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← Return to MCI to Dementia: What can I expect in the future?
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MCI to Dementia: What can I expect in the future?
Caregivers: Dementia | Last Active: Dec 17, 2022 | Replies (61)Comment receiving replies
Bill has MCI or mild dementia. Plus numerous small health problems. The MCI started out with him having problems using his computer, DVD, remote, phone, etc. Forgetting words and in some cases relatives names. He does really well at doctor appointments and they don't see/believe what I live with at home.
Recently he was assessed for hospice and it was recommended by the guy who came to the house - but the doctor who just looked at his medical records turned him down (a lot worse since then). He has lost a lot of weight - doesn't want to eat. He has now added lack of bowel control to lack of bladder control. His moods, even with medications, swing from angry to loving. A constant yoyo. He has had at least 10 falls since last April that I know of. Sometimes he admits he had falls back then that he didn't tell me about as he was able to get himself up - which he can no longer do.
From everything I've read he should qualify for hospice, which would make things better for him. And for me, having more help. It is amazing the 'show' he can put on for doctors! Makes me wonder if he is lying to them or to me??? He wants me to wait on him 24/7.
Replies to "Bill has MCI or mild dementia. Plus numerous small health problems. The MCI started out with..."
Because hospice is intended for those who are likely to die within 6 months, hospice may not be the right place for Bill. From what you wrote, an assisted living or continuing care community seem like good alternatives for him and would relieve you.
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Please look up vascular dementia on this website, my husband has it and mirrors everything you’ve described about yours.
For Hospice, the doctor has to certify that death is expected within 6 months, the certification can be renewed twice. People with vascular dementia, on average, live 5-8 years after diagnosis, so your doctor will be reluctant to certify for hospice, as that has been identified as a key area of Medicare/Medicaid fraud. Other dementia diagnoses people can live a lot longer.