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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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Amitriptyline is older but effective medication for anxiety and depression at higher dose may be generic name also?
Tizanadine is another medication that helps reduce and deal with neuropathy symptoms.
Also for my feet the biweekly pedicure and massage comforting and relaxing and the foot roller.
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1 ReactionUnsure
is anyone trying to massage using the device such as https://www.carpalrx.com ?
I have a heated vibrating ball I roll my foot on for 10+ min each am then switch feet. I use a tennis ball on the off foot. I get some pleasure and relief from both. Johnmacc
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3 ReactionsI do. I have antibodies to my IF Factor. I’m on EOD injections and have been improving but I’m scared it may not completely resolve.
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1 ReactionWelcome @annelise, I see that you have already connected with @pdsi43one. There are a couple of other discussions for pernicious anemia that you might find helpful:
-- Pernicious anemia: https://connect.mayoclinic.org/discussion/pernicious-anemia-1/
-- I have questions about Pernicious Anemia + IBS + FODMAP: I have questions about Pernicious Anemia + IBS + FODMAP
-- Pernicious Anemia and B12 Ranges: https://connect.mayoclinic.org/discussion/pernicious-anemia-2/
Have you mentioned your concerns with your doctor to see if they have any thoughts?
I am a member but forgot my password? I tried your directions but will not let me change it????
Hi @alfer, Are you logged in now? If you are, you just need to click on your member name to go to your profile. Once on your profile screen, click the Settings tab below your profile description, then click the Edit link to the right of Change Password. See the attached screen.
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2 Reactions@alfer, if you are able to post as you did here, you are a member and you are already signed in. If I can help further, please contact me using this form: https://connect.mayoclinic.org/contact-a-community-moderator/
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1 ReactionI have extreme neuropathy. I can't balance, on my feet, the pain goes up my legs to my knees. My legs feel like logs. They are cold in the morning. I get shooting electric pains shooting into my legs. These pains have been getting stronger, and now I get them on the bottom of my toes. My hands are numb most of the time, and I can't pick up things, and I drop things all the time. My colon feels like it's clogged. I used to have small pencil size, bowl movements. now they are more like mush. I feel like my colon is clogged. I don't know what to do. My doctor told me when I was diagnosed that there was no cure for me. I have felt like I've been dying for the last few years. I refuse to go back to him, he was a jerk. I am currently away from home for the next 5 months. Last year I fell and broke my femur, had surgery, and fell again, and broke the same femur in a different place. The surgeries have made my neuropathy spread quickly. I'm afraid to have any surgery.