Just diagnosed with Endometrioid Adenocarcinoma: What to expect?

Posted by rose53 @rose53, Oct 21, 2021

I was just diagnosed with this uterine cancer. I am 68 and I'm so freightened. Waiting to see doctor for hysteroctomy. This is all I know. I had a biopsy done and this is the result. Anyone please let me know what ro expect and do before hand and any suggestions are embraced. ❤

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I finished my 28th external beam radiation therapy this week and had a MRI to check on the tumor size. It was 1.6 cm when I was diagnosed with the reoccurance and the MRI shows that it is now 1.1cm. I wondered if anyone else had similar results.

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@cmb2022

I finished my 28th external beam radiation therapy this week and had a MRI to check on the tumor size. It was 1.6 cm when I was diagnosed with the reoccurance and the MRI shows that it is now 1.1cm. I wondered if anyone else had similar results.

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@cmb2022 This is good news, right? What does your doctor say about these results and does this change anything in your treatment plan?

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@naturegirl5

@cmb2022 This is good news, right? What does your doctor say about these results and does this change anything in your treatment plan?

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The MRI was late this afternoon, and my dr asked that I call his office Monday. I hope these are good results. I was hoping the tumor would be much smaller, but I have no idea what a normal amount of shrinkage should be.

Thank you so much for always encouraging me!

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I am in A very similar situation. I was diagnosed 14 days ago. I have seen the oncology gynecologist. My surgery was scheduled 16 days after my diagnosis which will be Wednesday. My daughter is driving in to stay with me as I type this. She lives 750 miles away. I have been through a whole variety of emotions. P, from panic to needing to know everything I could find on line. I retired as a nurse in September, so I had some knowledge. Don’t know if that helps or is a hindrance. My surgery is scheduled robotically as an outpatient. I have pathway to follow which includes high carb diet for two days prior, gatorade 32 ounces 4-6 hours before surgery. Then 8 ounces 3 hours before with 1000 mg Tylenol and 800mg of Ibuprofen. This is totally new for me. Had spinal surgery 5 months ago, no prep like this. I know I won’t have a final diagnosis til the final path comes back, but my initial Path report was FICO stage 1, well differentiated adenovarcinona which has a favorable prognosis. Still I am scared. I live alone, so no one to talk this through and I don’t want to scare my daughter. Telling her was the hardest part. Keep me in your prayers.

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@jlb333

I am in A very similar situation. I was diagnosed 14 days ago. I have seen the oncology gynecologist. My surgery was scheduled 16 days after my diagnosis which will be Wednesday. My daughter is driving in to stay with me as I type this. She lives 750 miles away. I have been through a whole variety of emotions. P, from panic to needing to know everything I could find on line. I retired as a nurse in September, so I had some knowledge. Don’t know if that helps or is a hindrance. My surgery is scheduled robotically as an outpatient. I have pathway to follow which includes high carb diet for two days prior, gatorade 32 ounces 4-6 hours before surgery. Then 8 ounces 3 hours before with 1000 mg Tylenol and 800mg of Ibuprofen. This is totally new for me. Had spinal surgery 5 months ago, no prep like this. I know I won’t have a final diagnosis til the final path comes back, but my initial Path report was FICO stage 1, well differentiated adenovarcinona which has a favorable prognosis. Still I am scared. I live alone, so no one to talk this through and I don’t want to scare my daughter. Telling her was the hardest part. Keep me in your prayers.

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I've been praying for you since your original post. I'm nearly 6 weeks post op and kept good daily notes of my surgery and after. My surgery went very well and I had no pain. I watched youtube videos - women who had a hysterectomy and their tips. Also I loved videos by a physical therapist one was how to sleep after a hysterectomy, another was how to get out of bed after a hysterectomy and another was how to get rid of gas after a hysterectomy. You are welcome to ask questions and/or send me a message. Take one day at a time. Each day you will feel better. On the day of surgery, ask questions. The nurse will come in, the doctor, the anesthesiologist, etc. Ask them questions if you have them. When the anesthesiologist came in and introduced himself, I told him how happy I was to meet him! He said he wanted to review what he would be doing and how much anesthesia to give me....I told him I have never been pregnant nor had kids and a total wimp with pain so give me more than less - keep me as pain free as possible after surgery as long as possible! He laughed and said he made a note of it lol! All I can say, I LOVE that guy. I still haven't had any pain lol. When I woke up everyone was asking me if I had pain and praise God I was able to say no! I had discomfort, felt 60% of myself when I woke up...each day I felt about 5% better. They only told me to alternate advil and tylenol every 6 hours and after the 3rd day I didn't take anything. I was told by my regular gyn..being relaxed, in good spirits, thinking positively, praying/meditation will help with my healing - it did. Try to relax, prepare, and take one day at a time.

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Next week I will have the first of 3 aggressive high dose brachytherapy treatments. I am quite nervous, but anxious to get these behind me. I had an MRI and my tumor is about a third smaller than when I began.

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@cmb2022

Next week I will have the first of 3 aggressive high dose brachytherapy treatments. I am quite nervous, but anxious to get these behind me. I had an MRI and my tumor is about a third smaller than when I began.

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@cmb22. It's such good news that your previous treatment (external beam radiation that you posted about earlier in this discussion) reduced the tumor by one third. I had high dose brachytherapy and while I was very nervous for the first one since it was a complete unknown for me I found it to be surprisingly not all that uncomfortable. I felt SO good after the first brachytherapy that it was over with and I felt Ok that I celebrated by having ice cream. It was January in Minnesota then. Who eats ice cream in winter? I did!

Will you let me know how it goes for you next week?

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@ejrdevries

I was diagnosed with endometrial adenocarcinoma in 2007. My gyn called to tell me that he wanted to refer me to the local gyn/onc team. He told me that when cancer is present he always refers to gyn/onc for surgery because that surgery involves tissue that only a gyn/onc has the ability to remove: uterus, tubes, ovaries, 29 lymph glands, omentum. All of these were removed by my gyn/onc in a 4 hour surgery. The lab reported cancer in uterus and in 11 of the lymph glands. I had 3 rounds of high dose chemo, 25 days of radiation, 3 internal radiation, and 3 more rounds of chemo. I saw my doctor every three months for a couple of years, then every 6 months for three more years and once a year until my 10 years were completed. It is now 14 years and no more evidence of cancer.

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I am so glad I found this post, it gives me some hope with my third round of chemo tomorrow,
and will be starting the 25 rounds of radiation soon after, then 2 brachy, and 3 rounds of chemo follow-up, were yours the same strength as the first three chemo??? Wish it was less severe I get bad bone pain starting at day 3 & 4 and everything gets better around week later. Constipation till day 3 & 4. Hoping this time will be better. But, am more hopefully this is the way to go. Thank You for your post.

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@naturegirl5

@cmb22. It's such good news that your previous treatment (external beam radiation that you posted about earlier in this discussion) reduced the tumor by one third. I had high dose brachytherapy and while I was very nervous for the first one since it was a complete unknown for me I found it to be surprisingly not all that uncomfortable. I felt SO good after the first brachytherapy that it was over with and I felt Ok that I celebrated by having ice cream. It was January in Minnesota then. Who eats ice cream in winter? I did!

Will you let me know how it goes for you next week?

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@naturegirl5
Last week went surprisingly well. I am happy to say that those are done and hopefully I can move on. This week I am super tired and have a lot of stomach cramping and some swelling. My radiation oncologist said to expect that. Now we wait for another MRI in February and pray for the tumor to be gone.

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