1. < Post-COVID Recovery & COVID-19

Long haul covid: reactive arthritis and possibly GBS

Posted by jcg @jcg, Jun 23, 2022

I had covid for the second time back in August of 2021. 7 days post covid and I was fine. Dealing with fatigue and headaches. On day 7 I had severe pain in both hips. Day 8 it had moved to my knees. By day 10 I couldn't sit, stand or lay down without excruciating pain. I go back to the dr only to find I have post covid reactive arthritis. I start treatment and after about 6 days the pain was considerably better. On day 7 I start having numbness in my feet moving rapidly up my legs. It's wasn't completely numb. It was like the feeling on your hand being asleep without the pins and needles feeling.Within 2 days I had lost control of my legs. It was like my brain and my legs weren't working together. I had numerous test ran and my nerve function between my spine and legs was fine, but my nerve function between my brain and spine was affected. During this time the brain fog set in and the dr told me I was being treated for Guillain-Barré syndrome. For the next 8 & 1/2 weeks I was in the dr office 3 times a week for blood work, shots and different test. After all this time I still have lingering effects. The symptoms are rare and mild but I have not reached 100% . Has anyone else had any experience like this?

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bonnie95mc | @bonnie95mc | Dec 10, 2022
In reply to @bonnie95mc "I have d Covid for 8 days then developed tingling in my fingers and toes. Within..." + (show)
@bonnie95mc

I have d Covid for 8 days then developed tingling in my fingers and toes. Within one day it moved up my legs and I couldn’t walk, could barely move my legs. Upper body weak but functional. It was diagnosed as the rare. Disorder GBS (Guillane Barre disease) which I understand many others have gotten post Covid . I am now in a rehab hospital post infusions and am hoping for a good outcome . One of the biggest challenges has been level 10 upper back pain. Anyone else have experience with this?

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Thanks Lorilee. Appreciate the input- I will check it out. Hope you are doing OK.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 4, 2023
In reply to @bonnie95mc "I have d Covid for 8 days then developed tingling in my fingers and toes. Within..." + (show)
@bonnie95mc

I have d Covid for 8 days then developed tingling in my fingers and toes. Within one day it moved up my legs and I couldn’t walk, could barely move my legs. Upper body weak but functional. It was diagnosed as the rare. Disorder GBS (Guillane Barre disease) which I understand many others have gotten post Covid . I am now in a rehab hospital post infusions and am hoping for a good outcome . One of the biggest challenges has been level 10 upper back pain. Anyone else have experience with this?

Jump to this post

Hi Bonnie, I moved your message about developing Guillain-Barré syndrome (GBS), a rare disorder where the body's immune system damages nerve after Covid infection to this existing discussion.
- Long haul covid: reactive arthritis and possibly GBS https://connect.mayoclinic.org/discussion/long-haul-covid/

I did this so you can read previous posts and connect with others easily.

Bonnie, how are you doing in rehab? Dealing with level 10 pain in your upper back must be really hard. Are you getting physio to help? Or other approaches?

REPLY
1 reply
bonnie95mc | @bonnie95mc | Jan 5, 2023
In reply to @colleenyoung "Hi Bonnie, I moved your message about developing Guillain-Barré syndrome (GBS), a rare disorder where the..." + (show)
@colleenyoung

Hi Bonnie, I moved your message about developing Guillain-Barré syndrome (GBS), a rare disorder where the body's immune system damages nerve after Covid infection to this existing discussion.
- Long haul covid: reactive arthritis and possibly GBS https://connect.mayoclinic.org/discussion/long-haul-covid/

I did this so you can read previous posts and connect with others easily.

Bonnie, how are you doing in rehab? Dealing with level 10 pain in your upper back must be really hard. Are you getting physio to help? Or other approaches?

Jump to this post

I am recovering well from Covid- related Guillane-Barre (GBS.). The back pain which was a 10 level- only occurring at night- has self resolved. I am walking again and driving- most normal activities so this is a great relief after the lower body paralysis. I attribute my recovery to a quick diagnosis, immediate IVIG treatment and being in good shape physically when it started. GBS is very scary but I understand most people fully recover in time.

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