Long haul covid: reactive arthritis and possibly GBS

Posted by jcg @jcg, Jun 23 6:39pm

I had covid for the second time back in August of 2021. 7 days post covid and I was fine. Dealing with fatigue and headaches. On day 7 I had severe pain in both hips. Day 8 it had moved to my knees. By day 10 I couldn't sit, stand or lay down without excruciating pain. I go back to the dr only to find I have post covid reactive arthritis. I start treatment and after about 6 days the pain was considerably better. On day 7 I start having numbness in my feet moving rapidly up my legs. It's wasn't completely numb. It was like the feeling on your hand being asleep without the pins and needles feeling.Within 2 days I had lost control of my legs. It was like my brain and my legs weren't working together. I had numerous test ran and my nerve function between my spine and legs was fine, but my nerve function between my brain and spine was affected. During this time the brain fog set in and the dr told me I was being treated for Guillain-Barré syndrome. For the next 8 & 1/2 weeks I was in the dr office 3 times a week for blood work, shots and different test. After all this time I still have lingering effects. The symptoms are rare and mild but I have not reached 100% . Has anyone else had any experience like this?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 group.

Welcome @jcg. I'd like to bring fellow members @rocketjs @aztennisguy @tiredmommy @outdoorslass into this discussion as they have shared similar experiences, which you can read more about here:
– Joint inflammation and muscle pain after COVID https://connect.mayoclinic.org/discussion/joint-inflammation-and-adults-possibly-from-covid/

Jcg, you've certainly had a confounding and difficult long haul with COVID. Am I reading correctly that while you had extreme symptoms, the worst of them have relented somewhat. What are the remaining lingering effects? What helps you?

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The lingering effects are mild joint pain in knees and ankles, fatigue and mild brain fog. Moving forward I'm told I should never be vaccinated for the flu or covid due to the Guillain-Barré syndrome.

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