Living with Stage 4 Liver Cancer

Posted by cu2 @cu2, May 17, 2022

Has anyone been diagnosed with Liver Cancer, I'm just seeking knowledge and my emotions are all over the place. Everyday is a gift and I will forever be Grateful, Thankful and Blessed 🙌

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@cu2, welcome to Mayo Clinic Connect. What a lovely picture of you. I'll hope you'll add it to your profile.

Being diagnosed with stage 4 cancer is tough. No wonder your emotions are all over the place. While Michelle @wifemom3 has a different type of cancer (colorectal), I'd like to bring her into this discussion as she was recently diagnosed with stage 4. Like you, she's looking for support and, at the same time, brought hope and blessings into her first post here: https://connect.mayoclinic.org/discussion/hi-stage-4-here/

Cu2, is this a new diagnosis for you? Will you have treatments? What are your blessings today?

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@colleenyoung

@cu2, welcome to Mayo Clinic Connect. What a lovely picture of you. I'll hope you'll add it to your profile.

Being diagnosed with stage 4 cancer is tough. No wonder your emotions are all over the place. While Michelle @wifemom3 has a different type of cancer (colorectal), I'd like to bring her into this discussion as she was recently diagnosed with stage 4. Like you, she's looking for support and, at the same time, brought hope and blessings into her first post here: https://connect.mayoclinic.org/discussion/hi-stage-4-here/

Cu2, is this a new diagnosis for you? Will you have treatments? What are your blessings today?

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Hi well no I was diagnosed 12/2019 and I have been in treatment now over a year now. I am so Blessed too be able to share my story to or with whomever needs to be encouraged.

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cu2, I was moved by your post title. Living. If you share nothing else, this statement says it all. Living, in spite of this disease.

Thank you for sharing your image. How beautiful. ❤️

Praying for you today.

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@cu2

Thank you!!!!

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Hi. As mentioned above I am @wifemom3. And I was recently diagnosed with stage 4 colon cancer with mets to the lungs. And I agree, my emotions are all over the place. And at times at different places at the same time. It is so hard to grasp much less process the diagnosis. My best advice is, be kind to yourself. Do what you can. And take one day at a time. My therapist has encouraged me to think of 3 things every day to be grateful for. It is hard not to focus on what is before us. Metastatic disease is the diagnosis but not who we are. We are warriors from different backgrounds supporting and uplifting each other.
Have a positive and uplifting day today.

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Cu2 - I have appreciated your comments and positive attitude. We never thought our names would be in the percentage of the population contracting the BIG “C”; but here we are after hearing and absorbing that diagnostic diagnosis!
It is early on for me, but it seems like the sooner we can ACCEPT our dx the better we will be.
We found this avenue of information and support and we are not ALONE!!!!
Thank you CU2 for your uplifting way of dealing with “our cancer” and offering to be of help to others.
You are special! Bette

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@dbamos1945

Cu2 - I have appreciated your comments and positive attitude. We never thought our names would be in the percentage of the population contracting the BIG “C”; but here we are after hearing and absorbing that diagnostic diagnosis!
It is early on for me, but it seems like the sooner we can ACCEPT our dx the better we will be.
We found this avenue of information and support and we are not ALONE!!!!
Thank you CU2 for your uplifting way of dealing with “our cancer” and offering to be of help to others.
You are special! Bette

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I'm tagging @cu2 to make sure she sees your lovely post, @dbamos1945. I agree that her posts and spirit are uplifting and her offers of help and hope inspiring.

How are you both doing?

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I didn’t do well over the holidays, but feeling physically and emotionally stronger lately. I get 3rd Somatuline Depot injection tomorrow… still on learning curve on best way to handle side effects. I feel fortunate that I am functioning quite well while others are suffering. Thanks for asking Colleen! Bette

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@dbamos1945

I didn’t do well over the holidays, but feeling physically and emotionally stronger lately. I get 3rd Somatuline Depot injection tomorrow… still on learning curve on best way to handle side effects. I feel fortunate that I am functioning quite well while others are suffering. Thanks for asking Colleen! Bette

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Welcome to our group. Looks like Somatuline Depot is the First Line long lasting drug of choice for you. It is good you are tolerating it well. My chemo side effects are different than the ones listed in information for Somatuline Depot. Being involved in your treatment is important. Bile Duct and Liver cancers are mine and my treatment side effects are fatigue, brain fog, forgetfulness, lack of appetite, the need to drink lots of water to keep my kidneys clear and general weakness. I take naps as needed. Stay in touch. John in Houston

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@colleenyoung

I'm tagging @cu2 to make sure she sees your lovely post, @dbamos1945. I agree that her posts and spirit are uplifting and her offers of help and hope inspiring.

How are you both doing?

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Hello Colleen, I’m doing well as expected. Thanks for asking. You know I read on here a lot and it gives me inspiration too have courage. What others or going through or experiencing, the Courageous strength that is shared here. I see resiliency that gives me courage to keep pressing forward. February 10th will be 2yrs of the Lanreotide injection for me. I have to say my journey Living with Stage 4 Liver Cancer is has still not been digestible for me yet. I mean I think everything seems to be stable for as the treatment but mentally I have good days and bad days. I am just now getting use to the commercials on TV about Cancer without panicking, and I have to be honest and say this is not a picnic in the park living with this thing called Cancer. I have been doing well and the Lanreotide injection has been less bothersome especially the injection site it doesn’t swell as much now. I have my next MRI on January 27th this always has my emotions all over the place and I be scared too. I know today I am very fortunate to be at this point with my treatment when there’s other people going through a lot more than I can imagine. I don’t know about tomorrow but today good diagnosis and bad diagnosis GOD IS GOOD. We all are experiencing some form of Cancer that we did not ask for but we are all in this together. Y’all give me Courage that I thought I would not have, Strength to share my thoughts with what I go through, I’m Grateful and Thankful for each and every one of you here in this portal. We all have HOPE 🌻🌻🌻

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