MCI to Dementia: What can I expect in the future?

I have tarvid dyskinesia and can’t take care of my husband. Is there any financial help from the dementia he has in our situation?

https://www.alz.org/Help-Support/Caregiving/Financial-Legal-Planning/Insurance#government. This may help. Please also check at your State's Department of Health and Human Services. Every stat has DPHHS, usually a toll free line, you might also what to check into disability payments or support from your state Medicaid or the Social Security Administration.

Google " Area Agency on Aging near me", call and make an appointment to talk with one of their staff- it's all free- your tax dollars at work. They have lots of information about all the issues you're asking about. If you don't use Google, call your town hall and ask for their number. EVERY county in the US has an Area Agency on Aging and it's services are FREE.

My husband was recently diagnosed with MCI. Would love to have your information. Thx.

He's always been a bright, can do anything, kind of guy. My mother had Alzheimer's, so I thought I'd be the one having memory problems. I'm seeing so many changes in just a few months. He can't remember how to pay bills, had trouble turning the clocks back one hour when daylight savings time ended, has trouble regulating his temperature when he goes to bed, etc. He can still drive, but can't remember how to find his way to places we've gone for years. Had a follow-up memory test in March.

Bill has MCI or mild dementia. Plus numerous small health problems. The MCI started out with him having problems using his computer, DVD, remote, phone, etc. Forgetting words and in some cases relatives names. He does really well at doctor appointments and they don't see/believe what I live with at home.
Recently he was assessed for hospice and it was recommended by the guy who came to the house - but the doctor who just looked at his medical records turned him down (a lot worse since then). He has lost a lot of weight - doesn't want to eat. He has now added lack of bowel control to lack of bladder control. His moods, even with medications, swing from angry to loving. A constant yoyo. He has had at least 10 falls since last April that I know of. Sometimes he admits he had falls back then that he didn't tell me about as he was able to get himself up - which he can no longer do.
From everything I've read he should qualify for hospice, which would make things better for him. And for me, having more help. It is amazing the 'show' he can put on for doctors! Makes me wonder if he is lying to them or to me??? He wants me to wait on him 24/7.

Please look up vascular dementia on this website, my husband has it and mirrors everything you’ve described about yours.
For Hospice, the doctor has to certify that death is expected within 6 months, the certification can be renewed twice. People with vascular dementia, on average, live 5-8 years after diagnosis, so your doctor will be reluctant to certify for hospice, as that has been identified as a key area of Medicare/Medicaid fraud. Other dementia diagnoses people can live a lot longer.

Because hospice is intended for those who are likely to die within 6 months, hospice may not be the right place for Bill. From what you wrote, an assisted living or continuing care community seem like good alternatives for him and would relieve you.

Yesterday he was certified. The nurse said she expects anywhere from days to weeks for her experience. He lost a lot more weight in past two weeks, now at 149 - bones standing out.
By seven last night they had a hospital bed, wheelchair, bedside commode set up for him at home. Also medications arrived for his pain and diarrhea.

Another nurse due today. Great granddaughter coming over to hang out with us.

A relief to have all of the help. And have him still at home where he wants to be.

This is wonderful news, I’m so glad for you both. Now, when they want to schedule a Hospice volunteer and a chaplain (non-denominational) visit, please say, “Yes”, and use that time to take a walk, wander around Target, meet a friend, etc. The aide can do anything related to Bill’s care, so take advantage of that- separate out his laundry, show her what he likes to eat for snacks and a meal if the aide’s visit covers that time. The social worker will be a big person of support for you- you can vent and cry, no need to be strong.
My dad had Hospice, he accepted care, showers, food, and meds SO much easier from the staff than from my mom.
An aside, he served in WWII in Europe and saw terrible things related to combat and several Holocaust concentration camps, which he NEVER talked about with us. After his death, his main nurse, aide, and the social worker told us that he had spent hours unburdening his heart with what he experienced and his anger and frustration he felt while a very young soldier.They told us Hospice patients will often do this “life review” with staff who become close, they think they are burdening family members to talk about it with them.