foot pain....which goes away within a minute.
I'm trying to prepare myself for what's to come. Besides RLS, I also have Tinnitus, which has become severe since 2018, and reacts to most meds with increased pulsing and volume.
I'm aware that most forums are frequented by people who are seeking help and have stories of severe reactions to diseases. But I'm looking for some positive feedback on treatments and lifestyle that allow you to live with this disease. My life has been a battle and I don't know how much fight I have left. I'm 71 years old. Thank you for listening.
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Thank you!