1. < Polymyalgia Rheumatica (PMR)

When in PMR remission: What's your experience with covid vaccine?

Posted by pacarolyn @pacarolyn, Oct 21, 2022

I have delayed getting any of the first Covid vaccines because I was waiting for the NOVAVAX vaccine that was more traditional in its development. It is now available and approved for use. Not many pharmacies have it but COSTCO does. Has anyone gotten this vaccine. What has been your experience so far. It requires two shots, no booster series mentioned but can be taken as a booster for other vax.
https://www.cdc.gov/vaccines/covid-19/info-by-product/novavax/index.html

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

scpartain | @scpartain | Jan 31, 2022

PMR and Covid vaccine: Guidance from College of Rheumatology
Many of us in this group have, like myself, experienced a flare or onset of PMR after receiving the Covid vaccine. The decision to proceed with additional doses such as second shots or boosters has perplexed many of us and there is very little guidance available. Here is a link to the current guidelines of the American College of Rheumatology for patients with autoimmune rheumatic and muscular skeletal disorders: https://www.rheumatology.org/Portals/0/Files/COVID-19-Vaccine-Clinical-Guidance-Rheumatic-Diseases-Summary.pdf
I hope this will be of help to those seeking guidance in this regard.

REPLY
1 reply
girastancil | @girastancil | Oct 13, 2022
In reply to @scpartain "PMR and Covid vaccine: Guidance from College of Rheumatology Many of us in this group have,..." + (show)
@scpartain

PMR and Covid vaccine: Guidance from College of Rheumatology
Many of us in this group have, like myself, experienced a flare or onset of PMR after receiving the Covid vaccine. The decision to proceed with additional doses such as second shots or boosters has perplexed many of us and there is very little guidance available. Here is a link to the current guidelines of the American College of Rheumatology for patients with autoimmune rheumatic and muscular skeletal disorders: https://www.rheumatology.org/Portals/0/Files/COVID-19-Vaccine-Clinical-Guidance-Rheumatic-Diseases-Summary.pdf
I hope this will be of help to those seeking guidance in this regard.

Jump to this post

hi, I have PMR and also had covid in mid July. Should I get the "new" covid booster? If yes, when? I'm a bit concerned the shots may have been what started my PMR back in March 2022. thank you

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suetex | @suetex | Oct 22, 2022

Was already receiving methylprednisolone for PMR when I started the Moderna shots. Have taken the two initial shots and three boosters to date. Only had mild side effects with the first shot. Not had Covid (yet). No experience with the other vaccine.

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adia | @adia | Oct 22, 2022

I have had 4 Moderna vaccines and 1 Pfizer bivalent. I felt a bit puny the day after each one. I have not had COVID. I am a bit suspicious that perhaps one of the boosters could have activated my inflammation and PMR diagnosis.

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1 reply
loyal | @loyal | Oct 22, 2022

I have had two covid Moderna shots and 1 booster. Have had covid twice. I think the PMR came after covid booster .
Recently got flu shot. At this time taking no more covid shots.

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1 reply
marieirene | @marieirene | Oct 24, 2022

It was medically recommended to me not to get another booster or flu shot this year. I’ve had Covid & 2 boosters.

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1 reply
christi48 | @christi48 | Dec 19, 2022

I'm wondering if people who are or were in remission got vaccines or boosters and, if so, did they cause a flare?

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3 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 22, 2022
In reply to @christi48 "I'm wondering if people who are or were in remission got vaccines or boosters and, if..." + (show)
@christi48

I'm wondering if people who are or were in remission got vaccines or boosters and, if so, did they cause a flare?

Jump to this post

Hi @christi48, I moved your message to this existing discussion:
- When in PMR remission: What's your experience with covid vaccine? https://connect.mayoclinic.org/discussion/pmr-and-covid-vaccine-2/

I did this so you can read the previous posts and connect easily with others on the topic of vacinnation while in remission with PMR. You might also be interested in this older, but related discussion:
- Is it safe to get the Corona Virus (COVID-19) vaccine with PMR? https://connect.mayoclinic.org/discussion/pmr-and-corona-virus-vaccine/

REPLY
1 reply
christi48 | @christi48 | Dec 22, 2022
In reply to @adia "I have had 4 Moderna vaccines and 1 Pfizer bivalent. I felt a bit puny the..." + (show)
@adia

I have had 4 Moderna vaccines and 1 Pfizer bivalent. I felt a bit puny the day after each one. I have not had COVID. I am a bit suspicious that perhaps one of the boosters could have activated my inflammation and PMR diagnosis.

Jump to this post

Me, too!

REPLY
christi48 | @christi48 | Dec 22, 2022
In reply to @colleenyoung "Hi @christi48, I moved your message to this existing discussion: - When in PMR remission: What's..." + (show)
@colleenyoung

Hi @christi48, I moved your message to this existing discussion:
- When in PMR remission: What's your experience with covid vaccine? https://connect.mayoclinic.org/discussion/pmr-and-covid-vaccine-2/

I did this so you can read the previous posts and connect easily with others on the topic of vacinnation while in remission with PMR. You might also be interested in this older, but related discussion:
- Is it safe to get the Corona Virus (COVID-19) vaccine with PMR? https://connect.mayoclinic.org/discussion/pmr-and-corona-virus-vaccine/

Jump to this post

Thank you!

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