Can one stop taking prolia after the first shot?

Posted by imatine @imatine, Mar 6, 2021

Hello everyone, my mom is 84 year old and she got osteoporosis since 8 years. She took prolia last October. She started to feel a lot of pain in her legs now. I am thinking she shouldn't take the 2nd shot but I am afraid of the consequences. Did anyone here stop the prolia at an early stage!? If so what happened? Thank you

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I am concerned about the cost of this.
My outpatient hospital billed a little over $9000!
My out of pocket was over $1700
I can not afford this 2 times a year.
I called the company and they have a assistance program of $1500 a year.
How do people afford this shot 2 times a year?
I am 3 years from Medicare. Does Medicare pay this>?

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@colleen67

Jacksonville, FL... Prolia Rebound Effect/Results From Studies Are Sobering
Prolia 1 injection w/horrendous side effects. I wasn't told about the termination of Prolia without "irreversible side effects: multiple vertebral fractures and rapid reduction of bone mineral density" from my Endocrinologist. A double-edged sword for sure! And the time you have after termination to take action is concerning. The 3 medical staff I have spoken to about the "rebound effect" from Prolia are not familiar with it.
Anyone, please...some actual first hand experience with this???

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Update my fellow sisters in battle: with nothing other than diet and specific weight bearing exercises, my dexa scan scores show:
Neck/same
Lumbar/slightly worse
L Hip/better

I'm thrilled! I'll continue to update and my hope is this may be an alternative, a healthy alternative to osteo meds. Lord, let there be peace and success in the journey!!!

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@callalloo

I would ask why the doctor is so insistent upon Prolia. It's hardly the only drug and in many ways the least good of the options out there. So insisting upon Prolia is curious. I would probably also just get a different doctor if the explanation is unsatisfactory. We're are the buyers of medical care and I treat it like other consumer decisions.

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Actually she’s insisting on Reclast. I’m small and slim so she’s sure I’m going to fall over and shatter. I dread my July appointment with her because she’ll be pressuring me again. I like her so much but I don’t need this. I need serenity.

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@jagilles

I am concerned about the cost of this.
My outpatient hospital billed a little over $9000!
My out of pocket was over $1700
I can not afford this 2 times a year.
I called the company and they have a assistance program of $1500 a year.
How do people afford this shot 2 times a year?
I am 3 years from Medicare. Does Medicare pay this>?

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Yes, Medicare does pay for Prolia as long as it is given in a doctor's office, fusion center or oncology center.

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@pami

Yes, Medicare does pay for Prolia as long as it is given in a doctor's office, fusion center or oncology center.

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That comes from Medicare part B so depending on your Part B plan, you may need to pay your deductible first or a copayment.

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Hi everyone...I had my first Prolia shot on 4/6/23 and had great results for 1st 6 days. On day 7, I woke up and was in so much pain I literally couldn't move. Had to walk with walker for several days, and couldn't leave house for over a week. The list of horrible side effects goes on from there. There is no chance I'll be getting a 2nd shot, and was very worried about the rebound effect of stopping. I did a lot of research on this, and was very happy to find that the rebound thing only starts to take effect after 2nd shot, and 12 months of treatment. It gets worse the longer you are on it. Hope this info helps anyone else who is a one and done with Prolia.

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@maureenanne

Hi everyone...I had my first Prolia shot on 4/6/23 and had great results for 1st 6 days. On day 7, I woke up and was in so much pain I literally couldn't move. Had to walk with walker for several days, and couldn't leave house for over a week. The list of horrible side effects goes on from there. There is no chance I'll be getting a 2nd shot, and was very worried about the rebound effect of stopping. I did a lot of research on this, and was very happy to find that the rebound thing only starts to take effect after 2nd shot, and 12 months of treatment. It gets worse the longer you are on it. Hope this info helps anyone else who is a one and done with Prolia.

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I wish we would call a spade a spade. Instead of calling severe reactions side effects, we should call them adverse reactions and report them to the FDA. There us a form on their website to gather important information such as this.

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@maureenanne

Hi everyone...I had my first Prolia shot on 4/6/23 and had great results for 1st 6 days. On day 7, I woke up and was in so much pain I literally couldn't move. Had to walk with walker for several days, and couldn't leave house for over a week. The list of horrible side effects goes on from there. There is no chance I'll be getting a 2nd shot, and was very worried about the rebound effect of stopping. I did a lot of research on this, and was very happy to find that the rebound thing only starts to take effect after 2nd shot, and 12 months of treatment. It gets worse the longer you are on it. Hope this info helps anyone else who is a one and done with Prolia.

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Are you sure it was a reaction to the Prolia? It seems like a long time passed before the reaction. I have never had any reaction to Prolia shots.

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@dna41

Are you sure it was a reaction to the Prolia? It seems like a long time passed before the reaction. I have never had any reaction to Prolia shots.

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Yes, I'm positive it was the Prolia. This drug peaks in your system in 7 thru 10 days. That's when the nightmare started. I know many people who have taken this for years with no problem. I have an autoimmune disease and this drug created a massive inflammatory response in my body. So, never again for me.

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I had two Prolia shots six months apart and experienced devastating chronic pain from waist down after both, but especially the second shot. I stopped last year and did physical therapy for six weeks and now going to an orthopedic surgeon because I still have some pain in my hips and legs. So far so good off Prolia. In my case the cure is worse than the disease. I am walking about 3 miles 3 times a week, (I used to walk 5 miles 4 to 5 times a week before Prolia)), and I’m doing light weight bearing exercises 4 times a week. I still can not cross my legs and have some pain, but for the most part, no repercussions from stopping Prolia.

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