Pancreatic Cancer Group: Introduce yourself and connect with others

Thank you for sharing that. My dad got his chemo 1 week ago. Hopefully he will begin to feel better soon. I will also ask his doctor if he can try beano. How are you feeling now?

Thank you for responding. I asked the RN if the bloating could be ascites and she said that he has gas, not ascites, and that this is a common side effect of his chemo. She said for him to move around and eat more frequently. Have you heard or read anything supporting this? He sees the oncologist this week, I plan to ask her then.

Hello Everyone,
My first day here. As you know, it’s a crazy few weeks after being diagnosed (10/27/2022). First infusion yesterday and working on an at-home pump for a few days. Staying positive and trying to stay in the moment. Love to all. Below is a picture of me and my mother. She just turned 93 this week.

Hello, I am the wife of Bob, my husband of 45 years. He was first diagnosed April 2022 with (very early) bile duct cancer, later scans showed (a very small mass on the pancreatic head.) . no found spreading and was on the road to a Whipple procedure after 4 rounds of chemo on his way to a potential cure.. At surgery they found more cancer that had spread into the belly (little seeds) , They now feel that this is pancreatic stage 4 cancer. They didn't do the whipple , but did repair a large hernia. The only treatment recommended for him going forward is more chemo and feel he has about one year to live. We are seeking more options and have found a study in Portland, Oregon using T cells and will be talking with them soon. we also read about an oral medication (Texas oncology) Lynparza PARP inhibitor that delays progression and improves survival rates. We are not getting much support from our local oncology department for new helpful treatments or clinical trials. I am reaching out to all of you if you have tried other helpful treatments to extend life. Thank you all so much for any information you can share with us. We Wish all for you the best.

lovingwifeterry,

I think what you're feeling is local medical teams providing the normal standards of care approach, combined with significant statistical knowledge concerning the daunting and horrible effects of pancreatic cancer.

I believe these medical professionals are as traumatized as you are by this disease.

Once metastasis occurs outside the pancreas and perhaps formal restaging to Stage IV occurs, they know there is little to be done except, in many cases, return to chemo to buy a little bit more time.

What does his CA 19-9 trend indicate?

Hello, I am the wife of Bob, my husband of 45 years. He was first diagnosed April 2022 with (very early) bile duct cancer, later scans showed (a very small mass on the pancreatic head.) . no found spreading and was on the road to a Whipple procedure after 4 rounds of chemo on his way to a potential cure.. At surgery they found more cancer that had spread into the belly (little seeds) , They now feel that this is pancreatic stage 4 cancer. They didn't do the whipple , but did repair a large hernia. The only treatment recommended for him going forward is more chemo and feel he has about one year to live. We are seeking more options and have found a study in Portland, Oregon using T cells and will be talking with them soon. we also read about an oral medication (Texas oncology) Lynparza PARP inhibitor that delays progression and improves survival rates. We are not getting much support from our local oncology department for new helpful treatments or clinical trials. I am reaching out to all of you if you have tried other helpful treatments to extend life. Thank you all so much for any information you can share with us. We Wish all for you the best.

I'm hoping by finding this website it will help me to learn more about the cyst I have on my pancreas and liver. Any info would be much appreciated.

@lovingwifeterry, I add my welcome and would underline the caring response you got from @mayoconnectuser1. Have you considered getting a second opinion at MD Anderson or Mayo Clinic?